Leistungen
This manual will contain: • General description of the study design and the pilot composition • Define the inclusion and exclusion criteria • User recruitment methodology best practices • Ethical documentation preparation (Informed Consent Forms, Information Sheet, authorisations for collection and processing of personal data, authorisations for sensor tracking, etc.) • Definition of the standard user assessment • Schedule of the user assessment along the pilot • Summary of the minimum data to be collected by CAREGIVERSPRO-MMD • Schedule for data collection • Schedule of for data analysis cycles
Usability study reportThis report will summarize the feedback of the feasibility study, where 20 users (4 per pilot) will be provided with the CAREGIVERSPRO-MMD platform. They will be instructed on how to use the platform (as in normal pilot operation) but no previous assessment will be done and no data will be recorded from them except from the usability related data. The information collected during the weekly interaction with them will be reported in the deliverable and the extracted conclusions.
Dissemination Plan – second versionThe second version of the Dissemination Plan will include all updated data regarding the respective activities and a detailed scheduling for the second period of the project.
Dissemination Plan - first version.The Dissemination Plan will include among others a list of all communication tools utilized the main dissemination activities and a respective time plan as well as the main target audience groups
– User feedback and usability reportThis report will presents the outcomes of the assessments on how users interacted with CAREGIVERSPRO-MMD platform in order to see how user behaviour and interaction affect CAREGIVERSPRO-MMD efficacy. Improvements performed in the platform on the basis of these results will be presented if any. A summary of the user satisfaction survey and the user feedback and usability surveys will also be outlined.
Report on Advisory Board activitiesThis deliverable will report on the communication and coordination of the Advisory Board operations, meetings performed with AB and the overseeing task provided by the AB. It will include the evaluation reports produced by the AB. Three versions of this document will be produced yearly (M12,M24,M36).
Customisation guidance document - CAREGIVERSPRO-MMD 2nd versionThis report will summarize the outcomes of tasks T2.1 and new developments in posterior tasks in terms of user interface adaptations and functionality representation for the different users, based on the usability studies performed. This second version will include the experiences collected during the first phase of the pilot.
Customisation guidance document for CAREGIVERSPRO-MMD platform Screening and Interventions servicesThis report presents a technical manual for the configuration and manipulation of screening and intervention contents, taking into consideration the importance of representing the clinical, social and behavioural data in a meaningful way so that can be used by the health and social care professionals to better manage their patients’ care and evaluate CAREGIVERSPRO-MMD impact
Data Management Plan - first versionThe Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project confidentiality and privacy management anonymisation access rights legal compliance etc The present deliverable will be a preliminar version
Target Group DefinitionReport detailing the different target group composition, especially in the perspective of piloting, providing insight also to the business plan. This report will elaborate for instance the strategy of identification/definition of the target groups, the channel to map and engage them, the scenario definition up to the customer profiling.
PACT Analysis and Focus group reportsIn this deliverable will be reported the outcomes on usercentred design analysis using concepts of designforall and PACT analysis The results of the focus groups and interviews with users to adapt and improve the platform will also be reported
Dementia and psychiatric comorbidity symptoms assessment handbookReport including a thorough review of the state of the art on dementia and psychiatric comorbidity symptoms with a relation of the most used validated scales to assess them This review will be performed from a multidisciplinary and interdisciplinary point of view clinical psychological behavioural and social Identification of symptoms will be intended for both individuals as well as the related caregiver professional or not
Final Pilot analysis reportThis report presents the results of the full analysis of the data collected during the whole pilot in terms of progress/ performance indicators (Table 3.2c: Measurable Project Outcome Indicators) that capture changes in costs, treatment adherence, QoL, well-being for both patients and carers, cognitive impairment evolution for patients, etc
Mid-Pilot preliminary analysis reportThis report presents the results of the preliminar analysis of the data collected at mid-pilot stage in terms of progress/ performance indicators (Table 3.2c: Measurable Project Outcome Indicators) that capture changes in costs, treatment adherence, QoL, well-being for both patients and carers, cognitive impairment evolution for patients, etc
Customisation guidance document – CAREGIVERSPRO-MMD 1st versionThis report will summarize the outcomes of tasks T2.1 and new developments in posterior tasks in terms of user interface adaptations and functionality representation for the different users, based on the usability studies performed.
Data Management Plan - interim versionThe Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project. This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project: confidentiality and privacy management, anonymisation, access rights, legal compliance, etc. The present deliverable will be a mid project updated and more mature version.
