Children's Palliative care Outcome Scale

Informations projet

C-POS

N° de convention de subvention: 772635

DOI

10.3030/772635

Projet clôturé

Date de signature de la CE 20 Avril 2018

Date de début 1 Septembre 2018

Date de fin 31 Août 2024

Financé au titre de

• EXCELLENT SCIENCE - European Research Council (ERC)

Coût total

€ 1 799 820,00

Contribution de l’UE

€ 1 799 820,00

Coordonné par

KING'S COLLEGE LONDON
United Kingdom

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Publications

Peer reviewed articles (10)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Auteurs: Coombes, L; Braybrook, Debbie; Roach, Anna; Scott, Hannah; Hardardottir, Daney; Bristowe, Katherine; Ellis-Smith, C; Bluebond-Langner, Myra; Fraser, Lorna Katharine; Downing, Julia; Farsides, Bobbie; Murtagh, Fliss E M; Harding, Richard
Publié dans: European Journal of Pediatrics, Numéro 181/10, 2022, Page(s) 3739–3752, ISSN 0340-6199
Éditeur: Springer Verlag
DOI: 10.1007/s00431-022-04566-w

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Auteurs: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Publié dans: The Patient - Patient-Centered Outcomes Research, Numéro 16, 2023, Page(s) 473-483, ISSN 1178-1653
Éditeur: Adis International Ltd.
DOI: 10.1007/s40271-023-00627-w

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Auteurs: L. Coombes, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner, L. Chambers, F. E. M. Murtagh, R. Harding
Publié dans: Quality of Life Research, Numéro 30, 2023, Page(s) 1803-1832, ISSN 0962-9343
Éditeur: Kluwer Academic Publishers
DOI: 10.1007/s11136-021-02814-4

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Auteurs: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith, Richard Harding
Publié dans: Palliative Medicine, Numéro 38, 2024, Page(s) 471-484, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163241234797

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Auteurs: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, null null, AK Anderson, Jo Bayly, Lydia Bate, Myra Bluebond-Langner, Debbie Box, Katherine Bristowe, Rachel Burman, Lizzie Chambers, Lucy Coombes, Alan Craft, Fin Craig, Aislinn Delaney, Jonathan Downie, Julia Downing, Bobbie Farsides, Sara Fovargue, Lorna Fraser, Jane Green, Jay Halbert, Julie Hall-Carmi
Publié dans: Health and Quality of Life Outcomes, Numéro 21, 2023, Page(s) 644-659, ISSN 1477-7525
Éditeur: BioMed Central
DOI: 10.1186/s12955-023-02143-9

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Auteurs: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss EM Murtagh, Bobbie Farsides, Lorna K Fraser, Myra Bluebond-Langner, Richard Harding
Publié dans: Palliative Medicine, Numéro 37, 2024, Page(s) 856-865, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163231165101

COVID-19: Impact on Pediatric Palliative Care

Auteurs: Hannah May Scott; Lucy Coombes; Debbie Braybrook; Anna Roach; Daney Harðardóttir; Katherine Bristowe; Clare Ellis-Smith; Irene Higginson; Wei Gao; Myra Bluebond-Langner; Bobbie Farsides; Fliss EM Murtagh; Lorna K Fraser; Richard Harding
Publié dans: Journal of Pain and Symptom Management, Numéro 64/1, 2022, Page(s) E1-E5, ISSN 0885-3924
Éditeur: Elsevier BV
DOI: 10.1016/j.jpainsymman.2022.02.330

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Auteurs: Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Publié dans: Palliative Medicine, Numéro 38, 2024, Page(s) 644-659, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163241248735

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Auteurs: Katherine Bristowe, Debbie Braybrook, Hannah M Scott, Lucy Coombes, Daney Harðardóttir, Anna Roach, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna Fraser, Julia Downing, Fliss Murtagh, Richard Harding
Publié dans: Palliative Medicine, Numéro 38, 2024, Page(s) 379-388, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163241233977

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Auteurs: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Publié dans: Palliative Medicine, Numéro 37, 2024, Page(s) 1509-1519, ISSN 0269-2163
Éditeur: SAGE Publications
DOI: 10.1177/02692163231205126

Non-peer reviewed articles (1)

Knowledge, attitudes and beliefs about paediatric palliative care

Auteurs: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Inez Gaczkowska, Richard Harding
Publié dans: Annals of Palliative Medicine, Numéro 12, 2023, Page(s) 10-12, ISSN 2224-5820
Éditeur: Annals of Palliative Medicine
DOI: 10.21037/apm-22-1326