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RECAP preterm: Research on European Children and Adults born Preterm

Objective

The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries.
VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood.
The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations.
The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.

Call for proposal

H2020-SC1-2016-2017

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Sub call

H2020-SC1-2016-RTD

Coordinator

NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO
Net EU contribution
€ 840 210,00
Address
Anna Van Buerenplein 1
2595 DA Den Haag
Netherlands

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Region
West-Nederland Zuid-Holland Agglomeratie ’s-Gravenhage
Activity type
Research Organisations
Other funding
€ 840 210,00

Participants (20)

THE UNIVERSITY OF WARWICK
United Kingdom
Net EU contribution
€ 1 062 338,75
Address
Kirby Corner Road - University House
CV4 8UW Coventry

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Region
West Midlands (England) West Midlands Coventry
Activity type
Higher or Secondary Education Establishments
Other funding
€ 1 062 338,75
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
Net EU contribution
€ 819 678,75
Address
Rue De Tolbiac 101
75654 Paris

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Region
Ile-de-France Ile-de-France Paris
Activity type
Research Organisations
Other funding
€ 819 678,75
INSTITUTO DE SAUDE PUBLICA DA UNIVERSIDADE DO PORTO
Portugal
Net EU contribution
€ 642 500,00
Address
Praca Gomes Teixeira - Edificio Gomes Teixeira
4050 290 Porto

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Continente Norte Área Metropolitana do Porto
Activity type
Research Organisations
Other funding
€ 642 500,00
VAN VEEN EVERT BERNARD

Participation ended

Netherlands
Net EU contribution
€ 19 320,00
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 19 320,00
INESC TEC - INSTITUTO DE ENGENHARIADE SISTEMAS E COMPUTADORES, TECNOLOGIA E CIENCIA
Portugal
Net EU contribution
€ 700 000,00
Address
Rua Dr Roberto Frias Campus Da Feup
4200 465 Porto

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Region
Continente Norte Área Metropolitana do Porto
Activity type
Research Organisations
Other funding
€ 700 000,00
UNIVERSITY OF LEICESTER
United Kingdom
Net EU contribution
€ 810 361,25
Address
University Road
LE1 7RH Leicester

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Region
East Midlands (England) Leicestershire, Rutland and Northamptonshire Leicester
Activity type
Higher or Secondary Education Establishments
Other funding
€ 810 361,25
TERVEYDEN JA HYVINVOINNIN LAITOS
Finland
Net EU contribution
€ 888 882,50
Address
Mannerheimintie 166
00271 Helsinki

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Region
Manner-Suomi Helsinki-Uusimaa Helsinki-Uusimaa
Activity type
Research Organisations
Other funding
€ 888 882,50
EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS
Germany
Net EU contribution
€ 200 000,00
Address
Hofmannstr 7 A
81379 Munchen

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Region
Bayern Oberbayern München, Kreisfreie Stadt
Activity type
Other
Other funding
€ 200 000,00
NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU
Norway
Net EU contribution
€ 460 280,00
Address
Hogskoleringen 1
7491 Trondheim

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Region
Norge Trøndelag Trøndelag
Activity type
Higher or Secondary Education Establishments
Other funding
€ 460 280,00
KAROLINSKA INSTITUTET
Sweden
Net EU contribution
€ 579 375,00
Address
Nobels Vag 5
17177 Stockholm

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Region
Östra Sverige Stockholm Stockholms län
Activity type
Higher or Secondary Education Establishments
Other funding
€ 579 375,00
UNIVERSITATSKLINIKUM BONN
Germany
Net EU contribution
€ 240 828,75
Address
Venusberg-campus 1
53127 Bonn

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Region
Nordrhein-Westfalen Köln Bonn, Kreisfreie Stadt
Activity type
Higher or Secondary Education Establishments
Other funding
€ 240 828,75
HELSINGIN YLIOPISTO
Finland
Net EU contribution
€ 203 000,00
Address
Yliopistonkatu 3
00014 Helsingin Yliopisto

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Region
Manner-Suomi Helsinki-Uusimaa Helsinki-Uusimaa
Activity type
Higher or Secondary Education Establishments
Other funding
€ 203 000,00
OSPEDALE PEDIATRICO BAMBINO GESU
Italy
Net EU contribution
€ 480 625,00
Address
Piazza Sant Onofrio 4
00165 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Research Organisations
Other funding
€ 480 625,00
REGION HOVEDSTADEN
Denmark
Net EU contribution
€ 284 000,00
Address
Kongens Vaenge 2
3400 Hillerod

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Region
Danmark Hovedstaden Nordsjælland
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Other funding
€ 284 000,00
PHILIPPS UNIVERSITAET MARBURG
Germany
Net EU contribution
€ 275 750,00
Address
Biegenstrasse 10
35037 Marburg

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Region
Baden-Württemberg Stuttgart Stuttgart, Stadtkreis
Activity type
Higher or Secondary Education Establishments
Other funding
€ 275 750,00
TARTU ULIKOOL
Estonia
Net EU contribution
€ 290 000,00
Address
Ulikooli 18
51005 Tartu

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Region
Eesti Eesti Lõuna-Eesti
Activity type
Higher or Secondary Education Establishments
Other funding
€ 290 000,00
UNIVERSITEIT ANTWERPEN
Belgium
Net EU contribution
€ 290 250,00
Address
Prinsstraat 13
2000 Antwerpen

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Region
Vlaams Gewest Prov. Antwerpen Arr. Antwerpen
Activity type
Higher or Secondary Education Establishments
Other funding
€ 290 250,00
CONCENTRIS RESEARCH MANAGEMENT GMBH
Germany
Net EU contribution
€ 300 000,00
Address
Ludwigstr. 4
82256 Furstenfeldbruck

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Bayern Oberbayern Fürstenfeldbruck
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 300 000,00
EXTENSIVE LIFE OY
Finland
Net EU contribution
€ 187 500,00
Address
Kaaponkuja 7 A 1
33820 Tampere

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Manner-Suomi Länsi-Suomi Pirkanmaa
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Other funding
€ 187 500,00
STICHTING MLC FOUNDATION
Netherlands
Net EU contribution
€ 138 330,00
Address
Jaarbeursplein 6
3521 AL Utrecht

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
West-Nederland Utrecht Utrecht
Activity type
Other
Other funding
€ 138 330,00