Objective
The European Rare Diseases Research Alliance (ERDERA) aims to improve the health and well-being of the 30 million people living with a rare disease in Europe, by making Europe a world leader in Rare Disease (RD) research and innovation, to support concrete health benefits to rare disease patients, through better prevention, diagnosis and treatment. This Partnership will deliver a RD ecosystem that builds on the successes of previous programmes by supporting robust patient need-led research, developing new diagnostic methods and pathways, spearheading the digital transformational change connecting the dots between care, patient data and research, while ensuring strong alignment of strategies in RD research across countries and regions. Structuring goal-oriented public-private collaborations targeted at interventions all along the R&D value chain will ensure that the journey from knowledge to patient impact is expedited, thereby optimising EU innovation potential in RD. To support its ambition and missions ERDERA has been designed as a comprehensive and integrated ecosystem of which structure can be compared to an institute encompassing three main parts: (i) funding, (ii) internal (in house) Clinical Research Network that implements research activities targeting clinical trial readiness of RDs and accelerating diagnosis and translation of research discovery into improved patient care, and (iii) related supporting services (Data, Expertise, Education and Training) as well as an acceleration hub that serve external and internal RD community, all supported by all-embracing coordination and strategy and foundational (inter)national alignment.
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Keywords
Programme(s)
Funding Scheme
HORIZON-COFUND - HORIZON Programme Cofund ActionsCoordinator
75654 Paris
France
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75015 PARIS
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08007 Barcelona
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51147 Koln
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75013 Paris
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00185 Roma
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LT-01103 Vilnius
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2593 CE DEN HAAG
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72074 Tuebingen
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51005 Tartu
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08028 Barcelona
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6525 GA Nijmegen
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80333 Muenchen
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69120 Heidelberg
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1083 HN Amsterdam
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08035 Barcelona
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2333 ZA Leiden
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7522 NB Enschede
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28040 Madrid
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9713 GZ Groningen
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1081 HV Amsterdam
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6200 MD Maastricht
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1081 HZ Amsterdam
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70010 Valenzano Bari
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75012 Paris
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3500 Hasselt
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75014 Paris
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LT-08661 Vilnius
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3004-531 Coimbra
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75014 Paris
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75013 Paris
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1004 Riga
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4000-447 Porto
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11010 Beograd
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75014 PARIS
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34752 Istanbul
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1210 Wien
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13284 Marseille
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50139 Firenze
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33100 Udine
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52900 Ramat Gan
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53175 Bonn
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1090 Wien
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18055 ROSTOCK
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10117 Berlin
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13353 Berlin
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21000 Dijon
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1411 Kobenhavn K
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3400 Hillerod
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9101002 Jerusalem
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70122 Bari
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4614 HC Bergen Op Zoom
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1043NX Amsterdam
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3015 GD Rotterdam
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1000 Bruxelles / Brussel
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80686 Munchen
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20124 Milano
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75014 Paris
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1010 Wien
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1100 Kobenhavn K
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08950 Esplugues De Llobregat
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1249 074 Lisboa
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12801 Praha
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100 00 PRAHA
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0179 Tbiilisi
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104 22 Stockholm
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60323 Frankfurt Am Main
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D02 H638 Dublin
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35340 İzmir
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105 Reykjavik
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75015 Paris
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60-479 Poznan
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28029 Madrid
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1649-016 Lisboa
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40136 Bologna
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00161 Roma
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00144 Roma
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3000 Leuven
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69003 Lyon
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1431 Sofia
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00153 Roma
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83752 Bratislava
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105 56 ATHINA
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7100 Vejle
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00165 Roma
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20132 Milano
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1000 Ljubljana
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0283 Oslo
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1000 Bruxelles / Brussel
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LV-1079 Riga
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1075 Nicosia
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2 Dublin
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1007 Riga
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1050 Elsene
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5100 Namur
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1020 Wien
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51004 Tartu
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814 38 Bratislava
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75014 Paris
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10122 Tallinn
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231261 Pavia
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92120 Montrouge
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2006 Lefkosia
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06100 Ankara
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50122 Firenze
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08193 Cerdanyola Del Valles
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4 Dublin
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1000 Sofia
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8200 Aarhus
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69393 Lyon
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80539 MUNCHEN
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81377 Munchen
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75006 PARIS
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4365 Esch-Sur-Alzette
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1077 Budapest
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63225 Langen
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5020 Salzburg
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75006 Paris
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53100 Siena
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08003 Barcelona
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291 89 Kristianstad
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9052 ZWIJNAARDE - GENT
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6041 GOSSELIES
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9054 Dunedin
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151 85 Sodertaelje
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K1H 8L1 OTTAWA
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K1T 4H8 Ottawa Ontario
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53175 Bonn
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TS23 1LH Billingham
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H3A3C6 Montreal Quebec
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17170 AMER
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17170 Amer Girona
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V5Z 4H4 Vancouver, British Columbia
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51429 Bergisch Gladbach
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10001-2192 NEW YORK CITY
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6004 East Perth
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00128 Roma
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08970 Sant Joan Despi
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4070 Basel
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3012 Bern
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1070 Bruxelles / Brussel
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G1 2TB Glasgow
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E17 6DS LONDON
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BT7 1NN Belfast
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WC1E 6BT London
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CB2 1TN Cambridge
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