Patient-centred pathways of early palliative care, supportive ecosystems and appraisal standard

Informations projet

INADVANCE

N° de convention de subvention: 825750

DOI

10.3030/825750

Projet clôturé

Date de signature de la CE 4 Decembre 2018

Date de début 1 Janvier 2019

Date de fin 30 Juin 2023

Financé au titre de

• SOCIETAL CHALLENGES - Health, demographic change and well-being

Coût total

€ 4 017 970,00

Contribution de l’UE

€ 4 017 970,00

Coordonné par

UNIVERSITAT DE VALENCIA
Spain

CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.

Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .

Livrables

Documents, reports (17)

PC needs analysis methodological guidelines

A review and methodological guidelines for conducting micro, macro, and meso level analysis for non-cancer PC needs analysis

Recommendations for technologies use

Recommendations on how to best apply technologies that maximise user acceptance and appropriate care among older people with complex chronic conditions

User feedback and usability report
Framework for multi-level equitable PC needs analysis

Initial framework for multi-level equitable PC needs analysis, integrating intermediate outputs from tasks.

Report on individual and contextual factors

Report on individual and contextual factors

Adherence measurement report
Taxonomy of tools to identify chronic patients in need of PC

This deliverable will include both: firstly, an analysis of the State-of-the-Art on predictive models, risk stratification models and/or clinical decision rules for identifying patients who are at risk of any of these situations: mortality, EoL and need of PC, and secondly, a list of relevant variables to be used during the development of the predictive tools.

Report on status of posting results

Results of the trials will be registered within 12 months of the completion of the study

Final Trial analysis report
Refined INADVANCE interventions
Trial evaluation framework
Dissemination and Communication Plan

Dissemination and Communication Plan.

Report describing the initial version of INADVANCE interventions
A review guide for equity, cultural variation and individualization driven use of information resources for self-determination in non-cancer palliative care

A review guide for equity cultural variation and individualization driven use of information resources for selfdetermination in noncancer palliative care

Policy Recommendations
Empathy and resilience experiential sessions
Guidelines for the implementation of evidence-based PC interventions

Guidelines for the implementation of evidencebased PC interventions

Other (7)

Functional dashboard
Final dashboard

Final dashboard.

Mobile Health Solution for Patient Self-Management Support and Education

Mobile Health Solution for Patient SelfManagement Support and Education

Project website and social media channels

Project website and social media channels.

Mock up dashboard

Mock up dashboard, including list of agreed KPIs.

e-coaching platform for Family Psycho-social support and training

ecoaching platform for Family Psychosocial support and training

Virtual Patient case pool for patients' and families' self-management

Virtual Patient case pool for patients’ and families’ self-management.

Websites, patent fillings, videos etc. (1)

Website with resources to support care at home

HULAFE develops a specific website gathering different types of resources to support patients and their relativescaregivers to support care at home This website is planned to be maintained once the project is finished

Open Research Data Pilot (1)

Data Management Plan

Description of the data management life cycle for the data collected, processed and/or generated along the project.

Publications

Conference proceedings (8)

Expert opinion on predictive models to early identify older patients in need of palliative care: A Delphi study.

Auteurs: Ascensión Doñate-Martínez, S. Giménez, M. E. Gas, M. J. Caballero, B. Valdivieso, J. Garcés
Publié dans: International Journal of Integrated Care, Numéro Vol Numb S1, 2021, ISSN 1568-4156
Éditeur: Ubiquity Press
DOI: 10.5334/ijic.icic20580

Needs for timely palliative care in older patients with non-manlignant diseases: a multicentre qualitative study

Auteurs: Yu Fu, Anne Mason, Gordon Linklater, Laura Llop, Ascensión Doñate-Martínez, Jorge Garcés, Henrique Silva, Adriano Fernandes, Sofia Reppou, Panagiotis Bamidis, Soledad Giménez, Iván Castro, Michael I. Bennett
Publié dans: Palliative Care and Social Practice, Numéro v.16, abstract ID 49, 2022, ISSN 2632-3524
Éditeur: Sage Publications
DOI: 10.1177/26323524221119941

Patients with non-oncological chronic conditions: Improving end-of-life care through integrated care and early palliative care provision

Auteurs: Ascensión Doñate-Martínez, Jorge Garcés, Soledad Giménez, Bernardo Valdivieso, Elisa Soriano, Lucas Donat, Panagiotis Bamidis, Vania Dimitrova, Adriano Fernandes, Gordon Linklater, Jim Finlayson
Publié dans: International Journal of Integrated Care, Numéro Volume 19 issue S1, 2019, Page(s) 512, ISSN 1568-4156
Éditeur: Ubiquity Press
DOI: 10.5334/ijic.s3512

