Better rEal-world healTh-daTa distributEd analytics Research platform

Informazioni relative al progetto

BETTER

ID dell’accordo di sovvenzione: 101136262

DOI

10.3030/101136262

Data della firma CE 10 Novembre 2023

Data di avvio 1 Dicembre 2023

Data di completamento 31 Maggio 2027

Finanziato da

• Health

Costo totale

€ 9 553 530,00

Contributo UE

€ 9 553 530,00

Coordinato da

DATRIX SPA
Italy

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Risultati finali

Documents, reports (6)

FAIRification technical report

Documentation of T6.1 workshops outcome and the identified external repositories.

Technical IT setup definition

Release the code repository and the IT best practices and management tools identified in T5.1.

Pseudonymisation report and performances

Report on pseudonymisation techniques developed in T4.2 describing the methodology and the observed performances on real data.

Technical documentation

Publish on the project’s website the technical documentation required to activate the BETTER platform. Including Task 3.5 IT security requirements

Legal, ethical and data protection documentation

A folder with legal, ethical and data protection documents worked in T3.1 will be consolidated, reviewed and published on the project’s webpage.

ELSA-aware Data Science Lifecycle methodology

Document and publish the identified ELSA-aware Data Science Lifecycle methodology.

Data Management Plan (1)

Data management plan

Report detailing the project’s data management plan (T1.5).

Other (1)

Ethics report

Report detailing ethics and privacy management (T1.4).

Websites, patent fillings, videos etc. (1)

Project’s public website, social media presence, leaflet and poster

The project’s website, social media presence and any additional material (e.g. leaflets, posters, t-shirts) to be used for project communication.Please be informed that it is good practice to list the names of all work package leads on the project website.

Pubblicazioni

Peer reviewed articles (7)

Advancing Privacy-Preserving Health Care Analytics and Implementation of the Personal Health Train: Federated Deep Learning Study

Autori: Ananya Choudhury, Leroy Volmer, Frank Martin, Rianne Fijten, Leonard Wee, Andre Dekker, Johan van Soest
Pubblicato in: JMIR AI, Numero 4, 2025, ISSN 2817-1705
Editore: JMIR Publications Inc.
DOI: 10.2196/60847

Making head and neck cancer clinical data Findable-Accessible-Interoperable-Reusable to support multi-institutional collaboration and federated learning

Autori: Varsha Gouthamchand, Ananya Choudhury, Frank J P Hoebers, Frederik W R Wesseling, Mattea Welch, Sejin Kim, Joanna Kazmierska, Andre Dekker, Benjamin Haibe-Kains, Johan van Soest, Leonard Wee
Pubblicato in: BJR|Artificial Intelligence, Numero 1, 2024, ISSN 2976-8705
Editore: Oxford University Press (OUP)
DOI: 10.1093/BJRAI/UBAE005

Advancing healthcare through data: the BETTER project's vision for distributed analytics

Autori: Matteo Bregonzio; Anna Bernasconi; Pietro Pinoli
Pubblicato in: Frontiers in Medicine, 2024, ISSN 2296-858X
Editore: Frontiers
DOI: 10.3389/FMED.2024.1473874

Nutrients

Autori: Simona Ferraro; Laura Saielli; Davide Biganzoli; Martina Tosi; Laura Guidi; Roberto Longo; Francesca Severino; Stephana Carelli; Maura Rossi; Livia Pisciotta; Emilia Ricci; Francesca Brustia; Elvira Verduci; Gianvincenzo Zuccotti; Michele Mussap; Cristina Cereda
Pubblicato in: Nutrients, 2025, ISSN 2072-6643
Editore: MDPI
DOI: 10.3390/NU17020274

Molecular Genetics and Metabolism Reports

Autori: Mauri, Alessia; Berardo, Clarissa; Biganzoli, Davide; Meta, Andrea; Benedetti, Sara; Rey, Federica; Messa, Letizia; Zuccotti, Gian Vincenzo; Carelli, Stephana; Alberti, Luisella; Cereda, Cristina
Pubblicato in: Molecular Genetics and Metabolism Reports, 2024, ISSN 2214-4269
Editore: Elsevier BV
DOI: 10.1016/J.YMGMR.2024.101074

