CORDIS oferuje możliwość skorzystania z odnośników do publicznie dostępnych publikacji i rezultatów projektów realizowanych w ramach programów ramowych HORYZONT.
Odnośniki do rezultatów i publikacji związanych z poszczególnymi projektami 7PR, a także odnośniki do niektórych konkretnych kategorii wyników, takich jak zbiory danych i oprogramowanie, są dynamicznie pobierane z systemu OpenAIRE .
Rezultaty
Report on the key cultural, social and psychological factors associated with QoL across countries and cultures.
Report on stakeholder needs and requirements (odnośnik otworzy się w nowym oknie)The report addresses the aim of the Stakeholder Board, which is to scope information needs of stakeholders that may be met by the EUonQL-Kit. The report focusses on (1) advising on any opportunity to further strengthen the project within its scope and (2) further defining and establishing task description and key consultation points. Working modalities and results such as online meetings supported with interactive tools such as Mentimeter or Mural, bilateral contacts for specific topics, email consultation / Delphi rounds are presented in the report. Also, the report contains a clear overview of the needs and requirements of the stakeholders.
Study initiation package (odnośnik otworzy się w nowym oknie)Final version of study protocol – registration number of the clinical study in a WHO or JCMJE approved registry - Ethical approval for the first clinical site.
Collaborative network report (odnośnik otworzy się w nowym oknie)Report on the activities within the formalized collaborative network with major EU stakeholders, professional, lay and interest organizations.
Risk and Data Management process (odnośnik otworzy się w nowym oknie)This deliverable will deal with the data risk management, controlled process EUonQoL will be used when acquiring, storing, transforming, and using its data to eliminate data risk.
Report reviews on available measurements tools (odnośnik otworzy się w nowym oknie)Reports of the reviews on available measurements tools to assess HRQoL in European cancer patients and survivors (Task 3.1) and on relevant QoL domains for European cancer patients and survivors (Task 3.2).
Report on patient priorities and preferences (odnośnik otworzy się w nowym oknie)This report will present the comparative analysis of three areas of work (WP3 systematic reviews and WP4 patient interviews/focus groups, and Delphi survey) to establish patient’s priorities and preferences for the QoL domains to be included in EUonQoL-Kit, across the cancer care continuum. The report will describe the first draft of the EUonQoL toolkit approved by WP2 and developed in collaboration with WP5 and WP6.
Report on linguistic and cultural adaptation (odnośnik otworzy się w nowym oknie)Report on linguistic and cultural adaptation of the new EUonQoL-Kit into all languages of the involved countries.
Final set of questionnaires of the EUonQoL-Kit (odnośnik otworzy się w nowym oknie)This report will describe the final WP2-approved, EUonQoL-Kit for pilot testing in WP7. A detailed scientific report will be produced to describe the development and content of the EUonQoL-Kit.
Scoping review on CAT-based measurement (odnośnik otworzy się w nowym oknie)Report of the scoping review on CAT-based measurement systems for HRQoL assessment in European cancer patients and survivors (Task 3.3).
Report on consensus on instruments (odnośnik otworzy się w nowym oknie)The report addresses the aim and research questions related to stakeholder consensus. It describes the methodology and results of the first physical meeting and a second online meeting. Members of the Stakeholder board and platform, patient coresearchers and the consortium members will participate. In a first physical meeting as many perspectives are placed on the table as possible, from patients and potential end users of the QoL data in order to: (1) confirm that the work leading up to first drafts of EUQL-Kit instrument is consistent with the perspectives of patients and stakeholders, and (2) to inform the finalization of the instruments. For instance we report on stakeholder ideas about using QoL data, incorporation of the patient perspective by working with patient co-researchers, and considerations that are taken into account for finalization. We also report on the last step towards finalization via a online meeting with all stakeholders.
Handbook & checklist (odnośnik otworzy się w nowym oknie)Handbook & checklist for the consortium: how to collaborate as patients/researchers/stakeholders.
Report on usability tests with patients (odnośnik otworzy się w nowym oknie)This report will describe the results of initial usability testing with patients, using mixed qualitative and quantitative methodology, to establish patients’ views regarding the EUonQoL-Kit and live CAT version.