Video Segmentation and Characterisation to Support Learning

Auteurs: Mohammed, A., Dimitrova, V.
Publié dans: Educating for a New Future: Making Sense of Technology-Enhanced Learning Adoption, Numéro Lecture Notes in Computer Science, vol 13450, 2022, ISBN 978-3-031-16290-9
Éditeur: Springer Nature
DOI: 10.1007/978-3-031-16290-9_17

Generating Narratives of Video Segments to Support Learning

Auteurs: Abrar Mohammed
Publié dans: Artificial Intelligence in Education. Posters and Late Breaking Results, Workshops and Tutorials, Industry and Innovation Tracks, Practitioners' and Doctoral Consortium., Numéro Lecture Notes in Computer Science, Vol 13356, 2022, ISBN 978-3-031-11647-6
Éditeur: Springer Nature
DOI: 10.1007/978-3-031-11647-6_4

The Aleph: A Multi-Purpose Clinical Decision Support Platform for Palliative Care Screening

Auteurs: Ascensión Doñate-Martínez, Vicent Blanes-Selva, Gordon Linklater, Sabina Asensio-Cuesta, Felipe Pereira Mesquita, Jorge Garcés, Ángel Sánchez-García, Juan M. García-Gómez
Publié dans: International Journal of Integrated Care, Numéro 22(407), 2022, ISSN 1568-4156
Éditeur: Ubiquity Press
DOI: 10.5334/ijic.icic22372

Lack of integration, staff burden or time constraints as barriers to the implementation of an early palliative care intervention

Auteurs: Ascensión Doñate-Martínez, Raquel Valcárcel, Mª Eugenia Gas, Anne Mason, Gordon Linklater, Adriano Fernandes, Mariana Camacho, Sofia Reppou, Christina Plomariti, Nhu Tram, Jorge Garcés
Publié dans: International Journal of Integrated Care, Numéro 22(399), 2022, ISSN 1568-4156
Éditeur: Ubiquity Press
DOI: 10.5334/ijic.icic22205

Early Palliative Care among Older People with Non-malignant Chronic Conditions: A Randomized Controlled Trial

Auteurs: A. Doñate-Martínez, G. Linklater, J. Finlayson, S. Reppou, P. Bamidis, M. Camacho, A. Fernandes, M.S. Giménez, M.E. Gas, J. Yang-Huang, H. Raat, J. Garcés-Ferrer
Publié dans: Palliative Medicine, Numéro Volume 37, Numéro 1_suppl: EAPC Congress 2023, 2023, Page(s) FC 14.1, ISSN 0269-2163
Éditeur: Sage Publications
DOI: 10.1177/02692163231172891

Peer reviewed articles (11)

The Experiences and Views on Palliative Care of Older People with Multimorbidities, Their Family Caregivers and Professionals in a Spanish Hospital.

Auteurs: Laura Llop-Medina; Francisco Ródenas-Rigla; Jorge Garcés-Ferrer; Ascensión Doñate-Martínez
Publié dans: Healthcare, Numéro 10(12), 2022, Page(s) 2489, ISSN 2227-9032
Éditeur: MDPI
DOI: 10.3390/healthcare10122489

Barriers and facilitators for an effective palliative care communication with older people: A systematic review

Auteurs: Michela, Saretta; Ascensión, Doñate-Martínez; Tamara, Alhambra-Borrás
Publié dans: Patient Education and Counseling, Numéro 105(8), 2022, Page(s) 2671-2682, ISSN 0346-251X
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.pec.2022.04.003

Palliative care and complex chronic conditions since the perspective of healthcare professionals

Auteurs: Doñate-Martínez A, Llop L, Garcés J.
Publié dans: European Journal of Public Health, Numéro Vol 30. Supplement 5, 2021, Page(s) ckaa166--1095, ISSN 1101-1262
Éditeur: Oxford University Press
DOI: 10.1093/eurpub/ckaa166.1095

Complementary frailty and mortality prediction models on older patients as a tool for assessing palliative care needs

Auteurs: Vicent Blanes-Selva, Ascensión Doñate-Martínez, Gordon Linklater, Juan M García-Gómez
Publié dans: Health Informatics Journal, Numéro 28(2), 2022, ISSN 1460-4582
Éditeur: SAGE Publications
DOI: 10.1177/14604582221092592

Evidence-based management approaches for patients with severe chronic obstructive pulmonary disease (COPD): A practice review

Auteurs: Yu Fu; Emma J Chapman; Alison C Boland; Michael I Bennett
Publié dans: Palliative Medicine, Numéro 36(5), 2022, Page(s) 770-782, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163221079697