Report on Legal and Regulatory frameworkThis deliverable will analyse the state of the art from the regulatory point of view: the current legal and regulatory framework with respect to all aspects concerning CAREGIVERSPRO-MMD, including health, social data, experimentation in computer science with human participants, and specifically, privacy and data protection. Ethics and social aspects will be strongly considered, as forming the framework for this analysis. Three versions of this document including legal and regulatory updates will be released yearly (M12,M24,M36).
Data Management Plan - final versionThe Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project. This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project: confidentiality and privacy management, anonymisation, access rights, legal compliance, etc. The present deliverable will be the final version including all the steps and considerations taken along the project.
Social Media PlanThe Social Media Plan (SMP) supports the Consortium in building, sharing with the team, and documenting a top down Social Media Strategy. The SMP will include: goals, target audience, core topics, editorial calendar, influencer engagement, forecast, and measurement in each community for each experiments’ country. The SMP will include a communications plan/policy that proactively addresses the use of social media and potential issues. Content of the SMP will be: • Target audience. • Educational objectives and explicit consideration of the function of the CAREGIVERSPRO-MMD platform such as degrees of access and interactivity planned. • Level of privacy and security required. • Issues of medical and social advice and redirection of patients/caregivers to appropriate venues. • Plans to deal with adverse events, including spam, negative comments, complaints, and unprofessional behaviour.
Accessibility ReportThis deliverable will report on the conditions that affect the ability and confidences of CAREGIVERSPROMMD endusers and person with mild cognitive impairment or mild to moderate dementia to use the CAREGIVERSPROMMD platform These conditions will include diseasespecific ones like confusion memory loss etc and generic ones mainly related to the older age like decreased eyesight or hearing impairment and the MMSE severity scale cognitive impairment Mild dementia moderate dementia We will add user characteristics such as culture socioeconomic and educational level We will also list the expected impact of each condition on use of CAREGIVERSPROMMD and adaption measure to improve accessibility
Ethical Approval ReportThis report will include the ethical approval documents of all the pilot sites and all the information provided to the ethical committees in the procedure.
Pages Accounts will be launched to the most widespread social media networks ie Facebook Twitter LinkedIn
CAREGIVERSPRO-MMD Web PortalThe CAREGIVERSPROMDD Web Portal will serve as a single point of access for all stakeholders interested in the project The portal will integrate promote and communicate latest evolutions on CAREGIVERSPROMDD findings activities and events including all project related publishable reports The web portal will be updated regularly
In this task all the tablet PCs to be provided to the end users will be prepared and properly formated including the CAREGIVERSPRO-MMD platform ready to use in a simple and intuitive way.
Veröffentlichungen
Autoren:
H. LINGIAH; L.MALHERBE; M.BERARD; T. SIMON; N.KADRI; A.BOUNACER; I.LANDRIN
Veröffentlicht in:
Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, Ausgabe 11, 2018
Herausgeber:
Société Française de Gérontologie et de Gériatrie
DOI:
10.5281/zenodo.2613642
Autoren:
BERARD Marie; BOUNACER Ali; LANDRIN Isabelle; MALHERBE Laetitia; KADRI Nadir; TOUFLET Myriam; SIMON Thibault
Veröffentlicht in:
Congrès des Unités de Soins, d'évaluation et de prise en charge Alzheimer, Ausgabe 12, 2016
Herausgeber:
https://zenodo.org/record/2936815
DOI:
10.5281/zenodo.2936815
Autoren:
Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K.
Veröffentlicht in:
26th Alzheimer Europe conference, 2016
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.826713
Autoren:
Kate Cunnah; Emma Wolverson; Rosie Dunn; David Howe; Kevin Paulson; Rebecca Platt; Jonathan Thorpe; Caroline White
Veröffentlicht in:
28th Alzheimer Europe conference, 2018
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.2994359
Autoren:
Emma Wolverson; Rosie Dunn; David Howe; Kate Cunnah; Rebecca Platt; Jonathan Thorpe; Caroline White; Kevin Paulson
Veröffentlicht in:
28th Alzheimer Europe conference, 2018
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.2994639
Autoren:
David Howe; Jonathan Thorpe; Rosie Dunn; Kate Cunnah; Rebecca Platt; Caroline White; Paraskevi Zafeiridi; Konstantinos Votis; Ioannis Pakiokas; Dimitrios Tzovaras; Kevin Paulson; Emma Wolverson
Veröffentlicht in:
28th Alzheimer Europe conference, Ausgabe 21, 2018
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.2994013
Autoren:
Evdoxia Eirini Lithoxoidou, Ioannis Paliokas, Ioannis Gotsos, Stelios Krinidis, Athanasios Tsakiris, Konstantinos Votis, Dimitrios Tzovaras
Veröffentlicht in:
Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference on - PETRA '18, 2018, Seite(n) 482-489, ISBN 9781-450363907
Herausgeber:
ACM Press
DOI:
10.1145/3197768.3201561
Autoren:
Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.