BMWP: the first Bengali math word problems dataset for operation prediction and solving

Autori: Sanchita Mondal; Debnarayan Khatua; Sourav Mandal; Dilip K. Prasad; Arif Ahmed Sekh
Pubblicato in: Discover Artificial Intelligence, Numero 5, 2025, ISSN 2731-0809
Editore: Springer
DOI: 10.1007/S44163-025-00243-7

Heterozygous MAP3K20 variants cause ectodermal dysplasia, craniosynostosis, sensorineural hearing loss, and limb anomalies

Autori: Daniel Brooks; Elizabeth Burke; Sukyeong Lee; Tanya N. Eble; Melanie O’Leary; Ikeoluwa Osei-Owusu; Heidi L. Rehm; Shweta U. Dhar; Lisa Emrick; David Bick; Michelle Nehrebecky; Ellen Macnamara; Dídac Casas-Alba; Judith Armstrong; Carolina Prat; Antonio F. Martínez-Monseny; Francesc Palau; Pengfei Liu; David Adams; Seema Lalani; Jill A. Rosenfeld; Lindsay C. Burrage
Pubblicato in: Human Genetics, Numero 143, 2024, ISSN 1432-1203
Editore: Springer
DOI: 10.1007/S00439-024-02657-2

Other (2)

Two novel mutations in TBC1D32 add complexity to the oro-facial-digital syndrome

Autori: Belén García-Bohórquez; Purificación Marín-Reina; Elena Aller; Pilar Barberán-Martínez; Miguel Armengot; Roberto Llorens-Salvador; Inmaculada Concepción Almor-Palacios; José M. Millán; Gema García-García
Pubblicato in: Human Genomics, 2025
DOI: 10.1186/S40246-025-00759-0

Molecular Therapy - Nucleic Acids

Autori: García-Bohórquez, B.; Barberán-Martínez, P.; Aller, E.; Jaijo, T.; Mínguez, P.; Rodilla, C.; Fernández-Caballero, L.; Blanco-Kelly, F.; Ayuso, C.; Sanchis-Juan, A.; Broekman, S.; Broekman, S.; de Vrieze, E.; de Vrieze, E.; van WIjk, E.; van WIjk, E.; García-García, G.; Millán, J.M.
Pubblicato in: Molecular Therapy - Nucleic Acids, 2024, ISSN 2162-2531
Editore: Nature Publishing Group
DOI: 10.1016/J.OMTN.2024.102374

Book chapters (3)

What to Report? A Systematic Review of Medical AI Reporting Guidelines: Preliminary Results

Autori: Ekaterina Akhmad, Daniël Slob, Aiara Lobo Gomes, Andre Dekker, Johan van Soest
Pubblicato in: Studies in Health Technology and Informatics, Intelligent Health Systems – From Technology to Data and Knowledge, 2025
Editore: IOS Press
DOI: 10.3233/SHTI250351

Studies in Health Technology and Informatics

Autori: Johan van Soest, Luis Sanchez Gomez, Leonard Wee, Andre Dekker
Pubblicato in: Studies in Health Technology and Informatics, Intelligent Health Systems – From Technology to Data and Knowledge, 2025
Editore: IOS Press
DOI: 10.3233/SHTI250324

Leveraging Profiling to Bridge Healthcare Silos for Federated Analyses

Autori: Nelly Barret, Anna Bernasconi, Cinzia Cappiello, Giacomo Palu, Pietro Pinoli
Pubblicato in: Lecture Notes in Business Information Processing, Intelligent Information Systems, 2025
Editore: Springer Nature Switzerland
DOI: 10.1007/978-3-031-94590-8_3

Conference proceedings (1)

Enhancing retinal image clarity: denoising fundus and OCT images using advanced U-Net deep learning

Autori: Jitindra Fartiyal, Pedro De Carvalho Sourza, Yasmin Whayeb, Matteo Bregonzio, James S. Wolffsohn, Sergei G. Sokolovski
Pubblicato in: Dynamics and Fluctuations in Biomedical Photonics XXII, 2025
Editore: SPIE
DOI: 10.1117/12.3057145