A new EU Framework for an Ethical Re-use of Health Data

Project Information

DataCom

Grant agreement ID: 101108151

DOI

10.3030/101108151

Project closed

EC signature date 16 May 2023

Start date 1 July 2023

End date 30 June 2025

Funded under

• Marie Skłodowska-Curie Actions (MSCA)

Total cost

No data

EU contribution

€ 188 590,08

Coordinated by

UNIVERSITA DEGLI STUDI DI TORINO
Italy

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Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Deliverables

Documents, reports (1)

Communication, Dissemination & Exploitation Plan

The plan describes the planned measures to maximize the impact ofthe project, including the dissemination and exploitation measures that are planned,and the target group(s) addressed. Regarding communication measures and publicengagement strategy, the aim is to inform and reach out to society and show theactivities performed, and the use and the benefits the project will have for citizens.

Data Management Plan (1)

Data Management Plan

The Data Management Plan describes the data management life cyclefor all data sets that will be collected, processed or generated by the action. It is adocument describing what data will be collected, processed or generated andfollowing what methodology and standards, whether and how this data will beshared and/or made open, and how it will be curated and preserved.

Publications

Peer reviewed articles (2)

The risks of health data commodification in the EU digital market

Author(s): Chiara Gallese
Published in: Yearbook of Antitrust and Regulatory Studies, 2024, ISSN 1689-9024
Publisher: University of Warsaw
DOI: 10.7172/1689-9024.YARS.2024.17.29.3

FanFAIR: sensitive data sets semi-automatic fairness assessment

Author(s): Chiara Gallese, Teresa Scantamburlo, Luca Manzoni, Simone Giannerini, Marco S. Nobile
Published in: BMC Medical Informatics and Decision Making, Issue 25, 2025, ISSN 1472-6947
Publisher: Springer Science and Business Media LLC
DOI: 10.1186/S12911-025-03184-4

Book chapters (2)

Redefining Anonymization: Legal Challenges and Emerging Threats in the Era of the European Health Data Space

Author(s): Chiara Gallese
Published in: Data Science, Machine Intelligence, and Law, Enabling and Safeguarding Personalized Medicine, 2025
Publisher: Springer Nature Switzerland
DOI: 10.1007/978-3-031-99709-9_5

Redefining Anonymization: Legal Challenges and Emerging Threats in the Era of the European Health Data Space

Author(s): Chiara Gallese
Published in: Data Science, Machine Intelligence, and Law, Enabling and Safeguarding Personalized Medicine, 2025
Publisher: Springer Nature Switzerland
DOI: 10.1007/978-3-031-99709-9_5

Conference proceedings (4)

Investigating Fairness with FanFAIR: is Pre-Processing Useful Only for Performances?

Author(s): Michele Rispoli, Marco S. Nobile, Luca Manzoni, Alberto D'Onofrio, Marco Confalonieri, Francesco Salton, Paola Confalonieri, Barbara Ruaro, Chiara Gallese
Published in: 2025 IEEE Symposium on Computational Intelligence in Health and Medicine (CIHM), 2025
Publisher: IEEE
DOI: 10.1109/CIHM64979.2025.10969477

Software systems compliance with the AI Act: Lessons learned from an international challenge

Author(s): Scantamburlo, T., Falcarin, P., Veneri, A., Fabris, A., Gallese, C., Rotolo, F., Billa, V., & Marcuzzi, F.
Published in: 2024
Publisher: ACM
DOI: 10.1145/3643691.3648589

Identifying Bias in Data Collection: A Case Study on Drugs Distribution

Author(s): Claudia Sessa, Chiara Gallese, Fabrizio Schettini, Daniele Bellavia, Federica Asperti, Elena Falletti
Published in: 2024 International Joint Conference on Neural Networks (IJCNN), 2024
Publisher: IEEE
DOI: 10.2139/SSRN.4999449

Credit scoring and transparency between the AI Act and the Court of Justice of the European Union

Author(s): Falletti, E., & Gallese, C.
Published in: CEUR WS, 2024
Publisher: CEUR-WS.