Children's Palliative care Outcome Scale

Project Information

C-POS

Grant agreement ID: 772635

DOI

10.3030/772635

Project closed

EC signature date 20 April 2018

Start date 1 September 2018

End date 31 August 2024

Funded under

• EXCELLENT SCIENCE - European Research Council (ERC)

Total cost

€ 1 799 820,00

EU contribution

€ 1 799 820,00

Coordinated by

KING'S COLLEGE LONDON
United Kingdom

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Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Publications

Peer reviewed articles (10)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Author(s): Coombes, L; Braybrook, Debbie; Roach, Anna; Scott, Hannah; Hardardottir, Daney; Bristowe, Katherine; Ellis-Smith, C; Bluebond-Langner, Myra; Fraser, Lorna Katharine; Downing, Julia; Farsides, Bobbie; Murtagh, Fliss E M; Harding, Richard
Published in: European Journal of Pediatrics, Issue 181/10, 2022, Page(s) 3739–3752, ISSN 0340-6199
Publisher: Springer Verlag
DOI: 10.1007/s00431-022-04566-w

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Author(s): Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Published in: The Patient - Patient-Centered Outcomes Research, Issue 16, 2023, Page(s) 473-483, ISSN 1178-1653
Publisher: Adis International Ltd.
DOI: 10.1007/s40271-023-00627-w

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Author(s): L. Coombes, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner, L. Chambers, F. E. M. Murtagh, R. Harding
Published in: Quality of Life Research, Issue 30, 2023, Page(s) 1803-1832, ISSN 0962-9343
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s11136-021-02814-4

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Author(s): Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith, Richard Harding
Published in: Palliative Medicine, Issue 38, 2024, Page(s) 471-484, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163241234797

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Author(s): Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, null null, AK Anderson, Jo Bayly, Lydia Bate, Myra Bluebond-Langner, Debbie Box, Katherine Bristowe, Rachel Burman, Lizzie Chambers, Lucy Coombes, Alan Craft, Fin Craig, Aislinn Delaney, Jonathan Downie, Julia Downing, Bobbie Farsides, Sara Fovargue, Lorna Fraser, Jane Green, Jay Halbert, Julie Hall-Carmi
Published in: Health and Quality of Life Outcomes, Issue 21, 2023, Page(s) 644-659, ISSN 1477-7525
Publisher: BioMed Central
DOI: 10.1186/s12955-023-02143-9

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Author(s): Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss EM Murtagh, Bobbie Farsides, Lorna K Fraser, Myra Bluebond-Langner, Richard Harding
Published in: Palliative Medicine, Issue 37, 2024, Page(s) 856-865, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163231165101

COVID-19: Impact on Pediatric Palliative Care

Author(s): Hannah May Scott; Lucy Coombes; Debbie Braybrook; Anna Roach; Daney Harðardóttir; Katherine Bristowe; Clare Ellis-Smith; Irene Higginson; Wei Gao; Myra Bluebond-Langner; Bobbie Farsides; Fliss EM Murtagh; Lorna K Fraser; Richard Harding
Published in: Journal of Pain and Symptom Management, Issue 64/1, 2022, Page(s) E1-E5, ISSN 0885-3924
Publisher: Elsevier BV
DOI: 10.1016/j.jpainsymman.2022.02.330

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Author(s): Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Published in: Palliative Medicine, Issue 38, 2024, Page(s) 644-659, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163241248735

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Author(s): Katherine Bristowe, Debbie Braybrook, Hannah M Scott, Lucy Coombes, Daney Harðardóttir, Anna Roach, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna Fraser, Julia Downing, Fliss Murtagh, Richard Harding
Published in: Palliative Medicine, Issue 38, 2024, Page(s) 379-388, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163241233977

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Author(s): Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Published in: Palliative Medicine, Issue 37, 2024, Page(s) 1509-1519, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163231205126

Non-peer reviewed articles (1)

Knowledge, attitudes and beliefs about paediatric palliative care

Author(s): Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Inez Gaczkowska, Richard Harding
Published in: Annals of Palliative Medicine, Issue 12, 2023, Page(s) 10-12, ISSN 2224-5820
Publisher: Annals of Palliative Medicine
DOI: 10.21037/apm-22-1326