The Digital Disruption of Health Research and the Common Good. An Empirical-Philosophical Study

Informazioni relative al progetto

Digital Good

ID dell’accordo di sovvenzione: 804985

DOI

10.3030/804985

Progetto chiuso

Data della firma CE 13 Dicembre 2018

Data di avvio 1 Gennaio 2019

Data di completamento 30 Giugno 2024

Finanziato da

• EXCELLENT SCIENCE - European Research Council (ERC)

Costo totale

€ 1 323 473,00

Contributo UE

€ 1 323 473,00

Coordinato da

STICHTING RADBOUD UNIVERSITEIT
Netherlands

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Pubblicazioni

Non-peer reviewed articles (5)

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic

Autori: Bettina M. Zimmermann, Hendrik Wagenaar, Katharina Kieslich, Barbara Prainsack, Gert Meyers, Alena Buyx, Seliem El-Sayed, Amelia Fiske, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Stephanie Johnson, Janneke M.L. Kuiper, Federica Lucivero, Stuart McLennan, Katharina T. Paul, Mirjam Pot, Isabella Radhuber, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Ine Van Hoyweghen, Sula Awad, Théo Bo
Pubblicato in: SSM - Qualitative Research in Health, Numero 2, 2023, Pagina/e 100158, ISSN 2667-3215
Editore: Elsevier
DOI: 10.1016/j.ssmqr.2022.100158

It Takes Two to Techno-Tango: An Analysis of a Close Embrace Between Google/Apple and the EU in Fighting the Pandemic Through Contact Tracing Apps

Autori: Marjolein Lanzing, Elisa Lievevrouw, Lotje Siffels
Pubblicato in: Science as Culture, Numero 31, 2022, Pagina/e 136-148, ISSN 0950-5431
Editore: Free Association Books
DOI: 10.1080/09505431.2021.1999403

Editorial: Data-intensive medicine and healthcare: ethical and social implications in the era of artificial intelligence and automated decision-making

Autori: Aviad Raz, Jusaku Minari, Silke Schicktanz, Tamar Sharon, Gabriele Werner-Felmayer
Pubblicato in: Frontiers in Genetics, Numero 14, 2023, ISSN 1664-8021
Editore: Frontiers Media
DOI: 10.3389/fgene.2023.1280344

Sphere transgressions: reflecting on the risks of Big Tech expansionism

Autori: Marthe Stevens, Steven R. Kraaijeveld, Tamar Sharon
Pubblicato in: Information, Communication & Society, 2024, Pagina/e 1-13, ISSN 1369-118X
Editore: Routledge
DOI: 10.1080/1369118x.2024.2353782

Sphere transgressions in medical research: tactical engagements with Apple’s ResearchKit

Autori: Marthe Stevens
Pubblicato in: Information, Communication & Society, 2024, Pagina/e 1-18, ISSN 1369-118X
Editore: Routledge
DOI: 10.1080/1369118x.2024.2326163

Book chapters (6)

Ethical and societal aspects of the digital disruption of health

Autori: Tamar Sharon
Pubblicato in: Zorg Enablers: Technologische Ontwikkelingen in de Gezondheidszorg, 2020, Pagina/e 30-31
Editore: BeBright

The entanglement of technology and health

Autori: Tamar Sharon
Pubblicato in: The Technical Condition, 2022
Editore: Boom

Ethical and societal aspects of the digital disruption of health

Autori: Tamar Sharon
Pubblicato in: Healthcare Enablers: Technological Developments in Healthcare, 2020
Editore: BeBright

Met E-health van wij-zorg naar ik-zorg: Hoe technologie de betekenis van gezondhied verandert

Autori: Tamar Sharon
Pubblicato in: Een Gezonde Samenleving: Wetenschappelijke Perspectieven in Tijden van Crisis, 2021
Editore: Prometheus

In/visibilities in Data Studies: Methods, Tools and Interventions

Autori: Fahimi, M., Falk, P., Gray, J.W.Y., Jarke, J., Kinder-Kurlanda, K., Light, E., McGeachey, E., Medina Perea, I., Poechhacker, N., Poirier, L., Röhle, T., Sharon, T., Stevens, M., van Gastel, B., White, Q., and Zakharova, I.
Pubblicato in: Dialogues in Data Power: Shifting Response-abilities in a Datafied World, 2024, ISBN 1529238303
Editore: Bristol University Press

Data-driven decision making, AI and the Googlization of health research

Autori: Tamar Sharon
Pubblicato in: Data-Driven Decision Making. Law, Ethics, Robotics, Health, 2020
Editore: Pavia University Press

Other (5)

Sphere Transgression Watch: van filsofische theorie naar interactieve database

Autori: Marthe Stevens, Lotje Siffels, Tamar Sharon
Pubblicato in: KWALON, 2024
Editore: KWALON

The Googlization of Pandemic Response: ethical concerns regarding digital contact tracing and big tech

Autori: Tamar Sharon
Pubblicato in: Conditions for technological solutions in a COVID-19 exit strategy, with particular focus on the legal and societal conditions, 2021
Editore: University of Amsterdam

Sphere transgression watch

Autori: Marthe Stevens, Tamar Sharon, Bernard van Gastel, Andrew Hoffman, Steven Kraaijeveld, Lotje Siffels
Pubblicato in: 2022
Editore: iHub

Googlisering van gezondheid: Vijandige werelden of meervoudige domeinen?