Veröffentlicht in:
26th Alzheimer Europe conference, 2016
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.826063
Autoren:
Paliokas Ioannis; Tzallas Alexandros; Katertsidis Nikolaos; Votis Konstantinos; Tzovaras Dimitrios
Veröffentlicht in:
17th IEEE International Conference on BioInformatics and BioEngineering, 2017
Herausgeber:
IEEE
DOI:
10.5281/zenodo.2994967
Autoren:
Vassilis Solachidis, Ioannis Paliokas, Nicholas Vretos, Konstantinos Votis, Ulises Cortés, Dimitrios Tzovaras
Veröffentlicht in:
Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference on - PETRA '18, 2018, Seite(n) 449-454, ISBN 9781-450363907
Herausgeber:
ACM Press
DOI:
10.1145/3197768.3201556
Autoren:
Catena, J.; Rovira, E.; Pardo, C.; Martinez, M.; Riera, C.; Quintana, M.; Ruiz, J.; Girones, X.
Veröffentlicht in:
23rd National Congress of the Spanish Psychogeriatrics Society, Ausgabe 15, 2017
Herausgeber:
Spanish Psychogeriatrics Society
DOI:
10.5281/zenodo.826728
Autoren:
Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.
Veröffentlicht in:
26th Alzheimer Europe conference, Ausgabe 13, 2016
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.826054
Autoren:
Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.; White, C.
Veröffentlicht in:
32nd International Conference of Alzheimer’s Disease International, Ausgabe 13, 2017, Seite(n) 634
Herausgeber:
Alzheimer’s Disease International (ADI)
DOI:
10.5281/zenodo.826743
Autoren:
BERARD Marie; MALHERBE Laetitia; SIMON Thibaut; TOUFLET Myriam; BOUNACER Ali; KADRI Nadir; LANDRIN Isabelle
Veröffentlicht in:
36è Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, Ausgabe 16, 2016
Herausgeber:
Société Française de Gérontologie et de Gériatrie
DOI:
10.5281/zenodo.2935689
Autoren:
Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K.
Veröffentlicht in:
26th Alzheimer Europe Conference, Ausgabe 15, 2016
Herausgeber:
Alzheimer Europe
DOI:
10.5281/zenodo.826045
Autoren:
ZAFEIRIDI Paraskevi, DUNN Rosie, PAULSON Kevin, WOLVERSON Emma, THORPE Jonathan
Veröffentlicht in:
27th Alzheimer Europe Conference, 2017
Herausgeber:
Alzheimer Europe
Autoren:
ZAFEIRIDI Paraskevi, DUNN Rosie, WOLVERSON Emma, PAULSON Kevin, WHITE Caroline
Veröffentlicht in:
27th Alzheimer Europe Conference, 2017
Herausgeber:
Alzheimer Europe
Autoren:
L. MALHERBE1, H. LINGIAH1,2, T. SIMON2, M. BERARD1, L. MALHERBE1, A. BOUNACER3, N. KADRI1, I. LANDRIN1
Veröffentlicht in:
Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, 2018
Herausgeber:
Société Française de Gérontologie et de Gériatrie
Autoren:
A. T. Tzallas, N. Katertsidis, K. Glykos, S. Segkouli, K. Votis, I. Paliokas, D. Tzovaras, C. Barrué, U. Cortés
Veröffentlicht in:
PETRA '18 Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference, Ausgabe 476-481, 2018
Herausgeber:
ACM Press
Autoren:
PAULSON Kevin, WOLVERSON Emma, DUNN Rosie, THORPE Jonathan, ZAFEIRIDI Paraskevi, HOWE David, OXTOBY Katie, WHITE Caroline, PLATT Rebecca, VOTIS Konstantinos, PAKIOKAS Ioannis, TZOVARAS Dimitrios
Veröffentlicht in:
28th Alzheimer Europe Conference, Ausgabe PO.5.15, 2018
Herausgeber:
Alzheimer Europe
Autoren:
L. MALHERBE, H. LINGIAH, T. SIMON, M. BERARD, A. BOUNACER, N. KADRI, I. LANDRIN
Veröffentlicht in:
38th national congress of the Société Française de de Gériatrie et Gérontologie, 2018
Herausgeber:
Société Française de de Gériatrie et Gérontologie
Autoren:
L. Oliva-Felipe, C. Barrue, A. Cortes, E. Wolverson, M. Antomarini, K. Votis, I. Paliokas, U. Cortes
Veröffentlicht in:
PETRA '18 Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference, 2018, Seite(n) 462-469, ISBN 978-1-4503-6390-7
Herausgeber:
ACM
Autoren:
PAULSON Kevin, WOLVERSON Emma
Veröffentlicht in:
27th Alzheimer’s Europe Conference, 2017
Herausgeber:
Alzheimer’s Europe
Autoren:
Paliokas I., Katertsidis N., Glykos K., Tzallas A., Votis K., Tzovaras D.
