Patient Centered Connected Health Model of Care for Huntingtons Disease

Project Information

CareHD

Grant agreement ID: 777991

DOI 10.3030/777991

Project closed

EC signature date 24 November 2017

Start date 1 July 2018

End date 31 October 2023

Funded under

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Total cost € 828 000,00

EU contribution € 828 000,00

Coordinated by

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Ireland

Deliverables

Documents, reports (10)

Establishment of Integration Working Group
Ethics and data protection protocol
Administration protocol and tracker
Management protocol and project tracker
Impact Strategy

Develop Impact Strategy

Integration framework strategy
Networking and relationship strategy
Exemplar patient Vignettes

Deevelopemnt of exemplar patient Vignettes

Dissemination Advisory Group (DAG)

Establishment of Dissemination Advisory Group (DAG)

Care pathway methodology protocol

Development of the care pathway methodology protocol

Publications

Monographic books (2)

Time-Driven Activity-Based Costing: A Step-by-Step Guide to Collecting Patient-Level Health Care Costs

Author(s): Etáin Quigley, Shane O’Donnell, Gerardine Doyle
Published in: SAGE Research Methods, 2020, ISBN 9781529744248
Publisher: SAGE Research Methods
DOI: 10.4135/9781529744248

Vignette-Based Interviewing in the Health Care Space: A Robust Method of Vignette Development

Author(s): Etain Quigley, Anne-Sophie Michel, Gerardine Doyle
Published in: SAGE Research Methods Cases: Medicine and Health, Issue 2020, 2020, Page(s) Online, ISBN 9781529735970
Publisher: SAGE
DOI: 10.4135/9781529735970

Peer reviewed articles (2)

Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

Author(s): Etain Quigley, Ingrid Holme, David M. Doyle, Aileen K. Ho, Eamonn Ambrose, Katie Kirkwood & Gerardine Doyle
Published in: Life Sciences, Society and Policy, Issue 17, 2021, Page(s) Article number: 9, ISSN 2195-7819
Publisher: BioMed Central Ltd, Part of Springer Nature
DOI: 10.1186/s40504-021-00118-6

Model for Quantitative Estimation of Functionality Influence on the Final Value of a Software Product

Author(s): Gregor Molan, Gregor Dolinar, Jovan Bojkovski, Radu Prodan, Andrea Borghesi, Martin Molan
Published in: IEEE Access, Issue vol. 11, 2023, Page(s) 115599-115616, ISSN 2169-3536
Publisher: Institute of Electrical and Electronics Engineers Inc.
DOI: 10.1109/access.2023.3325338