Patient-centred pathways of early palliative care, supportive ecosystems and appraisal standard

Informacje na temat projektu

INADVANCE

Identyfikator umowy o grant: 825750

DOI

10.3030/825750

Projekt został zamknięty

Data podpisania przez KE 4 Grudnia 2018

Data rozpoczęcia 1 Stycznia 2019

Data zakończenia 30 Czerwca 2023

Finansowanie w ramach

• SOCIETAL CHALLENGES - Health, demographic change and well-being

Koszt całkowity

€ 4 017 970,00

Wkład UE

€ 4 017 970,00

Koordynowany przez

UNIVERSITAT DE VALENCIA
Spain

CORDIS oferuje możliwość skorzystania z odnośników do publicznie dostępnych publikacji i rezultatów projektów realizowanych w ramach programów ramowych HORYZONT.

Odnośniki do rezultatów i publikacji związanych z poszczególnymi projektami 7PR, a także odnośniki do niektórych konkretnych kategorii wyników, takich jak zbiory danych i oprogramowanie, są dynamicznie pobierane z systemu OpenAIRE .

Rezultaty

Documents, reports (17)

PC needs analysis methodological guidelines

A review and methodological guidelines for conducting micro, macro, and meso level analysis for non-cancer PC needs analysis

Recommendations for technologies use

Recommendations on how to best apply technologies that maximise user acceptance and appropriate care among older people with complex chronic conditions

User feedback and usability report
Framework for multi-level equitable PC needs analysis

Initial framework for multi-level equitable PC needs analysis, integrating intermediate outputs from tasks.

Report on individual and contextual factors

Report on individual and contextual factors

Adherence measurement report
Taxonomy of tools to identify chronic patients in need of PC

This deliverable will include both: firstly, an analysis of the State-of-the-Art on predictive models, risk stratification models and/or clinical decision rules for identifying patients who are at risk of any of these situations: mortality, EoL and need of PC, and secondly, a list of relevant variables to be used during the development of the predictive tools.

Report on status of posting results

Results of the trials will be registered within 12 months of the completion of the study

Final Trial analysis report
Refined INADVANCE interventions
Trial evaluation framework
Dissemination and Communication Plan

Dissemination and Communication Plan.

Report describing the initial version of INADVANCE interventions
A review guide for equity, cultural variation and individualization driven use of information resources for self-determination in non-cancer palliative care

A review guide for equity cultural variation and individualization driven use of information resources for selfdetermination in noncancer palliative care

Policy Recommendations
Empathy and resilience experiential sessions
Guidelines for the implementation of evidence-based PC interventions

Guidelines for the implementation of evidencebased PC interventions

Other (7)

Functional dashboard
Final dashboard

Final dashboard.

Mobile Health Solution for Patient Self-Management Support and Education

Mobile Health Solution for Patient SelfManagement Support and Education

Project website and social media channels

Project website and social media channels.

Mock up dashboard

Mock up dashboard, including list of agreed KPIs.

e-coaching platform for Family Psycho-social support and training

ecoaching platform for Family Psychosocial support and training

Virtual Patient case pool for patients' and families' self-management

Virtual Patient case pool for patients’ and families’ self-management.

Websites, patent fillings, videos etc. (1)

Website with resources to support care at home

HULAFE develops a specific website gathering different types of resources to support patients and their relativescaregivers to support care at home This website is planned to be maintained once the project is finished

Open Research Data Pilot (1)

Data Management Plan

Description of the data management life cycle for the data collected, processed and/or generated along the project.

Publikacje

Conference proceedings (8)

Expert opinion on predictive models to early identify older patients in need of palliative care: A Delphi study.

Autorzy: Ascensión Doñate-Martínez, S. Giménez, M. E. Gas, M. J. Caballero, B. Valdivieso, J. Garcés
Opublikowane w: International Journal of Integrated Care, Numer Vol Numb S1, 2021, ISSN 1568-4156
Wydawca: Ubiquity Press
DOI: 10.5334/ijic.icic20580

Needs for timely palliative care in older patients with non-manlignant diseases: a multicentre qualitative study

Autorzy: Yu Fu, Anne Mason, Gordon Linklater, Laura Llop, Ascensión Doñate-Martínez, Jorge Garcés, Henrique Silva, Adriano Fernandes, Sofia Reppou, Panagiotis Bamidis, Soledad Giménez, Iván Castro, Michael I. Bennett
Opublikowane w: Palliative Care and Social Practice, Numer v.16, abstract ID 49, 2022, ISSN 2632-3524
Wydawca: Sage Publications
DOI: 10.1177/26323524221119941

Patients with non-oncological chronic conditions: Improving end-of-life care through integrated care and early palliative care provision

