Descripción del proyecto
Una plataforma para respaldar el desarrollo y la aplicación de la medicina personalizada
La medicina personalizada tiene como objetivo mejorar la prevención, el diagnóstico y el tratamiento de enfermedades teniendo en cuenta el genotipo y el fenotipo de las personas, así como otros datos biomédicos, ambientales y de modo de vida. Con todo, a excepción de algunos tipos de cáncer y de algunas enfermedades raras, la medicina personalizada aún no ha llegado a la práctica clínica debido a la fragmentación, los marcos jurídicos y normativos no definidos y su valor económico poco claro. El proyecto ICPerMed Secretariat, financiado con fondos europeos, se puso en marcha para superar estos escollos e iniciar y respaldar la comunicación y el intercambio de información sobre la investigación en el ámbito de la medicina personalizada. Su equipo desarrollará una plataforma para identificar los requisitos de un marco adecuado para fomentar el desarrollo y la aplicación de la medicina personalizada.
Objetivo
The potential of personalised medicine (PM) is to improve prevention, diagnosis and treatment of diseases by taking into account individuals' genotypes and phenotypes as well as other biomedical, life style and environmental data. However, with some exceptions in cancer and rare diseases, PM has not yet arrived in clinical practice due to fragmentation, undefined legal and regulatory frameworks and its unclear economic value. To overcome these hurdles, ICPerMed was founded to initiate and support communication and exchange on PM research, funding and implementation. ICPerMed provides a platform to identify the requirements for a suitable framework in terms of infrastructures, resources and regulatory procedures to foster the development and implementation of PM. The ICPerMed Secretariat will continue to substantially contribute to the success of ICPerMed by efficiently coordinating all consortium activities. This includes supporting the ICPerMed governance and working groups as well as organising ICPerMed internal meetings and thematic events. A further important task of the ICPerMed Secretariat will be the implementation of an effective dissemination plan and the assistance in the development of a sustainability strategy. By monitoring ongoing research funding activities and collecting “Best Practice Examples”, the secretariat will provide the basis for evidence informed allocation of research funding and regulatory framework and standard development. The ICPerMed Secretariat will guide the dialogue with relevant stakeholders and initiatives. It will support training measures in PM in order to facilitate implementation of PM into practice. The organisational and logistical support of a secretariat will maximise the unique and long-term impact of ICPerMed by strengthening Europe's leading role in the successful implementation of PM in the global context.
Ámbito científico
Programa(s)
Convocatoria de propuestas
Consulte otros proyectos de esta convocatoriaConvocatoria de subcontratación
H2020-SC1-2020-Single-Stage-RTD
Régimen de financiación
CSA - Coordination and support actionCoordinador
51147 Koln
Alemania