Project description
Patients who have diabetes find support online
The internet has opened up many new ways for people living with chronic conditions to educate themselves and empower their own healthcare choices, from discovering new treatments to better disease management. The EU-funded COMMONS project focuses on how people with diabetes deal with developing research, knowledge and technological commons to better meet their needs. Through interviews and ethnographic studies of diabetes, patients work on many issues. In turn, COMMONS will study how patient-led innovation can improve healthcare treatment outcomes and health equity. Such findings could help doctors, other healthcare decision-makers and medical technology providers better serve other chronic disease communities in the future.
Objective
The aim of this project is to examine how commons-based peer production is impacting healthcare ecosystem dynamics and the lived experience of people with diabetes (PwD). The project focuses on communities of PwD who, collaborating online via open-source forms of knowledge exchange, are increasingly empowered to create and modify diabetes technologies to better meet their medical needs. Since its emergence in 2013, this patient-led commons has produced a range of innovations that can help improve clinical outcomes and quality-of-life. However, these innovations sit outside of commercial and regulatory processes and create dilemmas for healthcare professionals, regulators and industry. Furthermore, the central role of technology in this community has raised questions about who can participate in and benefit from its innovations. Through in-depth interviews and ethnographic observations, this project aims to capture the understandings of key stakeholders as to how and why the patient-led commons came to be as well as their visions of its role in the future of diabetes care. It ill shed light on how patient-led innovation is potentially transforming the development and diffusion of healthcare technologies and the implications of this for equity in healthcare outcomes. It is anticipated that the findings will help decision-makers to determine what sort of collaborations or partnerships can be developed between the patient-led commons and established ecosystem players to address the needs of PwD and other chronic conditions. The project includes a training programme supported by an international team of prominent scholars in science and technology studies and will provide opportunities for learning and networking that will help consolidate the Fellow as an emerging leader in patient-oriented research. Overall, the Fellowship alligns with the EC’s commitment to the inducement, uptake and scaling-up of social innovation in Europe as well as 3,5&8 of the UN SDGs.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- medical and health sciences clinical medicine endocrinology diabetes
- natural sciences biological sciences ecology ecosystems
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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HORIZON.1.2 - Marie Skłodowska-Curie Actions (MSCA)
MAIN PROGRAMME
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
HORIZON-TMA-MSCA-PF-GF - HORIZON TMA MSCA Postdoctoral Fellowships - Global Fellowships
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) HORIZON-MSCA-2021-PF-01
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
4 Dublin
Ireland
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.