Autorzy: Ascensión Doñate-Martínez, Jorge Garcés, Soledad Giménez, Bernardo Valdivieso, Elisa Soriano, Lucas Donat, Panagiotis Bamidis, Vania Dimitrova, Adriano Fernandes, Gordon Linklater, Jim Finlayson
Opublikowane w: International Journal of Integrated Care, Numer Volume 19 issue S1, 2019, Strona(/y) 512, ISSN 1568-4156
Wydawca: Ubiquity Press
DOI: 10.5334/ijic.s3512

Video Segmentation and Characterisation to Support Learning

Autorzy: Mohammed, A., Dimitrova, V.
Opublikowane w: Educating for a New Future: Making Sense of Technology-Enhanced Learning Adoption, Numer Lecture Notes in Computer Science, vol 13450, 2022, ISBN 978-3-031-16290-9
Wydawca: Springer Nature
DOI: 10.1007/978-3-031-16290-9_17

Generating Narratives of Video Segments to Support Learning

Autorzy: Abrar Mohammed
Opublikowane w: Artificial Intelligence in Education. Posters and Late Breaking Results, Workshops and Tutorials, Industry and Innovation Tracks, Practitioners' and Doctoral Consortium., Numer Lecture Notes in Computer Science, Vol 13356, 2022, ISBN 978-3-031-11647-6
Wydawca: Springer Nature
DOI: 10.1007/978-3-031-11647-6_4

The Aleph: A Multi-Purpose Clinical Decision Support Platform for Palliative Care Screening

Autorzy: Ascensión Doñate-Martínez, Vicent Blanes-Selva, Gordon Linklater, Sabina Asensio-Cuesta, Felipe Pereira Mesquita, Jorge Garcés, Ángel Sánchez-García, Juan M. García-Gómez
Opublikowane w: International Journal of Integrated Care, Numer 22(407), 2022, ISSN 1568-4156
Wydawca: Ubiquity Press
DOI: 10.5334/ijic.icic22372

Lack of integration, staff burden or time constraints as barriers to the implementation of an early palliative care intervention

Autorzy: Ascensión Doñate-Martínez, Raquel Valcárcel, Mª Eugenia Gas, Anne Mason, Gordon Linklater, Adriano Fernandes, Mariana Camacho, Sofia Reppou, Christina Plomariti, Nhu Tram, Jorge Garcés
Opublikowane w: International Journal of Integrated Care, Numer 22(399), 2022, ISSN 1568-4156
Wydawca: Ubiquity Press
DOI: 10.5334/ijic.icic22205

Early Palliative Care among Older People with Non-malignant Chronic Conditions: A Randomized Controlled Trial

Autorzy: A. Doñate-Martínez, G. Linklater, J. Finlayson, S. Reppou, P. Bamidis, M. Camacho, A. Fernandes, M.S. Giménez, M.E. Gas, J. Yang-Huang, H. Raat, J. Garcés-Ferrer
Opublikowane w: Palliative Medicine, Numer Volume 37, Numer 1_suppl: EAPC Congress 2023, 2023, Strona(/y) FC 14.1, ISSN 0269-2163
Wydawca: Sage Publications
DOI: 10.1177/02692163231172891

Peer reviewed articles (11)

The Experiences and Views on Palliative Care of Older People with Multimorbidities, Their Family Caregivers and Professionals in a Spanish Hospital.

Autorzy: Laura Llop-Medina; Francisco Ródenas-Rigla; Jorge Garcés-Ferrer; Ascensión Doñate-Martínez
Opublikowane w: Healthcare, Numer 10(12), 2022, Strona(/y) 2489, ISSN 2227-9032
Wydawca: MDPI
DOI: 10.3390/healthcare10122489

Barriers and facilitators for an effective palliative care communication with older people: A systematic review

Autorzy: Michela, Saretta; Ascensión, Doñate-Martínez; Tamara, Alhambra-Borrás
Opublikowane w: Patient Education and Counseling, Numer 105(8), 2022, Strona(/y) 2671-2682, ISSN 0346-251X
Wydawca: Pergamon Press Ltd.
DOI: 10.1016/j.pec.2022.04.003

Palliative care and complex chronic conditions since the perspective of healthcare professionals

Autorzy: Doñate-Martínez A, Llop L, Garcés J.
Opublikowane w: European Journal of Public Health, Numer Vol 30. Supplement 5, 2021, Strona(/y) ckaa166--1095, ISSN 1101-1262
Wydawca: Oxford University Press
DOI: 10.1093/eurpub/ckaa166.1095

Complementary frailty and mortality prediction models on older patients as a tool for assessing palliative care needs

Autorzy: Vicent Blanes-Selva, Ascensión Doñate-Martínez, Gordon Linklater, Juan M García-Gómez
Opublikowane w: Health Informatics Journal, Numer 28(2), 2022, ISSN 1460-4582
Wydawca: SAGE Publications
DOI: 10.1177/14604582221092592

