Description du projet
Personnaliser les soins palliatifs pour les patients atteints d’un cancer
Les patients atteints d’un cancer sont souvent pris dans un goulot d’étranglement de procédures fastidieuses pour fixer des rendez-vous ou communiquer avec des spécialistes lorsqu’ils ont besoin de soins médicaux immédiats ou de conseils préventifs. Le projet MyPal, financé par l’UE, vise à mettre en place un système de santé numérique intégré pour les soins aux patients atteints de cancer, lequel facilitera la communication entre les patients et les prestataires de soins. Les essais cliniques destinés à le valider incluront des patients adultes et des enfants. Ce système permettra aux patients et à leurs familles de signaler activement leurs préoccupations et les changements de leur état de santé et de recevoir rapidement un pronostic et des conseils de spécialistes tels que des oncologistes, différents praticiens et des psychologues. Les patients atteints d’un cancer pourront ainsi recevoir en temps utile des soins palliatifs adaptés à leurs besoins personnels.
Objectif
MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) systems through their adaptation to the personal needs of the cancer patient and his/her caregiver(s). Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them with a seamless and effective way to their healthcare providers and, ultimately, foster the time for action through the rapid identification of important deviations in the patient’s state and QoL. Providing this information in a timely and comprehensive manner throughout the disease course will reinforce the potential for applying a patient-centred and integrated palliative care approach for cancer with the participation of all relevant healthcare providers (i.e. oncologists, specialized physicians, psychologists, nurses), which is necessary to cope with the specific disease. In order to accomplish its mission, MyPal will exploit technological advances on digital health to support patients, family members and healthcare providers in gaining value through this systematic and comprehensive PRO-based intervention. Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting based on conventional PRO approaches to active patient engagement and a closed-loop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer. MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies, hence targeting different age groups and cancer types. The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.
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RIA - Research and Innovation actionCoordinateur
57001 Thermi Thessaloniki
Grèce