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UNCAN-CONNECT: Decentralized Collaborative Network for Advancing Cancer Research and Innovation

Descrizione del progetto

Rete collaborativa decentralizzata per migliorare la ricerca sul cancro

L’Europa, dove il cancro rappresenta la seconda causa di morte, conta un quarto dei casi di cancro nel mondo. Se non si interviene, i decessi per cancro nell’UE potrebbero aumentare di oltre il 24 % entro il 2035. Il progetto UNCAN-Connect, finanziato dall’UE, creerà una rete collaborativa decentralizzata per la ricerca sul cancro, concentrandosi su tumori pediatrici, neoplasie linfoidi, tumori del pancreas, delle ovaie, dei polmoni e della prostata. L’iniziativa realizzerà un quadro di governance e coinvolgerà diverse parti interessate, tra cui ricercatori, PMI e cittadini, facilitando al contempo l’archiviazione, l’accesso e la condivisione dei dati tra gli Stati membri. Questo impegno fa parte del cluster Understanding della Missione Cancro dell’UE, lanciato nel 2022.

Obiettivo

Europe still sees a quarter of the world's cancer cases each year, making cancer the second leading cause of death and illness in the region after cardiovascular diseases. Unless we take decisive action, lives lost to cancer in the EU are set to increase by more than 24% by 2035, making it the leading cause of death in the EU.
Cross-border collaboration can address this challenge by combining data from various modalities and sources, extracting meaningful insights to deepen our understanding of cancer. However, ethical, legal, and national regulations, along with data access processes, including differing interpretations of the EU GDPR create significant hurdles. Technical interoperability issues across European cancer RIs, and patients' and citizens' rights to control who uses their personal information and for what purposes further complicate data sharing. The project will provide European researchers, SMEs, and innovators with a decentralized collaborative network, “UNCAN-CONNECT,” for cancer research. It consists of both technical components, a governance, compliance, and operational framework based on the UNCAN blueprint, with the goal of operationalizing it. The objective is to facilitate access to cancer data, promote open science, and revolutionize cancer research and treatment by co-creating an open-source federation of federations platform. It will be developed using specific use cases focused on six major cancer types: Paediatric, Lymphoid malignancies, Pancreatic cancer, Ovarian, Lung, and Prostate cancers and active collaboration with a diverse range of stakeholders, including researchers, SMEs, industrial end users, and citizens. It will build on existing European RIs such as BBMRI as well as initiatives like EOSC4CANCER, CanSERV, EUCAIM, to enable seamless storage, access, sharing, and processing of data across Member States and associated countries. This approach will foster interoperability and collaboration, accelerating progress in cancer research. This action is part of the Cancer Mission clusters of projects 'Understanding' established in 2022.

Campo scientifico (EuroSciVoc)

Parole chiave

Programma(i)

Argomento(i)

Meccanismo di finanziamento

HORIZON-RIA - HORIZON Research and Innovation Actions

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(si apre in una nuova finestra) HORIZON-MISS-2024-CANCER-01

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Coordinatore

TARTU ULIKOOL
Contributo netto dell'UE
€ 1 366 250,00
Indirizzo
ULIKOOLI 18
51005 Tartu
Estonia
Regione
Eesti Eesti Lõuna-Eesti
Tipo di attività
Higher or Secondary Education Establishments
Collegamenti
Costo totale
€ 1 366 250,00

Partecipanti (49)

Partner (3)