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MyPal: Fostering Palliative Care of Adults and Children with Cancer through Advanced Patient Reported Outcome Systems

Descripción del proyecto

Personalización de los cuidados paliativos de enfermos de cáncer

Los enfermos de cáncer se ven a menudo atrapados en un cuello de botella de tediosos procedimientos para concertar citas o comunicarse con los especialistas cuando necesitan atención médica inmediata o asesoramiento presintomático. El objetivo del proyecto MyPal, financiado con fondos europeos, es crear un sistema sanitario digital integrado para la atención de enfermos de cáncer que facilite la comunicación entre los pacientes y los profesionales sanitarios. Los ensayos clínicos para validar el sistema se llevarán a cabo con pacientes adultos y pediátricos. El sistema permitirá que los enfermos y sus familias comuniquen de forma activa sus preocupaciones y cambios de estado y, además, reciban un pronóstico rápido y asesoramiento de especialistas como oncólogos, médicos y psicólogos. De este modo, los enfermos de cáncer recibirán unos cuidados paliativos oportunos y adaptados a sus necesidades personales.

Objetivo

MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) systems through their adaptation to the personal needs of the cancer patient and his/her caregiver(s). Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them with a seamless and effective way to their healthcare providers and, ultimately, foster the time for action through the rapid identification of important deviations in the patient’s state and QoL. Providing this information in a timely and comprehensive manner throughout the disease course will reinforce the potential for applying a patient-centred and integrated palliative care approach for cancer with the participation of all relevant healthcare providers (i.e. oncologists, specialized physicians, psychologists, nurses), which is necessary to cope with the specific disease. In order to accomplish its mission, MyPal will exploit technological advances on digital health to support patients, family members and healthcare providers in gaining value through this systematic and comprehensive PRO-based intervention. Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting based on conventional PRO approaches to active patient engagement and a closed-loop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer. MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies, hence targeting different age groups and cancer types. The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.

Convocatoria de propuestas

H2020-SC1-BHC-2018-2020

Consulte otros proyectos de esta convocatoria

Convocatoria de subcontratación

H2020-SC1-2018-Single-Stage-RTD

Régimen de financiación

RIA - Research and Innovation action

Coordinador

ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS
Aportación neta de la UEn
€ 556 940,59
Dirección
CHARILAOU THERMI ROAD 6 KM
57001 Thermi Thessaloniki
Grecia

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Región
Βόρεια Ελλάδα Κεντρική Μακεδονία Θεσσαλονίκη
Tipo de actividad
Research Organisations
Enlaces
Coste total
€ 556 940,59

Participantes (16)