Autori: Tamar Sharon
Pubblicato in: Wijsgerig Perspectief op Maatschappij en Wetenschap, 2019
Editore: Filosofie Magazine

Beyond privacy: There are wider issues at stake over Big Tech in medicine.

Autori: Tamar Sharon
Pubblicato in: Open Democracy, 2022
Editore: Open Democracy

Monographic books (2)

The technical condition: The Entanglement of Technology, Culture, and Society

Autori: Tsjalling Swierstra, Pieter Lemmens, Tamar Sharon, Pieter Vermaas
Pubblicato in: 2022, ISBN 9789089538956
Editore: Boom

Health Disrupted: On the Loss of Public Values in the Stride Towards Better (Digital) Health

Autori: Tamar Sharon
Pubblicato in: 2020, ISBN 978-90-5732-301-0
Editore: Centrum voor Ethiek en Gezondheid

Peer reviewed articles (11)

Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe

Autori: Katharina Kieslich, Amelia Fiske, Marie Gaille, Ilaria Galasso, Susi Geiger, Nora Hangel, Ruth Horn, Marjolein Lanzing, Sébastien Libert, Elisa Lievevrouw, Federica Lucivero, Luca Marelli, Barbara Prainsack, Franziska Schönweitz, Tamar Sharon, Wanda Spahl, Ine Van Hoyweghen, Bettina M. Zimmermann
Pubblicato in: Medical Humanities, Numero 49, 2024, Pagina/e 511-520, ISSN 1468-215X
Editore: BMJ Publishing Group
DOI: 10.1136/medhum-2022-012536

Towards a seamful ethics of Covid-19 contact tracing apps?

Autori: Andrew S. Hoffman, Bart Jacobs, Bernard van Gastel, Hanna Schraffenberger, Tamar Sharon, Berber Pas
Pubblicato in: Ethics and Information Technology, Numero 23, 2022, Pagina/e 105-115, ISSN 1388-1957
Editore: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09559-7

The European health data space: Too big to succeed?

Autori: Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-Márquez, Seliem El-Sayed, Klaus Hoeyer, Robin van Kessel, Dorota Krekora Zając, Mihaela Matei, Sara Roda, Barbara Prainsack, Irene Schlünder, Mahsa Shabani, Tom Southerington
Pubblicato in: Health Policy, Numero 135, 2023, Pagina/e 104861, ISSN 0168-8510
Editore: Elsevier BV
DOI: 10.1016/j.healthpol.2023.104861

COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale

Autori: Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel, Tamar Sharon
Pubblicato in: Journal of Bioethical Inquiry, 2020, ISSN 1176-7529
Editore: University of Otago Press
DOI: 10.1007/s11673-020-10016-9

From hostile worlds to multiple spheres: towards a normative pragmatics of justice for the Googlization of health

Autori: Tamar Sharon
Pubblicato in: Medicine, Health Care and Philosophy, 2021, ISSN 1386-7423
Editore: Kluwer Academic Publishers
DOI: 10.1007/s11019-021-10006-7

The ethics of inattention: revitalising civil inattention as a privacy-protecting mechanism in public spaces

Autori: Tamar Sharon, Bert-Jaap Koops
Pubblicato in: Ethics and Information Technology, Numero 23, 2021, Pagina/e 331-343, ISSN 1388-1957
Editore: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09575-7

Blind-sided by privacy? Digital contact tracing, the Apple/Google API and big tech’s newfound role as global health policy makers

Autori: Tamar Sharon
Pubblicato in: Ethics and Information Technology, 2020, ISSN 1388-1957
Editore: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09547-x

Regulating Big Tech expansionism? Sphere transgressions and the limits of Europe’s digital regulatory strategy

Autori: Tamar Sharon, Raphaël Gellert
Pubblicato in: Information, Communication & Society, 2023, Pagina/e 1-18, ISSN 1369-118X
Editore: Routledge
DOI: 10.1080/1369118x.2023.2246526

Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries

Autori: Federica Lucivero, Luca Marelli, Nora Hangel, Bettina Maria Zimmermann, Barbara Prainsack, Ilaria Galasso, Ruth Horn, Katharina Kieslich, Marjolein Lanzing, Elisa Lievevrouw, Fernandos Ongolly, Gabrielle Samuel, Tamar Sharon, Lotje Siffels, Emma Stendahl, Ine Van Hoyweghen
Pubblicato in: Critical Public Health, 2021, Pagina/e 1-14, ISSN 0958-1596
Editore: Taylor & Francis
DOI: 10.1080/09581596.2021.1925634

Beyond privacy vs. health: a justification analysis of the contact-tracing apps debate in the Netherlands

Autori: Lotje Elizabeth Siffels
Pubblicato in: Ethics and Information Technology, 2020, ISSN 1388-1957
Editore: Kluwer Academic Publishers
DOI: 10.1007/s10676-020-09555-x

The participatory turn in health and medicine: The rise of the civic and the need to ‘give back’ in data-intensive medical research

Autori: Lotje E. Siffels, Tamar Sharon, Andrew S. Hoffman
Pubblicato in: Humanities and Social Sciences Communications, Numero 8, 2022, ISSN 2662-9992
Editore: Nature
DOI: 10.1057/s41599-021-00979-4