CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.
Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .
Livrables
Report on the key cultural, social and psychological factors associated with QoL across countries and cultures.
Report on stakeholder needs and requirements (s’ouvre dans une nouvelle fenêtre)The report addresses the aim of the Stakeholder Board, which is to scope information needs of stakeholders that may be met by the EUonQL-Kit. The report focusses on (1) advising on any opportunity to further strengthen the project within its scope and (2) further defining and establishing task description and key consultation points. Working modalities and results such as online meetings supported with interactive tools such as Mentimeter or Mural, bilateral contacts for specific topics, email consultation / Delphi rounds are presented in the report. Also, the report contains a clear overview of the needs and requirements of the stakeholders.
Study initiation package (s’ouvre dans une nouvelle fenêtre)Final version of study protocol – registration number of the clinical study in a WHO or JCMJE approved registry - Ethical approval for the first clinical site.
Collaborative network report (s’ouvre dans une nouvelle fenêtre)Report on the activities within the formalized collaborative network with major EU stakeholders, professional, lay and interest organizations.
Risk and Data Management process (s’ouvre dans une nouvelle fenêtre)This deliverable will deal with the data risk management, controlled process EUonQoL will be used when acquiring, storing, transforming, and using its data to eliminate data risk.
Report reviews on available measurements tools (s’ouvre dans une nouvelle fenêtre)Reports of the reviews on available measurements tools to assess HRQoL in European cancer patients and survivors (Task 3.1) and on relevant QoL domains for European cancer patients and survivors (Task 3.2).
Report on patient priorities and preferences (s’ouvre dans une nouvelle fenêtre)This report will present the comparative analysis of three areas of work (WP3 systematic reviews and WP4 patient interviews/focus groups, and Delphi survey) to establish patient’s priorities and preferences for the QoL domains to be included in EUonQoL-Kit, across the cancer care continuum. The report will describe the first draft of the EUonQoL toolkit approved by WP2 and developed in collaboration with WP5 and WP6.
Report on linguistic and cultural adaptation (s’ouvre dans une nouvelle fenêtre)Report on linguistic and cultural adaptation of the new EUonQoL-Kit into all languages of the involved countries.
Final set of questionnaires of the EUonQoL-Kit (s’ouvre dans une nouvelle fenêtre)This report will describe the final WP2-approved, EUonQoL-Kit for pilot testing in WP7. A detailed scientific report will be produced to describe the development and content of the EUonQoL-Kit.
Scoping review on CAT-based measurement (s’ouvre dans une nouvelle fenêtre)Report of the scoping review on CAT-based measurement systems for HRQoL assessment in European cancer patients and survivors (Task 3.3).
Report on consensus on instruments (s’ouvre dans une nouvelle fenêtre)The report addresses the aim and research questions related to stakeholder consensus. It describes the methodology and results of the first physical meeting and a second online meeting. Members of the Stakeholder board and platform, patient coresearchers and the consortium members will participate. In a first physical meeting as many perspectives are placed on the table as possible, from patients and potential end users of the QoL data in order to: (1) confirm that the work leading up to first drafts of EUQL-Kit instrument is consistent with the perspectives of patients and stakeholders, and (2) to inform the finalization of the instruments. For instance we report on stakeholder ideas about using QoL data, incorporation of the patient perspective by working with patient co-researchers, and considerations that are taken into account for finalization. We also report on the last step towards finalization via a online meeting with all stakeholders.
Handbook & checklist (s’ouvre dans une nouvelle fenêtre)Handbook & checklist for the consortium: how to collaborate as patients/researchers/stakeholders.
Report on usability tests with patients (s’ouvre dans une nouvelle fenêtre)This report will describe the results of initial usability testing with patients, using mixed qualitative and quantitative methodology, to establish patients’ views regarding the EUonQoL-Kit and live CAT version.
Healthcare system determinants of QoL (s’ouvre dans une nouvelle fenêtre)Report on the health and care system determinants associated with QoL across countries and cultures.
Strategic framework, stakeholders mapping and analysis, operational plan for communication and dissemination activities.
This deliverable will include details on the DPO roles and the CV of the selected person.
Web-platform for QoL data collection (s’ouvre dans une nouvelle fenêtre)The web application will be deployed on a secure web server for safe connections and will interface with the App for mobile devices. The platform will store and share data coming from the QoL report forms filled by patients. Super users access and reports will be provided for administrative purpose.
Mobile App interfaced with the web-platform (s’ouvre dans une nouvelle fenêtre)The mobile App will be released both for iOS and Android mobile devices. The App will interface with the web-platform and allow the recording of the answers provided by patients through the questionnaire. An electronic user manual including plain language use instructions can be downloaded by the patients to promote accurate data entry by them.
Publications
Auteurs:
Apolone, Giovanni MD; Brunelli, Cinzia PhD, MSc
Publié dans:
Journal of Ambulatory Care Management, 2023, ISSN 1550-3267
Éditeur:
Wolters Kluwer Health, Inc
DOI:
10.1097/JAC.0000000000000449
Auteurs:
Viktorya Voskanyan, Chiara Marzorati, Diana Sala, Roberto Grasso, Ricardo Pietrobon, Iris van der Heijden, Merel Engelaar, Nanne Bos, Augusto Caraceni, Norbert Couspel, Montse Ferrer, Mogens Groenvold, Stein Kaasa
Publié dans:
Journal of Cancer Research and Clinical Oncology, 2024, ISSN 1432-1335
Éditeur:
Springer Nature
DOI:
10.1007/s00432-024-05749-8
Auteurs:
Engelaar, M., Bos, N., Schelven, F. van, et al.
Publié dans:
Research Involvement and Engagement, Numéro 2024, 10(1), 2024, ISSN 2056-7529
Éditeur:
BMC
DOI:
10.1186/s40900-024-00597-9
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