Children's Palliative care Outcome Scale

Informacje na temat projektu

C-POS

Identyfikator umowy o grant: 772635

DOI

10.3030/772635

Projekt został zamknięty

Data podpisania przez KE 20 Kwietnia 2018

Data rozpoczęcia 1 Września 2018

Data zakończenia 31 Sierpnia 2024

Finansowanie w ramach

• EXCELLENT SCIENCE - European Research Council (ERC)

Koszt całkowity

€ 1 799 820,00

Wkład UE

€ 1 799 820,00

Koordynowany przez

KING'S COLLEGE LONDON
United Kingdom

CORDIS oferuje możliwość skorzystania z odnośników do publicznie dostępnych publikacji i rezultatów projektów realizowanych w ramach programów ramowych HORYZONT.

Odnośniki do rezultatów i publikacji związanych z poszczególnymi projektami 7PR, a także odnośniki do niektórych konkretnych kategorii wyników, takich jak zbiory danych i oprogramowanie, są dynamicznie pobierane z systemu OpenAIRE .

Publikacje

Peer reviewed articles (10)

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

Autorzy: Coombes, L; Braybrook, Debbie; Roach, Anna; Scott, Hannah; Hardardottir, Daney; Bristowe, Katherine; Ellis-Smith, C; Bluebond-Langner, Myra; Fraser, Lorna Katharine; Downing, Julia; Farsides, Bobbie; Murtagh, Fliss E M; Harding, Richard
Opublikowane w: European Journal of Pediatrics, Numer 181/10, 2022, Strona(/y) 3739–3752, ISSN 0340-6199
Wydawca: Springer Verlag
DOI: 10.1007/s00431-022-04566-w

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Autorzy: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh, Richard Harding
Opublikowane w: The Patient - Patient-Centered Outcomes Research, Numer 16, 2023, Strona(/y) 473-483, ISSN 1178-1653
Wydawca: Adis International Ltd.
DOI: 10.1007/s40271-023-00627-w

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Autorzy: L. Coombes, K. Bristowe, C. Ellis-Smith, J. Aworinde, L. K. Fraser, J. Downing, M. Bluebond-Langner, L. Chambers, F. E. M. Murtagh, R. Harding
Opublikowane w: Quality of Life Research, Numer 30, 2023, Strona(/y) 1803-1832, ISSN 0962-9343
Wydawca: Kluwer Academic Publishers
DOI: 10.1007/s11136-021-02814-4

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

Autorzy: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Anna Roach, Katherine Bristowe, Myra Bluebond-Langner, Lorna K Fraser, Julia Downing, Bobbie Farsides, Fliss EM Murtagh, Clare Ellis-Smith, Richard Harding
Opublikowane w: Palliative Medicine, Numer 38, 2024, Strona(/y) 471-484, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163241234797

Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

Autorzy: Hannah May Scott, Debbie Braybrook, Daney Harðardóttir, Clare Ellis-Smith, Richard Harding, null null, AK Anderson, Jo Bayly, Lydia Bate, Myra Bluebond-Langner, Debbie Box, Katherine Bristowe, Rachel Burman, Lizzie Chambers, Lucy Coombes, Alan Craft, Fin Craig, Aislinn Delaney, Jonathan Downie, Julia Downing, Bobbie Farsides, Sara Fovargue, Lorna Fraser, Jane Green, Jay Halbert, Julie Hall-Carmi
Opublikowane w: Health and Quality of Life Outcomes, Numer 21, 2023, Strona(/y) 644-659, ISSN 1477-7525
Wydawca: BioMed Central
DOI: 10.1186/s12955-023-02143-9

Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study

Autorzy: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Fliss EM Murtagh, Bobbie Farsides, Lorna K Fraser, Myra Bluebond-Langner, Richard Harding
Opublikowane w: Palliative Medicine, Numer 37, 2024, Strona(/y) 856-865, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163231165101

COVID-19: Impact on Pediatric Palliative Care

Autorzy: Hannah May Scott; Lucy Coombes; Debbie Braybrook; Anna Roach; Daney Harðardóttir; Katherine Bristowe; Clare Ellis-Smith; Irene Higginson; Wei Gao; Myra Bluebond-Langner; Bobbie Farsides; Fliss EM Murtagh; Lorna K Fraser; Richard Harding
Opublikowane w: Journal of Pain and Symptom Management, Numer 64/1, 2022, Strona(/y) E1-E5, ISSN 0885-3924
Wydawca: Elsevier BV
DOI: 10.1016/j.jpainsymman.2022.02.330

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Autorzy: Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Opublikowane w: Palliative Medicine, Numer 38, 2024, Strona(/y) 644-659, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163241248735

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition

Autorzy: Katherine Bristowe, Debbie Braybrook, Hannah M Scott, Lucy Coombes, Daney Harðardóttir, Anna Roach, Clare Ellis-Smith, Myra Bluebond-Langner, Lorna Fraser, Julia Downing, Fliss Murtagh, Richard Harding
Opublikowane w: Palliative Medicine, Numer 38, 2024, Strona(/y) 379-388, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163241233977

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation

Autorzy: Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Hannah May Scott, Katherine Bristowe, Clare Ellis-Smith, Lorna K Fraser, Julia Downing, Myra Bluebond-Langner, Fliss EM Murtagh, Richard Harding
Opublikowane w: Palliative Medicine, Numer 37, 2024, Strona(/y) 1509-1519, ISSN 0269-2163
Wydawca: SAGE Publications
DOI: 10.1177/02692163231205126

Non-peer reviewed articles (1)

Knowledge, attitudes and beliefs about paediatric palliative care

Autorzy: Hannah May Scott, Lucy Coombes, Debbie Braybrook, Daney Harðardóttir, Inez Gaczkowska, Richard Harding
Opublikowane w: Annals of Palliative Medicine, Numer 12, 2023, Strona(/y) 10-12, ISSN 2224-5820
Wydawca: Annals of Palliative Medicine
DOI: 10.21037/apm-22-1326