Healthcare system determinants of QoL (odnośnik otworzy się w nowym oknie)Report on the health and care system determinants associated with QoL across countries and cultures.
Strategic framework, stakeholders mapping and analysis, operational plan for communication and dissemination activities.
This deliverable will include details on the DPO roles and the CV of the selected person.
Web-platform for QoL data collection (odnośnik otworzy się w nowym oknie)The web application will be deployed on a secure web server for safe connections and will interface with the App for mobile devices. The platform will store and share data coming from the QoL report forms filled by patients. Super users access and reports will be provided for administrative purpose.
Mobile App interfaced with the web-platform (odnośnik otworzy się w nowym oknie)The mobile App will be released both for iOS and Android mobile devices. The App will interface with the web-platform and allow the recording of the answers provided by patients through the questionnaire. An electronic user manual including plain language use instructions can be downloaded by the patients to promote accurate data entry by them.
Publikacje
Autorzy:
G. Apolone, M. Costantini, L. Caselli, N. Bos, A. Caraceni, G. Ciliberto, N. Couespel, M. Ferrer, M. Groenvold, S. Kaasa, C. Lombardo, R. Pietrobon, G. Pravettoni, A. Sirven, H. Vachon, G. Velikova, O. Garin, A. Gilbert, A. Machiavelli, C. Marzorati, R. Miceli, M. Pe, MA. Petersen, A. Tanzilli, F. van Schelven, C. Dantas, I Minnée-van Braak, L. Pinnavaia, C. Brunelli
Opublikowane w:
BMC Public Health, Numer 24, 2024, ISSN 1471-2458
Wydawca:
Springer Science and Business Media LLC
DOI:
10.1186/S12889-024-21008-4
Autorzy:
Apolone G, Brunelli C
Opublikowane w:
Journal of Ambulatory Care Management, Numer 46, 2023, ISSN 1550-3267
Wydawca:
Wolters Kluwer Health, Inc
DOI:
10.1097/JAC.0000000000000449
Autorzy:
Merel Engelaar, Femke van Schelven, Nanne Bos, Marion L'Hote, Clémentine Rialland, Norbert Couespel, Carina Dantas, Caitriona Higgins, Tapani Kalmi, Inke Minnée‐van Braak, Laura Pinnavaia, Giovanni Apolone, Cinzia Brunelli, Augusto Caraceni, Montse Ferrer, Mogens Groenvold, Stein Kaasa, Gennaro Ciliberto, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Galina Velikova, Jany Rademakers
Opublikowane w:
Health Expectations, Numer 28, 2025, ISSN 1369-6513
Wydawca:
Wiley
DOI:
10.1111/HEX.70267
Autorzy:
Laurence Leysen, Karla Marticic Giljevic, Claire Piccinin, Morena Shkodra, Madeline Pe, Morten Petersen, Giovanni Apolone, Cinzia Brunelli, Claudio Lombardo, Galina Velikova, Alexandra Gilbert, Gabriella Pravettoni, Gennaro Ciliberto, Mogens Groenvold, Montserrat Ferrer, Nanne Bos, Ricardo Pietrobon, Norbert Couespel, Augusto Caraceni, Marianne Guren, Aude Sirven, Hugo Vachon
Opublikowane w:
BMJ Open, Numer 15, 2025, ISSN 2044-6055
Wydawca:
BMJ
DOI:
10.1136/BMJOPEN-2024-088716
Autorzy:
Chiara Marzorati, Viktorya Voskanyan, Diana Sala, Roberto Grasso, Federico Borgogni, Ricardo Pietrobon, Iris van der Heide, Merel Engelaar, Nanne Bos, Augusto Caraceni, Norbert Couspel, Montse Ferrer, Mogens Groenvold, Stein Kaasa, Claudio Lombardo, Aude Sirven, Hugo Vachon, Alexandra Gilbert, Cinzia Brunelli, Giovanni Apolone, Gabriella Pravettoni, null null
