Project description
Parent knowledge in paediatric healthcare
Epistemic injustices in neonatal and paediatric care arise when parents’ knowledge is dismissed. Although bioethics and social epistemology seek to develop new frameworks, these concepts often remain abstract. Supported by the Marie Skłodowska-Curie Actions programme, the PERCHILD project will enhance our understanding of parental knowledge by analysing parents’ narratives and experiences in shared decision-making. Combining theoretical analysis and qualitative research based on parents’ testimonies, it will first create a framework on epistemic care to provide evidence of how testimonial and hermeneutical injustices manifest in practice. The project will examine how parents experience illness during interactions with healthcare providers, highlighting that better care comes from teamwork. It will also show that parental preferences evolve within relational contexts.
Objective
Epistemic injustices in neonatal and paediatric care occur when the knowledge of parents is dismissed. While a central task for bioethics and social epistemology is to develop new theoretical frameworks, these concepts often remain abstract. This project bridges that gap by grounding philosophical inquiry in the lived realities of clinical practice. It aims to articulate an epistemologically informed account of parental knowledge by analysing parents’ narratives, using their direct experiences to manage the practical and philosophical challenges of shared decision-making. The project will first develop a conceptual framework on epistemic carers by combining theoretical analysis with qualitative research based on parents’ testimony. This empirical work is essential, as it will provide concrete evidence of how testimonial and hermeneutical injustices operate in practice. Second, I will extend the phenomenology of illness to parents and integrate it with the ontology of medical practice to explore how illness is enacted through parental-clinical interactions. Drawing on the logic of care, the project seeks to highlight how better care emerge from collaborative efforts. Finally, it reconsiders shared decision-making by showing that parental preferences are not fixed choices, but emerge within relational context.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- humanities philosophy, ethics and religion philosophy epistemology
- natural sciences computer and information sciences knowledge engineering ontology
- humanities philosophy, ethics and religion ethics ethical principles
- humanities other humanities library sciences
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
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HORIZON.1.2 - Marie Skłodowska-Curie Actions (MSCA)
MAIN PROGRAMME
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Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
HORIZON-TMA-MSCA-PF-EF - HORIZON TMA MSCA Postdoctoral Fellowships - European Fellowships
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Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
(opens in new window) HORIZON-MSCA-2025-PF
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Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.
28006 Madrid
Spain
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.