Description du projet
Intégrer les soins palliatifs dans la gestion de l’insuffisance cardiaque
L’intégration des soins palliatifs (SP) dans la gestion de l’insuffisance cardiaque (IC) est un réel défi. Seule une petite fraction des patients souffrant d’IC (entre 5 et 7 %) bénéficie actuellement des services de SP. Les orientations tardives, axées principalement sur l’optimisation thérapeutique, négligent souvent le caractère multidimensionnel des besoins des patients, ce qui entraîne une inadéquation du traitement et une diminution de la qualité de vie. Dans ce contexte, le projet RAPHAEL, financé par l’UE, utilisera une approche centrée sur le patient pour hiérarchiser les besoins individuels, avec l’aide de l’application PAL@HEART pour le suivi à domicile et l’évaluation des interventions. En répondant rapidement aux préoccupations des patients, RAPHAEL améliore leur qualité de vie, réduit le nombre d’hospitalisations et allège la pression sur les systèmes de santé. Actif dans sept États membres de l’UE, la Suisse et le Royaume-Uni, le consortium interdisciplinaire RAPHAEL inaugure un modèle évolutif pour un déploiement mondial.
Objectif
While the need for integrating palliative care (PC) services into heart failure (HF) care has been well recognised, as of yet this integration lacks behind, especially when compared to cancer care. Currently, only 5-7% of patients with HF utilise PC services, due to a focus on optimising therapy and an unpredictable disease trajectory with exacerbations which hampers prognosis. As a result, many symptoms and concerns that are not directly related to HF are not recognised and undertreated and patients are often referred to PC services only at the very end of their lives.
The RAPHAEL consortium sets out to take the next big step in integrating PC into HF care by integrating the RAPHAEL palliative care approach in existing HF care pathways. This flexible and patient centred approach starts with the identification of multidimensional symptoms and concerns, prioritise needs with patient and informal carer and formulate a proactive care plan. The symptoms and concerns will be monitored by the patient at home using the PAL@HEART application. The app can be used to evaluate interventions, support communication and earl identify new or increasing needs. As a result, the care needs of each individual patient with HF are addressed faster and better, improving their quality of life and autonomy. Moreover, this will lead to a reduction in emergency hospitalisations, unburdening the healthcare system and reducing costs.
The RAPHAEL project sets out to adapt the RAPHAEL approach to HF care within a European context and test and validate its (cost-)effectiveness via a feasibility and large-scale evaluation study performed in 7 EU countries, the UK and Switzerland. It brings together experts in palliative care, cardiology, and primary care as well as professional organisations and patient representatives. Together the RAPHAEL consortium is uniquely situated to demonstrate the (cost-)effectiveness of the RAPAHEL approach and launch its implementation in Europe and beyond.
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HORIZON-RIA - HORIZON Research and Innovation ActionsCoordinateur
3584 CX Utrecht
Pays-Bas