The Digital Disruption of Health Research and the Common Good. An Empirical-Philosophical Study

Project Information

Digital Good

Grant agreement ID: 804985

DOI

10.3030/804985

Project closed

EC signature date 13 December 2018

Start date 1 January 2019

End date 30 June 2024

Funded under

• EXCELLENT SCIENCE - European Research Council (ERC)

Total cost

€ 1 323 473,00

EU contribution

€ 1 323 473,00

Coordinated by

STICHTING RADBOUD UNIVERSITEIT
Netherlands

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Publications

Non-peer reviewed articles (5)

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic

Author(s): Bettina M. Zimmermann, Hendrik Wagenaar, Katharina Kieslich, Barbara Prainsack, Gert Meyers, Alena Buyx, Seliem El-Sayed, Amelia Fiske, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Stephanie Johnson, Janneke M.L. Kuiper, Federica Lucivero, Stuart McLennan, Katharina T. Paul, Mirjam Pot, Isabella Radhuber, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Ine Van Hoyweghen, Sula Awad, Théo Bo
Published in: SSM - Qualitative Research in Health, Issue 2, 2023, Page(s) 100158, ISSN 2667-3215
Publisher: Elsevier
DOI: 10.1016/j.ssmqr.2022.100158

It Takes Two to Techno-Tango: An Analysis of a Close Embrace Between Google/Apple and the EU in Fighting the Pandemic Through Contact Tracing Apps

Author(s): Marjolein Lanzing, Elisa Lievevrouw, Lotje Siffels
Published in: Science as Culture, Issue 31, 2022, Page(s) 136-148, ISSN 0950-5431
Publisher: Free Association Books
DOI: 10.1080/09505431.2021.1999403

Editorial: Data-intensive medicine and healthcare: ethical and social implications in the era of artificial intelligence and automated decision-making

Author(s): Aviad Raz, Jusaku Minari, Silke Schicktanz, Tamar Sharon, Gabriele Werner-Felmayer
Published in: Frontiers in Genetics, Issue 14, 2023, ISSN 1664-8021
Publisher: Frontiers Media
DOI: 10.3389/fgene.2023.1280344

Sphere transgressions: reflecting on the risks of Big Tech expansionism

Author(s): Marthe Stevens, Steven R. Kraaijeveld, Tamar Sharon
Published in: Information, Communication & Society, 2024, Page(s) 1-13, ISSN 1369-118X
Publisher: Routledge
DOI: 10.1080/1369118x.2024.2353782

Sphere transgressions in medical research: tactical engagements with Apple’s ResearchKit

Author(s): Marthe Stevens
Published in: Information, Communication & Society, 2024, Page(s) 1-18, ISSN 1369-118X
Publisher: Routledge
DOI: 10.1080/1369118x.2024.2326163

Book chapters (6)

Ethical and societal aspects of the digital disruption of health

Author(s): Tamar Sharon
Published in: Zorg Enablers: Technologische Ontwikkelingen in de Gezondheidszorg, 2020, Page(s) 30-31
Publisher: BeBright

The entanglement of technology and health

Author(s): Tamar Sharon
Published in: The Technical Condition, 2022
Publisher: Boom

Ethical and societal aspects of the digital disruption of health

Author(s): Tamar Sharon
Published in: Healthcare Enablers: Technological Developments in Healthcare, 2020
Publisher: BeBright

Met E-health van wij-zorg naar ik-zorg: Hoe technologie de betekenis van gezondhied verandert

Author(s): Tamar Sharon
Published in: Een Gezonde Samenleving: Wetenschappelijke Perspectieven in Tijden van Crisis, 2021
Publisher: Prometheus

In/visibilities in Data Studies: Methods, Tools and Interventions

Author(s): Fahimi, M., Falk, P., Gray, J.W.Y., Jarke, J., Kinder-Kurlanda, K., Light, E., McGeachey, E., Medina Perea, I., Poechhacker, N., Poirier, L., Röhle, T., Sharon, T., Stevens, M., van Gastel, B., White, Q., and Zakharova, I.
Published in: Dialogues in Data Power: Shifting Response-abilities in a Datafied World, 2024, ISBN 1529238303
Publisher: Bristol University Press

Data-driven decision making, AI and the Googlization of health research

Author(s): Tamar Sharon
Published in: Data-Driven Decision Making. Law, Ethics, Robotics, Health, 2020
Publisher: Pavia University Press

Other (5)

Sphere Transgression Watch: van filsofische theorie naar interactieve database

Author(s): Marthe Stevens, Lotje Siffels, Tamar Sharon
Published in: KWALON, 2024
Publisher: KWALON

The Googlization of Pandemic Response: ethical concerns regarding digital contact tracing and big tech

Author(s): Tamar Sharon
Published in: Conditions for technological solutions in a COVID-19 exit strategy, with particular focus on the legal and societal conditions, 2021
Publisher: University of Amsterdam

Sphere transgression watch

Author(s): Marthe Stevens, Tamar Sharon, Bernard van Gastel, Andrew Hoffman, Steven Kraaijeveld, Lotje Siffels
Published in: 2022
Publisher: iHub

Googlisering van gezondheid: Vijandige werelden of meervoudige domeinen?

