Objective
HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform with open standards and tools, designed to enable secure storage, governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. The overall idea of the HarmonicSS project is to bring together the largest well characterized regional, national and international longitudinal cohorts of patients with Primary Sjögren’s Syndrome (pSS) including those participating in clinical trials, and after taking into consideration the ethical, legal, privacy and IPR issues for sharing data from different countries, to semantically interlink and harmonize them into an integrative pSS cohort structure on the cloud. Upon this harmonized cohort, services for big data mining, governance and visual analytics will be integrated, to address the identified clinical and health policy pSS unmet needs. In addition, tools for specific diagnostic procedures (e.g. ultrasonography image segmentation), patient selection for clinical trials and training will be also provided. The users of the HarmonicSS platform are researchers (basic/translational), clinicians, health policy makers and pharma companies. pSS is relevant not only due to its clinical impact but also as one of the few “model” diseases to link autoimmunity, cancer development (lymphoproliferation) and the pathogenetic role of infection. Thus, the study of pSS can facilitate research in many areas of medicine; for this reason, the possibility for sustainability and expandability of the platform is enhanced. Moreover, pSS has a significant impact on the healthcare systems, similar to that of rheumatoid arthritis.
Fields of science
- medical and health scienceshealth sciencespublic health
- medical and health sciencesclinical medicinerheumatology
- natural sciencescomputer and information sciencesdata sciencebig data
- natural sciencescomputer and information sciencesdata sciencedata mining
- medical and health sciencesclinical medicineoncology
Programme(s)
Topic(s)
Funding Scheme
RIA - Research and Innovation actionCoordinator
10561 Athina
Greece
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Participants (38)
106 82 Athina
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45110 Ioannina
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71004 Heraklion
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57001 Thermi Thessaloniki
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33100 Udine
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
33100 Udine
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56126 Pisa
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06123 Perugia
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67100 L Aquila
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00185 Roma
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56127 Pisa
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30625 Hannover
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10117 Berlin
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80686 Munchen
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30167 Hannover
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B15 2TT Birmingham
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E1 4NS London
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NE1 7RU Newcastle Upon Tyne
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08036 Barcelona
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
08036 Barcelona
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28003 Madrid
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28037 Madrid
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29238 Brest
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91190 Gif-sur-yvette
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Participation ended
22100 Lund
751 05 Uppsala
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9713 GZ Groningen
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3584 CX Utrecht
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3500 BN Utrecht
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8802 Kilchberg
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5020 Bergen
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1050 Bruxelles
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34000 Kragujevac
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
73104 Oklahoma City
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20817 Bethesda Md
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15344 Gerakas Attiki
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
176 71 Athina
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75012 Paris
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