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Governing Health, Family and Religion: The Biopolitics of Genetic Counselling and Religious Family Formations

Project description

Genetic counselling and family formations in comparative religious contexts

Religious minorities have unique attitudes towards genetic counselling and reproductive practices, but research often focuses on specific national contexts, neglecting broader comparisons. The ERC-funded RELI-GENE project will investigate minority perspectives on genetic counselling and reproductive options for inherited genetic disorders, focusing on communities that value consanguineous and endogamous marriages. The project investigates how state-led genetic healthcare policies intersect with religious and cultural practices in close-knit religious minority communities, including Jewish, Christian and Muslim groups, particularly in relation to consanguineous and endogamous unions. Through a comparative analysis across Europe and the Middle East, RELI-GENE offers a new approach to understanding how state regulations, communal norms and individual agency shape contemporary family-making.

Objective

RELI-GENE is an interdisciplinary project which examines minorities’ attitudes towards genetic counselling and reproductive options in the case of inherited genetic recessive disorders and analyses how healthcare policies govern communities’ family formations. It focuses on close-knit religious minorities that emphasise consanguineous and endogamous marriages to strengthen communal bonds to provide a sense of solidarity and of safeguarding lineage and purity. Current scholarship focuses predominantly on single national contexts, specific healthcare policies and individual religious communities, neglecting comparable perspectives. RELI-GENE specifically analyses how transnational spaces serve as strategies to navigate and bypass national healthcare policies and legal restrictions related to marriage and reproductive practices. The project adds a new conceptual framework to understanding (a) the broader implications of directive, nondirective and mandatory genetic counselling within diverse national healthcare systems; (b) communities’ own use of biopolitics to construct discourses around lineage and purity; (c) how individuals respond to both state policies and to the religio-cultural norms and expectations within their communities.
RELI-GENE offers a perspectival shift on the governmentality and biopolitics of family formation by
1. examining the different forms of power in state-led biopolitics in Israel and the United Arab Emirates, Sweden and Germany and their respective healthcare systems,
2. exploring communities and their transnational links which for religious, cultural and political reasons manifest a biopolitics of purity and examining how these communities construct lineage-oriented narratives to counter their minority status or sense of persecution and marginalisation,
3. analysing how individuals respond to state policies but also to the religio-cultural traditions of their communities, and how they engage in various forms of self-governing.

Fields of science (EuroSciVoc)

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Keywords

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Programme(s)

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Topic(s)

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Funding Scheme

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HORIZON-ERC - HORIZON ERC Grants

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Call for proposal

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(opens in new window) ERC-2024-COG

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Host institution

SCHOOL OF ORIENTAL AND AFRICAN STUDIES ROYAL CHARTER
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 1 999 883,31
Address
THORNHAUGH STREET RUSSEL SQUARE
WC1H OXG London
United Kingdom

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Activity type
Higher or Secondary Education Establishments
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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 1 999 883,31

Beneficiaries (1)

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