Children's Palliative care Outcome Scale

Información del proyecto

C-POS

Identificador del acuerdo de subvención: 772635

DOI

10.3030/772635

Proyecto cerrado

Fecha de la firma de la CE 20 Abril 2018

Fecha de inicio 1 Septiembre 2018

Fecha de finalización 31 Agosto 2024

Financiado con arreglo a

• EXCELLENT SCIENCE - European Research Council (ERC)

Coste total

€ 1 799 820,00

Aportación de la UE

€ 1 799 820,00

Coordinado por

KING'S COLLEGE LONDON
United Kingdom

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Publicaciones

Peer reviewed articles (10)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Autores: Coombes, L; Braybrook, Debbie; Roach, Anna; Scott, Hannah; Hardardottir, Daney; Bristowe, Katherine; Ellis-Smith, C; Bluebond-Langner, Myra; Fraser, Lorna Katharine; Downing, Julia; Farsides, Bobbie; Murtagh, Fliss E M; Harding, Richard
Publicado en: European Journal of Pediatrics, Edición 181/10, 2022, Página(s) 3739–3752, ISSN 0340-6199
Editor: Springer Verlag
DOI: 10.1007/s00431-022-04566-w

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Autores: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Publicado en: The Patient - Patient-Centered Outcomes Research, Edición 16, 2023, Página(s) 473-483, ISSN 1178-1653
Editor: Adis International Ltd.
DOI: 10.1007/s40271-023-00627-w

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Autores: L. Coombes, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner, L. Chambers, F. E. M. Murtagh, R. Harding
Publicado en: Quality of Life Research, Edición 30, 2023, Página(s) 1803-1832, ISSN 0962-9343
Editor: Kluwer Academic Publishers
DOI: 10.1007/s11136-021-02814-4

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Autores: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith, Richard Harding
Publicado en: Palliative Medicine, Edición 38, 2024, Página(s) 471-484, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163241234797

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Autores: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, null null, AK Anderson, Jo Bayly, Lydia Bate, Myra Bluebond-Langner, Debbie Box, Katherine Bristowe, Rachel Burman, Lizzie Chambers, Lucy Coombes, Alan Craft, Fin Craig, Aislinn Delaney, Jonathan Downie, Julia Downing, Bobbie Farsides, Sara Fovargue, Lorna Fraser, Jane Green, Jay Halbert, Julie Hall-Carmi
Publicado en: Health and Quality of Life Outcomes, Edición 21, 2023, Página(s) 644-659, ISSN 1477-7525
Editor: BioMed Central
DOI: 10.1186/s12955-023-02143-9

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Autores: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss EM Murtagh, Bobbie Farsides, Lorna K Fraser, Myra Bluebond-Langner, Richard Harding
Publicado en: Palliative Medicine, Edición 37, 2024, Página(s) 856-865, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163231165101

COVID-19: Impact on Pediatric Palliative Care

Autores: Hannah May Scott; Lucy Coombes; Debbie Braybrook; Anna Roach; Daney Harðardóttir; Katherine Bristowe; Clare Ellis-Smith; Irene Higginson; Wei Gao; Myra Bluebond-Langner; Bobbie Farsides; Fliss EM Murtagh; Lorna K Fraser; Richard Harding
Publicado en: Journal of Pain and Symptom Management, Edición 64/1, 2022, Página(s) E1-E5, ISSN 0885-3924
Editor: Elsevier BV
DOI: 10.1016/j.jpainsymman.2022.02.330

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Autores: Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Publicado en: Palliative Medicine, Edición 38, 2024, Página(s) 644-659, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163241248735

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Autores: Katherine Bristowe, Debbie Braybrook, Hannah M Scott, Lucy Coombes, Daney Harðardóttir, Anna Roach, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna Fraser, Julia Downing, Fliss Murtagh, Richard Harding
Publicado en: Palliative Medicine, Edición 38, 2024, Página(s) 379-388, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163241233977

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Autores: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Publicado en: Palliative Medicine, Edición 37, 2024, Página(s) 1509-1519, ISSN 0269-2163
Editor: SAGE Publications
DOI: 10.1177/02692163231205126

Non-peer reviewed articles (1)

Knowledge, attitudes and beliefs about paediatric palliative care

Autores: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Inez Gaczkowska, Richard Harding
Publicado en: Annals of Palliative Medicine, Edición 12, 2023, Página(s) 10-12, ISSN 2224-5820
Editor: Annals of Palliative Medicine
DOI: 10.21037/apm-22-1326