Design of 1-year mortality forecast at hospital admission: A machine learning approach

Auteurs: Blanes-Selva V, Ruiz-García V, Tortajada S, Benedí JM, Valdivieso B, García-Gómez JM.
Publié dans: Health Informatics Journal, Numéro Jan-Mar 2021, 2021, ISSN 1460-4582
Éditeur: SAGE Publications
DOI: 10.1177/1460458220987580

User-centred Design of a Clinical Decision Support System for Palliative Care: Insights from Healthcare Professionals

Auteurs: Vicent Blanes-Selva; Sabina Asensio-Cuesta; Ascensión Doñate-Martínez; Felipe Pereira Mesquita; Juan M. García-Gómez
Publié dans: Digital Health, Numéro 9, 2023, ISSN 2055-2076
Éditeur: Sage Publications
DOI: 10.1177/20552076221150735

Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals

Auteurs: Laura Llop-Medina,Yu Fu, Jorge Garcés-Ferrer, Ascensión Doñate-Martínez
Publié dans: International Journal of Environmental Research and Public Health, Numéro 19(6), 2022, Page(s) 3195, ISSN 1660-4601
Éditeur: MDPI
DOI: 10.3390/ijerph19063195

Palliative Care Needs and Integration of Palliative Care Support in COPD: A Qualitative Study

Auteurs: Yu Fu; Anne Mason; Alison Boland; Gordon Linklater; Vania Dimitrova; Ascensión Doñate-Martínez; Michael I. Bennett
Publié dans: Chest, Numéro Jun;159(6), 2021, Page(s) 2222-2232, ISSN 0012-3692
Éditeur: American College of Chest Physicians
DOI: 10.1016/j.chest.2020.12.055

Evaluation design of the patient-centred pathways of early palliative care, supportive ecosystems and appraisal standard (InAdvance): a randomised controlled trial

Auteurs: Junwen Yang-Huang, Ascensión Doñate-Martínez, Jorge Garcés, Maria Soledad Gimenez Campos, Raquel Valcarcel Romero, Maria-Eugenia Gas López, Adriano Fernandes, Mariana Camacho, Ana Gama, Sofia Reppou, Panagiotis D. Bamidis, Gordon Linklater, Frances Hines, Jude Eze, Hein Raat
Publié dans: BMC Geriatrics, Numéro 22, 2022, ISSN 1471-2318
Éditeur: BioMed Central
DOI: 10.1186/s12877-022-03508-3

Responsive and Minimalist App Based on Explainable AI to Assess Palliative Care Needs during Bedside Consultations on Older Patients

Auteurs: Vicent Blanes-Selva; Ascensión Doñate-Martínez; Gordon Linklater; Jorge Garcés-Ferrer; Juan M. García-Gómez
Publié dans: Volume 13, Numéro Numéro 17, 2021, ISSN 2071-1050
Éditeur: MDPI Open Access Publishing
DOI: 10.3390/su13179844

Monographic books (1)

FROM ELDERLY COACHING SOLUTIONS TO PALLIATIVE CARE ECOSYSTEM AUGMENTATION VIA PATIENT-CENTRED TECHNOLOGIES AND TRAINING

Auteurs: Panagiotis D Bamidis, Evdokimos I Konstantinidis, SofiaReppou, Georgios Ntakakis, Gareth Frith, Suzanne Bickerdike, Trudie E Roberts
Publié dans: General practice challenges, 2019, Page(s) 10-24, ISBN 978-960-243-709-4
Éditeur: Lab of Medical Physics, School of Medicine

Thesis and dissertations (1)

Clinical Decision Support Systems for Palliative Care Referral: Design and Evaluation of Frailty and Mortality Predictive Models

Auteurs: Blanes Selva, V.
Publié dans: 2022
Éditeur: Universitat Politècnica de València
DOI: 10.4995/thesis/10251/190993

Droits de propriété intellectuelle

Other (3)

Módulo de predicción de mortalidad y fragilidad para cuidados paliativos

Numéro de demande/publication: S 106-2022
Date: 2021-10-13
Demandeur(s): UNIVERSITAT DE VALENCIA

Módulo de predicción de mortalidad y fragilidad para cuidados paliativos

Numéro de demande/publication: S 106-2022
Date: 2021-10-13
Demandeur(s): FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA

Módulo de predicción de mortalidad y fragilidad para cuidados paliativos

Numéro de demande/publication: S 106-2022
Date: 2021-10-13
Demandeur(s): UNIVERSITAT POLITECNICA DE VALENCIA