The Digital Disruption of Health Research and the Common Good. An Empirical-Philosophical Study

Información del proyecto

Digital Good

Identificador del acuerdo de subvención: 804985

DOI

10.3030/804985

Proyecto cerrado

Fecha de la firma de la CE 13 Diciembre 2018

Fecha de inicio 1 Enero 2019

Fecha de finalización 30 Junio 2024

Financiado con arreglo a

• EXCELLENT SCIENCE - European Research Council (ERC)

Coste total

€ 1 323 473,00

Aportación de la UE

€ 1 323 473,00

Coordinado por

STICHTING RADBOUD UNIVERSITEIT
Netherlands

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Publicaciones

Non-peer reviewed articles (5)

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic

Autores: Bettina M. Zimmermann, Hendrik Wagenaar, Katharina Kieslich, Barbara Prainsack, Gert Meyers, Alena Buyx, Seliem El-Sayed, Amelia Fiske, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Stephanie Johnson, Janneke M.L. Kuiper, Federica Lucivero, Stuart McLennan, Katharina T. Paul, Mirjam Pot, Isabella Radhuber, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Ine Van Hoyweghen, Sula Awad, Théo Bo
Publicado en: SSM - Qualitative Research in Health, Edición 2, 2023, Página(s) 100158, ISSN 2667-3215
Editor: Elsevier
DOI: 10.1016/j.ssmqr.2022.100158

It Takes Two to Techno-Tango: An Analysis of a Close Embrace Between Google/Apple and the EU in Fighting the Pandemic Through Contact Tracing Apps

Autores: Marjolein Lanzing, Elisa Lievevrouw, Lotje Siffels
Publicado en: Science as Culture, Edición 31, 2022, Página(s) 136-148, ISSN 0950-5431
Editor: Free Association Books
DOI: 10.1080/09505431.2021.1999403

Editorial: Data-intensive medicine and healthcare: ethical and social implications in the era of artificial intelligence and automated decision-making

Autores: Aviad Raz, Jusaku Minari, Silke Schicktanz, Tamar Sharon, Gabriele Werner-Felmayer
Publicado en: Frontiers in Genetics, Edición 14, 2023, ISSN 1664-8021
Editor: Frontiers Media
DOI: 10.3389/fgene.2023.1280344

Sphere transgressions: reflecting on the risks of Big Tech expansionism

Autores: Marthe Stevens, Steven R. Kraaijeveld, Tamar Sharon
Publicado en: Information, Communication & Society, 2024, Página(s) 1-13, ISSN 1369-118X
Editor: Routledge
DOI: 10.1080/1369118x.2024.2353782

Sphere transgressions in medical research: tactical engagements with Apple’s ResearchKit

Autores: Marthe Stevens
Publicado en: Information, Communication & Society, 2024, Página(s) 1-18, ISSN 1369-118X
Editor: Routledge
DOI: 10.1080/1369118x.2024.2326163

Book chapters (6)

Ethical and societal aspects of the digital disruption of health

Autores: Tamar Sharon
Publicado en: Zorg Enablers: Technologische Ontwikkelingen in de Gezondheidszorg, 2020, Página(s) 30-31
Editor: BeBright

The entanglement of technology and health

Autores: Tamar Sharon
Publicado en: The Technical Condition, 2022
Editor: Boom

Ethical and societal aspects of the digital disruption of health

Autores: Tamar Sharon
Publicado en: Healthcare Enablers: Technological Developments in Healthcare, 2020
Editor: BeBright

Met E-health van wij-zorg naar ik-zorg: Hoe technologie de betekenis van gezondhied verandert

Autores: Tamar Sharon
Publicado en: Een Gezonde Samenleving: Wetenschappelijke Perspectieven in Tijden van Crisis, 2021
Editor: Prometheus

In/visibilities in Data Studies: Methods, Tools and Interventions

Autores: Fahimi, M., Falk, P., Gray, J.W.Y., Jarke, J., Kinder-Kurlanda, K., Light, E., McGeachey, E., Medina Perea, I., Poechhacker, N., Poirier, L., Röhle, T., Sharon, T., Stevens, M., van Gastel, B., White, Q., and Zakharova, I.
Publicado en: Dialogues in Data Power: Shifting Response-abilities in a Datafied World, 2024, ISBN 1529238303
Editor: Bristol University Press

Data-driven decision making, AI and the Googlization of health research

Autores: Tamar Sharon
Publicado en: Data-Driven Decision Making. Law, Ethics, Robotics, Health, 2020
Editor: Pavia University Press

Other (5)

Sphere Transgression Watch: van filsofische theorie naar interactieve database

Autores: Marthe Stevens, Lotje Siffels, Tamar Sharon
Publicado en: KWALON, 2024
Editor: KWALON

The Googlization of Pandemic Response: ethical concerns regarding digital contact tracing and big tech

Autores: Tamar Sharon
Publicado en: Conditions for technological solutions in a COVID-19 exit strategy, with particular focus on the legal and societal conditions, 2021
Editor: University of Amsterdam

Sphere transgression watch

Autores: Marthe Stevens, Tamar Sharon, Bernard van Gastel, Andrew Hoffman, Steven Kraaijeveld, Lotje Siffels
Publicado en: 2022
Editor: iHub

Googlisering van gezondheid: Vijandige werelden of meervoudige domeinen?

