Project description
Paving the road towards a European health data space
The design of a health research and innovation cloud (HRIC) data portal that is FAIR – findable, accessible, interoperable and re-usable – and respects legal and ethical requirements is one of the key goals of the EU. Contributing to this field, the EU-funded HealthyCloud project will deliver a strategic agenda including a ready-to-implement roadmap for the HRIC ecosystem. The project will use two real-world use cases in cancer and atrial fibrillation, and its work will lead to an ecosystem proposal that builds and strengthens the patients' and citizens' trust in using their health data for research.
Objective
The creation of a European Health Data Space is one of the six strategic priorities for the newly elected European Commission. The European Health Research and Innovation Cloud (HRIC) will be one of the future cornerstone pieces for this area. HealthyCloud will deliver a Strategic Agenda including a Ready-to-implement Roadmap for the HRIC ecosystem. The Strategic Agenda will incorporate the consolidated feedback of a broad range of stakeholders: the European Commission, the Member States and regional, national, European and international relevant initiatives. These agents will be invited to be part of the HealthyCloud’s Stakeholders’ Forum, designed to facilitate the dialogue among them and the Consortium, and to act as an umbrella to bring together similar efforts in specific domains.
HealthyCloud has been organized around four fundamental objectives that cover 1) interactions with stakeholders to ensure their voices are included as part of the Strategic Agenda; 2) the inclusion of Ethical, Legal and Societal aspects in the design of the future HRIC ecosystem; 3) the sustainable access, use and re-use of health-related data considering a progressive adoption of the FAIR principles; and 4) the technological solutions in terms of computational facilities and mechanisms to enable distributed health data analysis across Europe. The project is driven by two real-world use-cases (Cancer and Atrial Fibrillation) to ensure that propositions by domain-specific and technological experts are technically and ethically sound and legally compliant. The ultimate goal is to propose an ecosystem that builds and reinforces the trust of patients and citizens in the use of their health data for research.
HealthyCloud is a 30-month project that brings together 21 organizations with broad and yet complementary expertise, including 5 Research Infrastructures (ELIXIR, ECRIN, EATRIS, BBMRI and Euro-BioImaging) and 3 Joint Actions (InfAct, iPAAC and eHAction) related to health research.
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Keywords
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Funding Scheme
CSA - Coordination and support actionCoordinator
50009 Zaragoza
Spain
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Participants (25)
1050 Elsene
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75014 Paris
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1098 XG Amsterdam
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8010 Graz
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1081 HZ Amsterdam
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20521 Turku
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
00185 Roma
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
3015 GD Rotterdam
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
80121 Napoli
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08007 Barcelona
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10117 Berlin
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00271 Helsinki
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1010 Wien
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08034 Barcelona
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69117 Heidelberg
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
75794 Paris
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41071 Sevilla
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4365 ESCH-SUR-ALZETTE
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08003 Barcelona
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02101 Espoo
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51005 Tartu
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10117 Berlin
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1050 189 Lisboa
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2333 ZA Leiden
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4362 Esch-Sur-Alzette
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