Descrizione del progetto
Una piattaforma per supportare lo sviluppo e l’adozione della medicina personalizzata
La medicina personalizzata è si propone di migliorare la prevenzione, la diagnosi e il trattamento delle malattie, tenendo conto di genotipi e fenotipi individuali, oltre che di altri dati biomedici, ambientali e riferiti allo stile di vita. Ma tranne alcuni tipi di cancro e malattie rare, la medicina personalizzata deve ancora giungere nella pratica clinica a causa della frammentazione, dell’indefinibilità dei quadri normativi e giuridici e dell’ambiguità sul suo valore economico. Per superare questi ostacoli, è stato realizzato il progetto ICPerMed Secretariat, finanziato dall’UE, per avviare e supportare lo scambio di comunicazioni e informazioni sulla ricerca in questo ambito. Il progetto fornirà una piattaforma per individuare i requisiti per un quadro idoneo a favorire lo sviluppo e l’adozione della medicina personalizzata.
Obiettivo
The potential of personalised medicine (PM) is to improve prevention, diagnosis and treatment of diseases by taking into account individuals' genotypes and phenotypes as well as other biomedical, life style and environmental data. However, with some exceptions in cancer and rare diseases, PM has not yet arrived in clinical practice due to fragmentation, undefined legal and regulatory frameworks and its unclear economic value. To overcome these hurdles, ICPerMed was founded to initiate and support communication and exchange on PM research, funding and implementation. ICPerMed provides a platform to identify the requirements for a suitable framework in terms of infrastructures, resources and regulatory procedures to foster the development and implementation of PM. The ICPerMed Secretariat will continue to substantially contribute to the success of ICPerMed by efficiently coordinating all consortium activities. This includes supporting the ICPerMed governance and working groups as well as organising ICPerMed internal meetings and thematic events. A further important task of the ICPerMed Secretariat will be the implementation of an effective dissemination plan and the assistance in the development of a sustainability strategy. By monitoring ongoing research funding activities and collecting “Best Practice Examples”, the secretariat will provide the basis for evidence informed allocation of research funding and regulatory framework and standard development. The ICPerMed Secretariat will guide the dialogue with relevant stakeholders and initiatives. It will support training measures in PM in order to facilitate implementation of PM into practice. The organisational and logistical support of a secretariat will maximise the unique and long-term impact of ICPerMed by strengthening Europe's leading role in the successful implementation of PM in the global context.
Campo scientifico
Parole chiave
Programma(i)
Argomento(i)
Invito a presentare proposte
Vedi altri progetti per questo bandoBando secondario
H2020-SC1-2020-Single-Stage-RTD
Meccanismo di finanziamento
CSA - Coordination and support actionCoordinatore
51147 Koln
Germania