Descrizione del progetto
Personalizzare le cure palliative per i pazienti oncologici
I pazienti oncologici restano spesso incastrati in una serie di procedure tediose per fissare appuntamenti o comunicare con gli specialisti quando necessitano di un’attenzione medica immediata o di un parere preventivo. Il progetto MyPal, finanziato dall’UE, si propone di creare un sistema integrato di salute digitale per la cura dei pazienti oncologici che faciliti la comunicazione tra pazienti e operatori sanitari. Per convalidare il sistema, saranno condotti studi clinici sia con pazienti adulti che pediatrici. Il sistema consentirà ai pazienti e alle loro famiglie di riferire attivamente preoccupazioni e mutamenti nelle condizioni, nonché di ricevere una prognosi e un parere tempestivi da parte di specialisti quali oncologi, medici e psicologi. Di conseguenza, i pazienti affetti da cancro riceveranno cure palliative tempestive adattate alle loro personali esigenze.
Obiettivo
MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) systems through their adaptation to the personal needs of the cancer patient and his/her caregiver(s). Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them with a seamless and effective way to their healthcare providers and, ultimately, foster the time for action through the rapid identification of important deviations in the patient’s state and QoL. Providing this information in a timely and comprehensive manner throughout the disease course will reinforce the potential for applying a patient-centred and integrated palliative care approach for cancer with the participation of all relevant healthcare providers (i.e. oncologists, specialized physicians, psychologists, nurses), which is necessary to cope with the specific disease. In order to accomplish its mission, MyPal will exploit technological advances on digital health to support patients, family members and healthcare providers in gaining value through this systematic and comprehensive PRO-based intervention. Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting based on conventional PRO approaches to active patient engagement and a closed-loop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer. MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies, hence targeting different age groups and cancer types. The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.
Campo scientifico
Parole chiave
Programma(i)
Argomento(i)
Invito a presentare proposte
Vedi altri progetti per questo bandoBando secondario
H2020-SC1-2018-Single-Stage-RTD
Meccanismo di finanziamento
RIA - Research and Innovation actionCoordinatore
57001 Thermi Thessaloniki
Grecia