Children's Palliative care Outcome Scale

Informazioni relative al progetto

C-POS

ID dell’accordo di sovvenzione: 772635

DOI

10.3030/772635

Progetto chiuso

Data della firma CE 20 Aprile 2018

Data di avvio 1 Settembre 2018

Data di completamento 31 Agosto 2024

Finanziato da

• EXCELLENT SCIENCE - European Research Council (ERC)

Costo totale

€ 1 799 820,00

Contributo UE

€ 1 799 820,00

Coordinato da

KING'S COLLEGE LONDON
United Kingdom

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Pubblicazioni

Peer reviewed articles (10)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Autori: Coombes, L; Braybrook, Debbie; Roach, Anna; Scott, Hannah; Hardardottir, Daney; Bristowe, Katherine; Ellis-Smith, C; Bluebond-Langner, Myra; Fraser, Lorna Katharine; Downing, Julia; Farsides, Bobbie; Murtagh, Fliss E M; Harding, Richard
Pubblicato in: European Journal of Pediatrics, Numero 181/10, 2022, Pagina/e 3739–3752, ISSN 0340-6199
Editore: Springer Verlag
DOI: 10.1007/s00431-022-04566-w

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Autori: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Pubblicato in: The Patient - Patient-Centered Outcomes Research, Numero 16, 2023, Pagina/e 473-483, ISSN 1178-1653
Editore: Adis International Ltd.
DOI: 10.1007/s40271-023-00627-w

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Autori: L. Coombes, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner, L. Chambers, F. E. M. Murtagh, R. Harding
Pubblicato in: Quality of Life Research, Numero 30, 2023, Pagina/e 1803-1832, ISSN 0962-9343
Editore: Kluwer Academic Publishers
DOI: 10.1007/s11136-021-02814-4

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Autori: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith, Richard Harding
Pubblicato in: Palliative Medicine, Numero 38, 2024, Pagina/e 471-484, ISSN 0269-2163
Editore: SAGE Publications
DOI: 10.1177/02692163241234797

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Autori: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, null null, AK Anderson, Jo Bayly, Lydia Bate, Myra Bluebond-Langner, Debbie Box, Katherine Bristowe, Rachel Burman, Lizzie Chambers, Lucy Coombes, Alan Craft, Fin Craig, Aislinn Delaney, Jonathan Downie, Julia Downing, Bobbie Farsides, Sara Fovargue, Lorna Fraser, Jane Green, Jay Halbert, Julie Hall-Carmi
Pubblicato in: Health and Quality of Life Outcomes, Numero 21, 2023, Pagina/e 644-659, ISSN 1477-7525
Editore: BioMed Central
DOI: 10.1186/s12955-023-02143-9

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Autori: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss EM Murtagh, Bobbie Farsides, Lorna K Fraser, Myra Bluebond-Langner, Richard Harding
Pubblicato in: Palliative Medicine, Numero 37, 2024, Pagina/e 856-865, ISSN 0269-2163
Editore: SAGE Publications
DOI: 10.1177/02692163231165101

COVID-19: Impact on Pediatric Palliative Care

Autori: Hannah May Scott; Lucy Coombes; Debbie Braybrook; Anna Roach; Daney Harðardóttir; Katherine Bristowe; Clare Ellis-Smith; Irene Higginson; Wei Gao; Myra Bluebond-Langner; Bobbie Farsides; Fliss EM Murtagh; Lorna K Fraser; Richard Harding
Pubblicato in: Journal of Pain and Symptom Management, Numero 64/1, 2022, Pagina/e E1-E5, ISSN 0885-3924
Editore: Elsevier BV
DOI: 10.1016/j.jpainsymman.2022.02.330

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Autori: Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Pubblicato in: Palliative Medicine, Numero 38, 2024, Pagina/e 644-659, ISSN 0269-2163
Editore: SAGE Publications
DOI: 10.1177/02692163241248735

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Autori: Katherine Bristowe, Debbie Braybrook, Hannah M Scott, Lucy Coombes, Daney Harðardóttir, Anna Roach, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna Fraser, Julia Downing, Fliss Murtagh, Richard Harding
Pubblicato in: Palliative Medicine, Numero 38, 2024, Pagina/e 379-388, ISSN 0269-2163
Editore: SAGE Publications
DOI: 10.1177/02692163241233977

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Autori: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Pubblicato in: Palliative Medicine, Numero 37, 2024, Pagina/e 1509-1519, ISSN 0269-2163
Editore: SAGE Publications
DOI: 10.1177/02692163231205126

Non-peer reviewed articles (1)

Knowledge, attitudes and beliefs about paediatric palliative care

Autori: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Inez Gaczkowska, Richard Harding
Pubblicato in: Annals of Palliative Medicine, Numero 12, 2023, Pagina/e 10-12, ISSN 2224-5820
Editore: Annals of Palliative Medicine
DOI: 10.21037/apm-22-1326