Evidence-based management approaches for patients with severe chronic obstructive pulmonary disease (COPD): A practice review

Autorzy: Yu Fu; Emma J Chapman; Alison C Boland; Michael I Bennett
Opublikowane w: Palliative Medicine, Numer 36(5), 2022, Strona(/y) 770-782, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163221079697

Design of 1-year mortality forecast at hospital admission: A machine learning approach

Autorzy: Blanes-Selva V, Ruiz-García V, Tortajada S, Benedí JM, Valdivieso B, García-Gómez JM.
Opublikowane w: Health Informatics Journal, Numer Jan-Mar 2021, 2021, ISSN 1460-4582
Wydawca: SAGE Publications
DOI: 10.1177/1460458220987580

User-centred Design of a Clinical Decision Support System for Palliative Care: Insights from Healthcare Professionals

Autorzy: Vicent Blanes-Selva; Sabina Asensio-Cuesta; Ascensión Doñate-Martínez; Felipe Pereira Mesquita; Juan M. García-Gómez
Opublikowane w: Digital Health, Numer 9, 2023, ISSN 2055-2076
Wydawca: Sage Publications
DOI: 10.1177/20552076221150735

Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals

Autorzy: Laura Llop-Medina,Yu Fu, Jorge Garcés-Ferrer, Ascensión Doñate-Martínez
Opublikowane w: International Journal of Environmental Research and Public Health, Numer 19(6), 2022, Strona(/y) 3195, ISSN 1660-4601
Wydawca: MDPI
DOI: 10.3390/ijerph19063195

Palliative Care Needs and Integration of Palliative Care Support in COPD: A Qualitative Study

Autorzy: Yu Fu; Anne Mason; Alison Boland; Gordon Linklater; Vania Dimitrova; Ascensión Doñate-Martínez; Michael I. Bennett
Opublikowane w: Chest, Numer Jun;159(6), 2021, Strona(/y) 2222-2232, ISSN 0012-3692
Wydawca: American College of Chest Physicians
DOI: 10.1016/j.chest.2020.12.055

Evaluation design of the patient-centred pathways of early palliative care, supportive ecosystems and appraisal standard (InAdvance): a randomised controlled trial

Autorzy: Junwen Yang-Huang, Ascensión Doñate-Martínez, Jorge Garcés, Maria Soledad Gimenez Campos, Raquel Valcarcel Romero, Maria-Eugenia Gas López, Adriano Fernandes, Mariana Camacho, Ana Gama, Sofia Reppou, Panagiotis D. Bamidis, Gordon Linklater, Frances Hines, Jude Eze, Hein Raat
Opublikowane w: BMC Geriatrics, Numer 22, 2022, ISSN 1471-2318
Wydawca: BioMed Central
DOI: 10.1186/s12877-022-03508-3

Responsive and Minimalist App Based on Explainable AI to Assess Palliative Care Needs during Bedside Consultations on Older Patients

Autorzy: Vicent Blanes-Selva; Ascensión Doñate-Martínez; Gordon Linklater; Jorge Garcés-Ferrer; Juan M. García-Gómez
Opublikowane w: Volume 13, Numer Numer 17, 2021, ISSN 2071-1050
Wydawca: MDPI Open Access Publishing
DOI: 10.3390/su13179844

Monographic books (1)

FROM ELDERLY COACHING SOLUTIONS TO PALLIATIVE CARE ECOSYSTEM AUGMENTATION VIA PATIENT-CENTRED TECHNOLOGIES AND TRAINING

Autorzy: Panagiotis D Bamidis, Evdokimos I Konstantinidis, SofiaReppou, Georgios Ntakakis, Gareth Frith, Suzanne Bickerdike, Trudie E Roberts
Opublikowane w: General practice challenges, 2019, Strona(/y) 10-24, ISBN 978-960-243-709-4
Wydawca: Lab of Medical Physics, School of Medicine

Thesis and dissertations (1)

Clinical Decision Support Systems for Palliative Care Referral: Design and Evaluation of Frailty and Mortality Predictive Models

Autorzy: Blanes Selva, V.
Opublikowane w: 2022
Wydawca: Universitat Politècnica de València
DOI: 10.4995/thesis/10251/190993

Prawa własności intelektualnej

Other (3)

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Numer wniosku/publikacji: S 106-2022
Data: 2021-10-13
Wnioskodawca/wnioskodawcy: UNIVERSITAT DE VALENCIA

Módulo de predicción de mortalidad y fragilidad para cuidados paliativos

Numer wniosku/publikacji: S 106-2022
Data: 2021-10-13
Wnioskodawca/wnioskodawcy: FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA

Módulo de predicción de mortalidad y fragilidad para cuidados paliativos

Numer wniosku/publikacji: S 106-2022
Data: 2021-10-13
Wnioskodawca/wnioskodawcy: UNIVERSITAT POLITECNICA DE VALENCIA