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Leistungen
Platform and data specifications. It presents a detailed blueprint for the design and implementation of the project's data infrastructure and platform architecture. It outlines the data models and metadata schemas that will govern the organization, storage, and retrieval of research data, ensuring consistency, interoperability, and compliance with industry standards. The document describes the platform architecture, including hardware, software, and networking components, necessary for supporting data collection, processing, and analysis tasks. Emphasis is placed on scalability, performance, and security to accommodate the diverse needs of stakeholders and the complexities of pediatric health data. Additionally, the deliverable highlights integration strategies for interfacing with existing healthcare systems, data repositories, and research tools to facilitate seamless data exchange and collaboration. Through meticulous planning and design, Deliverable D2.3 lays the foundation for a robust and flexible data infrastructure that will underpin the PROTECT-CHILD project's research objectives, enabling efficient data management, sharing, and analysis in the pursuit of improving child health outcomes.
Communication and dissemination (öffnet in neuem Fenster)Reporting of all the project publications and communication materials. It focuses on the activities related to all project publications and communication materials. It encompasses the development, distribution, and promotion of various outputs, including scientific papers, reports, press releases, presentations, and multimedia content, to effectively communicate project findings and outcomes to diverse audiences. The deliverable outlines strategies for ensuring the quality, relevance, and accessibility of project publications and communication materials, aiming to maximize their reach and impact. Additionally, it addresses the coordination of dissemination efforts across different channels and platforms, as well as the monitoring and evaluation of their effectiveness in achieving project objectives. By systematically managing communication and dissemination activities, D10.4 aims to enhance the visibility, credibility, and societal relevance of the project, ultimately contributing to its overall success and sustainability.
Stakeholder Requirements and legal framework (öffnet in neuem Fenster)Outlines the legal requirement and needs of stakeholders for the research project. It provides a comprehensive overview of the project's stakeholders' needs and expectations, alongside an analysis of relevant legal and regulatory frameworks. It outlines the specific requirements, preferences, and constraints of stakeholders such as researchers, clinicians, patients, regulatory bodies, and industry partners. Additionally, the deliverable delves into the legal landscape, encompassing data protection laws, medical ethics regulations, and clinical trial guidelines, ensuring the project's compliance with all pertinent legal and ethical standards. Detailed provisions for data governance, privacy protection, and ethical considerations are provided to safeguard participant rights and welfare. Furthermore, the document assesses potential risks and proposes mitigation strategies to address legal, regulatory, and stakeholder-related challenges, ensuring the project's smooth execution and adherence to ethical principles throughout its lifecycle. Ultimately, Deliverable D2.2 serves as a guiding document for navigating the complex interplay of stakeholder requirements and legal considerations in the PROTECT-CHILD project, thereby facilitating its responsible conduct and successful outcomes in child health research and protection.
High level requirements and user stories (öffnet in neuem Fenster)this deliverable might include:High-Level Requirements: This section outlines the overarching goals and objectives of the project. It defines the primary functionalities and features that the PROTECT-CHILD platform or system aims to deliver. These requirements may include data collection, analysis, visualization, reporting, and collaboration capabilities. Additionally, high-level requirements related to data security, privacy, scalability, and interoperability may be specified to ensure that the platform meets regulatory and technical standards.User Stories: User stories are narratives that describe specific interactions or workflows from the perspective of end-users or stakeholders. In this deliverable, user stories are likely used to capture the diverse needs and use cases of different stakeholders involved in the PROTECT-CHILD project, such as researchers, clinicians, patients, and administrators. Each user story typically follows a structured format, including a description of the user, their goal or objective, and any relevant acceptance criteria or conditions of satisfaction.Functional Requirements: Functional requirements define the specific functions or capabilities that the PROTECT-CHILD platform must support to satisfy the needs identified in the user stories. These requirements may cover aspects such as data collection forms, data analysis algorithms, visualization tools, communication features, and workflow automation functionalities. Functional requirements help ensure that the platform delivers the necessary features to support users in achieving their goals effectively and efficiently.Non-Functional Requirements: Non-functional requirements specify the quality attributes or constraints that the PROTECT-CHILD platform must adhere to, beyond just functional capabilities. These requirements may include performance criteria (e.g., response time, throughput), reliability and availability requirements, usability and accessibility standards, security and privacy measures, and compliance with relevant regulations or standards. Non-functional requirements ensure that the platform not only functions correctly but also meets broader criteria for usability, reliability, and compliance.Traceability Matrix: To ensure alignment between requirements and user stories, a traceability matrix may be included in the deliverable. This matrix maps each user story to the specific functional and non-functional requirements that it addresses, providing a clear understanding of how each requirement contributes to fulfilling user needs. Traceability matrices help ensure that all user needs are adequately addressed by the system's functionalities and features.Overall, deliverable D2.1 serves as a foundational document for guiding the development and implementation of the PROTECT-CHILD platform, providing a detailed roadmap of requirements and user stories to inform the design, development, and testing processes.
Data management Plan (öffnet in neuem Fenster)Data collection, storage, sharing procedures and strategies. Data Management Plan serves as a roadmap for ensuring that data generated or used in the PROTECT-CHILD project is managed effectively, ethically, and in accordance with best practices and regulatory requirements.
Launch of the project website.
Veröffentlichungen
Autoren:
Molina Morales, Nerea; Vallès-Poch, Mar; Castillo Parrilla, José Antonio; Delgado Rodríguez, Janet; Díaz Cobacho, Gonzalo; Rueda Etxebarria, Jon; Sánchez Frías, Irene; Rodríguez-Arias, David
Veröffentlicht in:
Dilemata, 2025
Herausgeber:
Plaza y Valdés Editores
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