Author(s): Tamar Sharon
Published in: Wijsgerig Perspectief op Maatschappij en Wetenschap, 2019
Publisher: Filosofie Magazine

Beyond privacy: There are wider issues at stake over Big Tech in medicine.

Author(s): Tamar Sharon
Published in: Open Democracy, 2022
Publisher: Open Democracy

Monographic books (2)

The technical condition: The Entanglement of Technology, Culture, and Society

Author(s): Tsjalling Swierstra, Pieter Lemmens, Tamar Sharon, Pieter Vermaas
Published in: 2022, ISBN 9789089538956
Publisher: Boom

Health Disrupted: On the Loss of Public Values in the Stride Towards Better (Digital) Health

Author(s): Tamar Sharon
Published in: 2020, ISBN 978-90-5732-301-0
Publisher: Centrum voor Ethiek en Gezondheid

Peer reviewed articles (11)

Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe

Author(s): Katharina Kieslich, Amelia Fiske, Marie Gaille, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Marjolein Lanzing, Sébastien Libert, Elisa Lievevrouw, Federica Lucivero, Luca Marelli, Barbara Prainsack, Franziska Schönweitz, Tamar Sharon, Wanda Spahl, Ine Van Hoyweghen, Bettina M. Zimmermann
Published in: Medical Humanities, Issue 49, 2024, Page(s) 511-520, ISSN 1468-215X
Publisher: BMJ Publishing Group
DOI: 10.1136/medhum-2022-012536

Towards a seamful ethics of Covid-19 contact tracing apps?

Author(s): Andrew S. Hoffman, Bart Jacobs, Bernard van Gastel, Hanna Schraffenberger, Tamar Sharon, Berber Pas
Published in: Ethics and Information Technology, Issue 23, 2022, Page(s) 105-115, ISSN 1388-1957
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09559-7

The European health data space: Too big to succeed?

Author(s): Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-Márquez, Seliem El-Sayed, Klaus Hoeyer, Robin van Kessel, Dorota Krekora Zając, Mihaela Matei, Sara Roda, Barbara Prainsack, Irene Schlünder, Mahsa Shabani, Tom Southerington
Published in: Health Policy, Issue 135, 2023, Page(s) 104861, ISSN 0168-8510
Publisher: Elsevier BV
DOI: 10.1016/j.healthpol.2023.104861

COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale

Author(s): Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel, Tamar Sharon
Published in: Journal of Bioethical Inquiry, 2020, ISSN 1176-7529
Publisher: University of Otago Press
DOI: 10.1007/s11673-020-10016-9

From hostile worlds to multiple spheres: towards a normative pragmatics of justice for the Googlization of health

Author(s): Tamar Sharon
Published in: Medicine, Health Care and Philosophy, 2021, ISSN 1386-7423
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s11019-021-10006-7

The ethics of inattention: revitalising civil inattention as a privacy-protecting mechanism in public spaces

Author(s): Tamar Sharon, Bert-Jaap Koops
Published in: Ethics and Information Technology, Issue 23, 2021, Page(s) 331-343, ISSN 1388-1957
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09575-7

Blind-sided by privacy? Digital contact tracing, the Apple/Google API and big tech’s newfound role as global health policy makers

Author(s): Tamar Sharon
Published in: Ethics and Information Technology, 2020, ISSN 1388-1957
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09547-x

Regulating Big Tech expansionism? Sphere transgressions and the limits of Europe’s digital regulatory strategy

Author(s): Tamar Sharon, Raphaël Gellert
Published in: Information, Communication & Society, 2023, Page(s) 1-18, ISSN 1369-118X
Publisher: Routledge
DOI: 10.1080/1369118x.2023.2246526

Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries

Author(s): Federica Lucivero, Luca Marelli, Nora Hangel, Bettina Maria Zimmermann, Barbara Prainsack, Ilaria Galasso, Ruth Horn, Katharina Kieslich, Marjolein Lanzing, Elisa Lievevrouw, Fernandos Ongolly, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Emma Stendahl, Ine Van Hoyweghen
Published in: Critical Public Health, 2021, Page(s) 1-14, ISSN 0958-1596
Publisher: Taylor & Francis
DOI: 10.1080/09581596.2021.1925634

Beyond privacy vs. health: a justification analysis of the contact-tracing apps debate in the Netherlands

Author(s): Lotje Elizabeth Siffels
Published in: Ethics and Information Technology, 2020, ISSN 1388-1957
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09555-x

The participatory turn in health and medicine: The rise of the civic and the need to ‘give back’ in data-intensive medical research

Author(s): Lotje E. Siffels, Tamar Sharon, Andrew S. Hoffman
Published in: Humanities and Social Sciences Communications, Issue 8, 2022, ISSN 2662-9992
Publisher: Nature
DOI: 10.1057/s41599-021-00979-4