Veröffentlicht in:
3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND), 2019
Herausgeber:
Alzheimer Hellas
Autoren:
PLATT Rebecca, WOLVERSON Emma, DUNN Rosie, HOWE David, OXTOBY Katie, THORPE Jonathan, PAULSON Kevin, WHITE Caroline
Veröffentlicht in:
28th Alzheimer Europe Conference, Ausgabe PO.2.20, 2018
Herausgeber:
Alzheimer Europe
Autoren:
Tzallas A., Katertsidis N., Paliokas I., Glykos K., Votis K., Tzovaras D.
Veröffentlicht in:
3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND), 2019
Herausgeber:
Alzheimer Hellas
Autoren:
Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson
Veröffentlicht in:
Poster in 26th Alzheimer Europe conference, Ausgabe PO3.29 November 2016, 2016
Herausgeber:
Alzheimer Europe
Autoren:
Zafeiridi P., Dunn R., Wolverson E., Paulson K.
Veröffentlicht in:
Oral presentation in 26th Alzheimer Europe Conference, Ausgabe November 2016, 2016
Herausgeber:
Alzheimer Europe
Autoren:
Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson
Veröffentlicht in:
Poster in 26th Alzheimer Europe conference, Ausgabe PO3.28 November 2016, 2016
Herausgeber:
Alzheimer Europe
Autoren:
Zafeiridi P., Dunn R., Wolverson E., Paulson K.
Veröffentlicht in:
Poster in 26th Alzheimer Europe Conference, Ausgabe PO3.82 November 2016, 2016
Herausgeber:
Alzheimer Europe
Autoren:
Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD
Veröffentlicht in:
Oral presentation in 32nd International Conference of Alzheimer’s Disease International, Ausgabe April 2017, 2017, Seite(n) 104
Herausgeber:
Alzheimer’s Disease International (ADI)
Autoren:
Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD
Veröffentlicht in:
32nd International Conference of Alzheimer’s Disease International, Ausgabe Poster presentation in 32nd International Conference of Alzheimer’s Disease International, 2017
Herausgeber:
Alzheimer’s Disease International
Autoren:
Catena, J., Rovira, E., Pardo, C., Martinez, M., Riera, C., Quintana, M., Ruiz, J., Girones, X.
Veröffentlicht in:
23rd National Congress of the Spanish Psychogeriatrics Society, 2017
Herausgeber:
Spanish Psychogeriatrics Society
Autoren:
Zafeiridi, P.; Paulson, K.; Wolverson, E.; White, C.; Dunn, R.; Antomarini, M.; Cortés, U.; Barruè, C.; Paliokas, I.; García, X.G.; Landrin-Dutot, I.; Malherbe, L.
Veröffentlicht in:
JMIR Research Protocols, Ausgabe 8, 2019, ISSN 1929-0748
Herausgeber:
JMIR
DOI:
10.5281/zenodo.825776
Autoren:
P. Zafeiridi, K. Paulson, R. Dunn, E. Wolverson, C. White, J. A. Thorpe, M. Antomarini, F. Cesaroni, F. Scocchera, I. Landrin-Dutot, L. Malherbe, H. Lingiah, M. Bérard, X. Gironès, M. Quintana, U. Cortés, C. Barrué, A. Cortés, I. Paliokas, K. Votis, D. Tzovaras,
Veröffentlicht in:
JMIR Formative Research, Ausgabe Vol.2, Ausgabe 1, e4, 2018, Seite(n) 16, ISSN 2561-326X
Herausgeber:
JMIR
Autoren:
Barrué C., Cortés A., Cortés U., Tétard F., Gironès X.
Veröffentlicht in:
Computación y Sistemas, Ausgabe Vol 21, No 1 2017, 2017, Seite(n) 23-33, ISSN 2007-9737
Herausgeber:
Computación y Sistemas
DOI:
10.13053/CyS-21-1-2580
Autoren:
Emma Wolverson, Caroline White and Rosie Dunn
Veröffentlicht in:
2019, ISBN 1785-924176
Herausgeber:
Jessica Kingsley Publishers
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