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RECAP preterm: Research on European Children and Adults born Preterm

Objective

The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries.
VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood.
The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations.
The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.

Field of science

  • /social sciences/sociology/demography/fertility
  • /social sciences/sociology/social problems
  • /social sciences/economics and business/business and management/employment
  • /social sciences/sociology/governance
  • /social sciences/educational sciences/pedagogy/teaching

Call for proposal

H2020-SC1-2016-RTD
See other projects for this call

Funding Scheme

RIA - Research and Innovation action

Coordinator

NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO
Address
Anna Van Buerenplein 1
2595 DA Den Haag
Netherlands
Activity type
Research Organisations
EU contribution
€ 840 210

Participants (20)

THE UNIVERSITY OF WARWICK
United Kingdom
EU contribution
€ 1 062 338,75
Address
Kirby Corner Road - University House
CV4 8UW Coventry
Activity type
Higher or Secondary Education Establishments
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
EU contribution
€ 819 678,75
Address
Rue De Tolbiac 101
75654 Paris
Activity type
Research Organisations
INSTITUTO DE SAUDE PUBLICA DA UNIVERSIDADE DO PORTO
Portugal
EU contribution
€ 642 500
Address
Praca Gomes Teixeira - Edificio Gomes Teixeira
4050 290 Porto
Activity type
Research Organisations
VAN VEEN EVERT BERNARD

Participation ended

Netherlands
EU contribution
€ 19 320
Address
Amalia Van Solmsstraat 46
2595 TB Den Haag
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
INESC TEC - INSTITUTO DE ENGENHARIADE SISTEMAS E COMPUTADORES, TECNOLOGIA E CIENCIA
Portugal
EU contribution
€ 700 000
Address
Rua Dr Roberto Frias Campus Da Feup
4200 465 Porto
Activity type
Research Organisations
UNIVERSITY OF LEICESTER
United Kingdom
EU contribution
€ 810 361,25
Address
University Road
LE1 7RH Leicester
Activity type
Higher or Secondary Education Establishments
TERVEYDEN JA HYVINVOINNIN LAITOS
Finland
EU contribution
€ 888 882,50
Address
Mannerheimintie 166
00271 Helsinki
Activity type
Research Organisations
EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS
Germany
EU contribution
€ 200 000
Address
Hofmannstr 7 A
81379 Munchen
Activity type
Other
NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU
Norway
EU contribution
€ 460 280
Address
Hogskoleringen 1
7491 Trondheim
Activity type
Higher or Secondary Education Establishments
KAROLINSKA INSTITUTET
Sweden
EU contribution
€ 579 375
Address
Nobels Vag 5
17177 Stockholm
Activity type
Higher or Secondary Education Establishments
UNIVERSITATSKLINIKUM BONN
Germany
EU contribution
€ 240 828,75
Address
Venusberg-campus 1
53127 Bonn
Activity type
Higher or Secondary Education Establishments
HELSINGIN YLIOPISTO
Finland
EU contribution
€ 203 000
Address
Yliopistonkatu 3
00014 Helsingin Yliopisto
Activity type
Higher or Secondary Education Establishments
OSPEDALE PEDIATRICO BAMBINO GESU
Italy
EU contribution
€ 480 625
Address
Piazza Sant Onofrio 4
00165 Roma
Activity type
Other
REGION HOVEDSTADEN
Denmark
EU contribution
€ 284 000
Address
Kongens Vaenge 2
3400 Hillerod
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
PHILIPPS UNIVERSITAET MARBURG
Germany
EU contribution
€ 275 750
Address
Biegenstrasse 10
35037 Marburg
Activity type
Higher or Secondary Education Establishments
TARTU ULIKOOL
Estonia
EU contribution
€ 290 000
Address
Ulikooli 18
51005 Tartu
Activity type
Higher or Secondary Education Establishments
UNIVERSITEIT ANTWERPEN
Belgium
EU contribution
€ 290 250
Address
Prinsstraat 13
2000 Antwerpen
Activity type
Higher or Secondary Education Establishments
Concentris Research Management GmbH
Germany
EU contribution
€ 300 000
Address
Ludwigstr. 4
D-82256 Fürstenfeldbruck
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
EXTENSIVE LIFE OY
Finland
EU contribution
€ 187 500
Address
Kaaponkuja 7 A 1
33820 Tampere
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
STICHTING MLC FOUNDATION
Netherlands
EU contribution
€ 138 330
Address
Dagelijske Groenmarkt 2
2513 AL Den Haag
Activity type
Other