Opublikowane w:
Health and Quality of Life Outcomes, Numer 23, 2025, ISSN 1477-7525
Wydawca:
Springer Science and Business Media LLC
DOI:
10.1186/S12955-025-02357-Z
Autorzy:
Catalina Lizano-Barrantes, Clara Amat-Fernandez, Olatz Garin, Ricardo Luer-Aguila, Yolanda Pardo, Leslye Rojas-Concha, Melissa S.Y. Thong, Giovanni Apolone, Cinzia Brunelli, Augusto Caraceni, Norbert Couespel, Nanne Bos, Mogens Groenvold, Stein Kaasa, Gennaro Ciliberto, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Alexandra Gilbert, Galina Velikova, Montse Ferrer, null null, Tudor Ciuleanu, Milana Mitrić, Ivica Ratosa, Michal Chovanec, Maria Vieito, Héctor Aguilar, Eva Ruiz, Karin Ahlberg, Eda Tanrikulu Simsek, Mahmut Gumus, Inke van Braak, Caitriona Higgins, Laura Pinnavaia, Carina Dantas, Tapani Kalmi
Opublikowane w:
Quality of Life Research, Numer 35, 2026, ISSN 0962-9343
Wydawca:
Springer Science and Business Media LLC
DOI:
10.1007/S11136-025-04129-0
Autorzy:
Viktorya Voskanyan, Chiara Marzorati, Diana Sala, Roberto Grasso, Ricardo Pietrobon, Iris van der Heijden, Merel Engelaar, Nanne Bos, Augusto Caraceni, Norbert Couspel, Montse Ferrer, Mogens Groenvold, Stein Kaasa
Opublikowane w:
Journal of Cancer Research and Clinical Oncology, 2024, ISSN 1432-1335
Wydawca:
Springer Nature
DOI:
10.1007/s00432-024-05749-8
Autorzy:
Engelaar, M., Bos, N., Schelven, F. van, et al.
Opublikowane w:
Research Involvement and Engagement, Numer 2024, 10(1), 2024, ISSN 2056-7529
Wydawca:
BMC
DOI:
10.1186/s40900-024-00597-9
Autorzy:
Amat-Fernandez C, Garin O, Luer-Aguila R, Pardo Y, Briseño R, Lizano-Barrantes C, Rojas-Concha L, S Y Thong M, Apolone G, Brunelli C, Caraceni A, Couespel N, Bos N, Groenvold M, Kaasa S, Ciliberto G, Lombardo C, Pietrobon R, Pravettoni G, Sirven A, Vachon
Opublikowane w:
Quality of Life Research, Numer 34, 2025, ISSN 1476-4687
Wydawca:
Springer Nature
DOI:
10.1007/S11136-024-03884-W
Autorzy:
Maike G. Sweegers, Esther de Jongh, Christopher Bedding, Emma Nicklin, Daniela Doege, Sara Alfieri, Laura Gangeri, Bianca Scacciati, Augusto Caraceni, Cinzia Brunelli, Anne Bredart, Leslye Rojas-Concha, Helle Pappot, Giovanni Apolone, Nanne Bos, Gennaro Ciliberto, Norbert Couespel, Montse Ferrer, Stein Kaasa, Claudio Lombardo, Ricardo Pietrobon, Gabriella Pravettoni, Aude Sirven, Hugo Vachon, Mogens Groenvold, Maria Alice Franzoi, Galina Velikova, Alexandra Gilbert, Lonneke V. van de Poll-Franse
Opublikowane w:
Journal of Patient-Reported Outcomes, Numer 9, 2025, ISSN 2509-8020
Wydawca:
Springer Science and Business Media LLC
DOI:
10.1186/S41687-025-00907-Z
Opublikowane w:
Current Opinion in Supportive & Palliative Care, Numer 19, 2025, ISSN 1751-4258
Wydawca:
Ovid Technologies (Wolters Kluwer Health)
DOI:
10.1097/SPC.0000000000000775
Opublikowane w:
Current Opinion in Supportive & Palliative Care, Numer 19, 2025, ISSN 1751-4258
Wydawca:
Ovid Technologies (Wolters Kluwer Health)
DOI:
10.1097/SPC.0000000000000775
Autorzy:
Alen Brkic, Tonje Lundeby, Giovanni Apelone , Cinzia Brunelli
Opublikowane w:
OECI Magazine, Numer 1, 2025
Wydawca:
Organisation of European Cancer Institutes, European Economic Interest Grouping
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