CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.
I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .
Risultati finali
Report on the key cultural, social and psychological factors associated with QoL across countries and cultures.
Report on stakeholder needs and requirements (si apre in una nuova finestra)The report addresses the aim of the Stakeholder Board, which is to scope information needs of stakeholders that may be met by the EUonQL-Kit. The report focusses on (1) advising on any opportunity to further strengthen the project within its scope and (2) further defining and establishing task description and key consultation points. Working modalities and results such as online meetings supported with interactive tools such as Mentimeter or Mural, bilateral contacts for specific topics, email consultation / Delphi rounds are presented in the report. Also, the report contains a clear overview of the needs and requirements of the stakeholders.
Study initiation package (si apre in una nuova finestra)Final version of study protocol – registration number of the clinical study in a WHO or JCMJE approved registry - Ethical approval for the first clinical site.
Collaborative network report (si apre in una nuova finestra)Report on the activities within the formalized collaborative network with major EU stakeholders, professional, lay and interest organizations.
Risk and Data Management process (si apre in una nuova finestra)This deliverable will deal with the data risk management, controlled process EUonQoL will be used when acquiring, storing, transforming, and using its data to eliminate data risk.
Report reviews on available measurements tools (si apre in una nuova finestra)Reports of the reviews on available measurements tools to assess HRQoL in European cancer patients and survivors (Task 3.1) and on relevant QoL domains for European cancer patients and survivors (Task 3.2).
Report on patient priorities and preferences (si apre in una nuova finestra)This report will present the comparative analysis of three areas of work (WP3 systematic reviews and WP4 patient interviews/focus groups, and Delphi survey) to establish patient’s priorities and preferences for the QoL domains to be included in EUonQoL-Kit, across the cancer care continuum. The report will describe the first draft of the EUonQoL toolkit approved by WP2 and developed in collaboration with WP5 and WP6.
Report on linguistic and cultural adaptation (si apre in una nuova finestra)Report on linguistic and cultural adaptation of the new EUonQoL-Kit into all languages of the involved countries.
Final set of questionnaires of the EUonQoL-Kit (si apre in una nuova finestra)This report will describe the final WP2-approved, EUonQoL-Kit for pilot testing in WP7. A detailed scientific report will be produced to describe the development and content of the EUonQoL-Kit.
Scoping review on CAT-based measurement (si apre in una nuova finestra)Report of the scoping review on CAT-based measurement systems for HRQoL assessment in European cancer patients and survivors (Task 3.3).
Report on consensus on instruments (si apre in una nuova finestra)The report addresses the aim and research questions related to stakeholder consensus. It describes the methodology and results of the first physical meeting and a second online meeting. Members of the Stakeholder board and platform, patient coresearchers and the consortium members will participate. In a first physical meeting as many perspectives are placed on the table as possible, from patients and potential end users of the QoL data in order to: (1) confirm that the work leading up to first drafts of EUQL-Kit instrument is consistent with the perspectives of patients and stakeholders, and (2) to inform the finalization of the instruments. For instance we report on stakeholder ideas about using QoL data, incorporation of the patient perspective by working with patient co-researchers, and considerations that are taken into account for finalization. We also report on the last step towards finalization via a online meeting with all stakeholders.
Handbook & checklist (si apre in una nuova finestra)Handbook & checklist for the consortium: how to collaborate as patients/researchers/stakeholders.
Report on usability tests with patients (si apre in una nuova finestra)This report will describe the results of initial usability testing with patients, using mixed qualitative and quantitative methodology, to establish patients’ views regarding the EUonQoL-Kit and live CAT version.
Healthcare system determinants of QoL (si apre in una nuova finestra)Report on the health and care system determinants associated with QoL across countries and cultures.
Strategic framework, stakeholders mapping and analysis, operational plan for communication and dissemination activities.
This deliverable will include details on the DPO roles and the CV of the selected person.
Web-platform for QoL data collection (si apre in una nuova finestra)The web application will be deployed on a secure web server for safe connections and will interface with the App for mobile devices. The platform will store and share data coming from the QoL report forms filled by patients. Super users access and reports will be provided for administrative purpose.
Mobile App interfaced with the web-platform (si apre in una nuova finestra)The mobile App will be released both for iOS and Android mobile devices. The App will interface with the web-platform and allow the recording of the answers provided by patients through the questionnaire. An electronic user manual including plain language use instructions can be downloaded by the patients to promote accurate data entry by them.
Pubblicazioni
Autori:
Apolone, Giovanni MD; Brunelli, Cinzia PhD, MSc
Pubblicato in:
Journal of Ambulatory Care Management, 2023, ISSN 1550-3267
Editore:
Wolters Kluwer Health, Inc
DOI:
10.1097/JAC.0000000000000449
Autori:
Viktorya Voskanyan, Chiara Marzorati, Diana Sala, Roberto Grasso, Ricardo Pietrobon, Iris van der Heijden, Merel Engelaar, Nanne Bos, Augusto Caraceni, Norbert Couspel, Montse Ferrer, Mogens Groenvold, Stein Kaasa
Pubblicato in:
Journal of Cancer Research and Clinical Oncology, 2024, ISSN 1432-1335
Editore:
Springer Nature
DOI:
10.1007/s00432-024-05749-8
Autori:
Engelaar, M., Bos, N., Schelven, F. van, et al.
Pubblicato in:
Research Involvement and Engagement, Numero 2024, 10(1), 2024, ISSN 2056-7529
Editore:
BMC
DOI:
10.1186/s40900-024-00597-9
È in corso la ricerca di dati su OpenAIRE...
Si è verificato un errore durante la ricerca dei dati su OpenAIRE
Nessun risultato disponibile