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In Greece, there was no professional body in place to bring together and educate health care professionals on the genetic aspects of breast cancer. As a result of our project, we have co-founded the Hellenic Cancer Genetics Society. This is the first professional organization to educate and coordinate protocols for the management of high risk patients with familial breast cancer in Greece.
The benefits to the general public will be an improved, better coordinated breast cancer screening and treatment service in Greece. We now continue to collaborate with centres in Greece with respect to all aspects of familial breast cancer.
Similarly in Italy, the formation of the Italian Network of Cancer Genetics Centres will now allow a central organization to coordinate, and educate on, the genetic aspects of breast cancer services in this country.
The European Clinical Collaborative Group on Familial Breast Cancer was established by the demonstration project partners during the course of the project.
The aim of the collaboration group is to allow for potential clinical trials to be discussed and put forward to a wider audience for to allow for possible collaborations to be established permitting the establishment of multi-centre trials.
The first meeting of this group was presented as part of the demonstration project final symposium
and has already resulted in collaborations being discussed amongst members of the project and centres from around Europe and members of the former Eastern Bloc countries.
The European Organisation for Research and Treatment of Cancer was founded in 1962 to conduct, develop, coordinate, and stimulate research in Europe on the experimental and clinical bases of treatment of cancer and related problems.
As a result of collaboration through our demonstration project, we have set up a multi-centre partnership with project members and the EORTC where they will be able to coordinate therapeutic trials with patients at high risk of breast cancer.
As new drugs and techniques are discovered they must be assessed in as large a number of patients as possible and one way to do this is to conduct multi-centre trials to increase the number of patients available. Similarly drugs already available can be re-assessed by different methods/applications.
The expertise which the EORTC has in conducting and organizing large multi-centre trials, along with the contacts we have established during the progress of the demonstration project, will allow for large multi-centre European trials to develop and continue with the ultimate goal of improving standards of care for high risk breast cancer patients.
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