Project description
A new approach to ethical health data sharing
In today’s digital era, the EU’s push for enhanced health data utilisation has given rise to a critical concern. The impending Digital Strategy Corpus of law has heightened fears about public institutions exploiting extensive health data and jeopardising citizens' well-being, especially within insurance-based healthcare systems. With the backing of Marie Skłodowska-Curie Actions, the DataCom project will establish an ethical framework for the secondary use of health data held by public bodies. Focusing on Italy, Spain and the Netherlands, DataCom will pioneer the concept of ethical commodification. This approach seeks to harness personal data for the greater good while respecting individual expectations and addressing associated risks.
Objective
The EU has recently enhanced the potential of health data in the EU digital market by promoting a number of initiatives and new regulations to facilitate data sharing and re-use among public institutions: the forthcoming provisions of the Digital Strategy Corpus of law. These, in combination with pre-existing rules and practices of health data exploitation, might sharpen the risks for citizens, for example allowing public bodies to exploit big data sets - to make detrimental decisions regarding the access of certain patients to health care (e.g. in the case of insurance-based systems). In this context, academic analysis is urgently needed, as well as suggesting a revision of the new regulations to EU policy-makers to facilitate responsible data sharing. DataCom aims at building a new framework to facilitate an ethical secondary use of health data held by public bodies, with the aim of improving accountability and enhancing responsible re-use. To build it, I will develop and test in intersectoral practical environments the innovative concept of Ethical Commodification: the possibility of exploiting personal data in an ethical way for the public good, in accordance with the data subjects expectations and needs and taking into account the risks associated with the exploitation of anonymized data sets, focusing on 3 Member States, Italy, Spain, and the Netherlands. In order to reach this objective, DataCom has a strong interdisciplinary and intersectoral approach, bridging law, ethics, and computer science, taking into consideration the needs of the public sector and those of citizens. To ensure the successful implementation of these project goals I will conduct my research at the University of Turin's Law Department, with the guidance of Prof. Ugo Pagallo, a leading scholar. This project will prepare me to become a tenured scholar and obtain advanced funding, strengthening my academic profile and allowing me to establish my own research group.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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HORIZON.1.2 - Marie Skłodowska-Curie Actions (MSCA)
MAIN PROGRAMME
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
HORIZON-TMA-MSCA-PF-EF - HORIZON TMA MSCA Postdoctoral Fellowships - European Fellowships
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) HORIZON-MSCA-2022-PF-01
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
10124 TORINO
Italy
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.