Autores: Tamar Sharon
Publicado en: Wijsgerig Perspectief op Maatschappij en Wetenschap, 2019
Editor: Filosofie Magazine

Beyond privacy: There are wider issues at stake over Big Tech in medicine.

Autores: Tamar Sharon
Publicado en: Open Democracy, 2022
Editor: Open Democracy

Monographic books (2)

The technical condition: The Entanglement of Technology, Culture, and Society

Autores: Tsjalling Swierstra, Pieter Lemmens, Tamar Sharon, Pieter Vermaas
Publicado en: 2022, ISBN 9789089538956
Editor: Boom

Health Disrupted: On the Loss of Public Values in the Stride Towards Better (Digital) Health

Autores: Tamar Sharon
Publicado en: 2020, ISBN 978-90-5732-301-0
Editor: Centrum voor Ethiek en Gezondheid

Peer reviewed articles (11)

Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe

Autores: Katharina Kieslich, Amelia Fiske, Marie Gaille, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Marjolein Lanzing, Sébastien Libert, Elisa Lievevrouw, Federica Lucivero, Luca Marelli, Barbara Prainsack, Franziska Schönweitz, Tamar Sharon, Wanda Spahl, Ine Van Hoyweghen, Bettina M. Zimmermann
Publicado en: Medical Humanities, Edición 49, 2024, Página(s) 511-520, ISSN 1468-215X
Editor: BMJ Publishing Group
DOI: 10.1136/medhum-2022-012536

Towards a seamful ethics of Covid-19 contact tracing apps?

Autores: Andrew S. Hoffman, Bart Jacobs, Bernard van Gastel, Hanna Schraffenberger, Tamar Sharon, Berber Pas
Publicado en: Ethics and Information Technology, Edición 23, 2022, Página(s) 105-115, ISSN 1388-1957
Editor: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09559-7

The European health data space: Too big to succeed?

Autores: Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-Márquez, Seliem El-Sayed, Klaus Hoeyer, Robin van Kessel, Dorota Krekora Zając, Mihaela Matei, Sara Roda, Barbara Prainsack, Irene Schlünder, Mahsa Shabani, Tom Southerington
Publicado en: Health Policy, Edición 135, 2023, Página(s) 104861, ISSN 0168-8510
Editor: Elsevier BV
DOI: 10.1016/j.healthpol.2023.104861

COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale

Autores: Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel, Tamar Sharon
Publicado en: Journal of Bioethical Inquiry, 2020, ISSN 1176-7529
Editor: University of Otago Press
DOI: 10.1007/s11673-020-10016-9

From hostile worlds to multiple spheres: towards a normative pragmatics of justice for the Googlization of health

Autores: Tamar Sharon
Publicado en: Medicine, Health Care and Philosophy, 2021, ISSN 1386-7423
Editor: Kluwer Academic Publishers
DOI: 10.1007/s11019-021-10006-7

The ethics of inattention: revitalising civil inattention as a privacy-protecting mechanism in public spaces

Autores: Tamar Sharon, Bert-Jaap Koops
Publicado en: Ethics and Information Technology, Edición 23, 2021, Página(s) 331-343, ISSN 1388-1957
Editor: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09575-7

Blind-sided by privacy? Digital contact tracing, the Apple/Google API and big tech’s newfound role as global health policy makers

Autores: Tamar Sharon
Publicado en: Ethics and Information Technology, 2020, ISSN 1388-1957
Editor: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09547-x

Regulating Big Tech expansionism? Sphere transgressions and the limits of Europe’s digital regulatory strategy

Autores: Tamar Sharon, Raphaël Gellert
Publicado en: Information, Communication & Society, 2023, Página(s) 1-18, ISSN 1369-118X
Editor: Routledge
DOI: 10.1080/1369118x.2023.2246526

Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries

Autores: Federica Lucivero, Luca Marelli, Nora Hangel, Bettina Maria Zimmermann, Barbara Prainsack, Ilaria Galasso, Ruth Horn, Katharina Kieslich, Marjolein Lanzing, Elisa Lievevrouw, Fernandos Ongolly, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Emma Stendahl, Ine Van Hoyweghen
Publicado en: Critical Public Health, 2021, Página(s) 1-14, ISSN 0958-1596
Editor: Taylor & Francis
DOI: 10.1080/09581596.2021.1925634

Beyond privacy vs. health: a justification analysis of the contact-tracing apps debate in the Netherlands

Autores: Lotje Elizabeth Siffels
Publicado en: Ethics and Information Technology, 2020, ISSN 1388-1957
Editor: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09555-x

The participatory turn in health and medicine: The rise of the civic and the need to ‘give back’ in data-intensive medical research

Autores: Lotje E. Siffels, Tamar Sharon, Andrew S. Hoffman
Publicado en: Humanities and Social Sciences Communications, Edición 8, 2022, ISSN 2662-9992
Editor: Nature
DOI: 10.1057/s41599-021-00979-4