Patient Centered Connected Health Model of Care for Huntingtons Disease

Informazioni relative al progetto

CareHD

ID dell’accordo di sovvenzione: 777991

DOI 10.3030/777991

Progetto chiuso

Data della firma CE 24 Novembre 2017

Data di avvio 1 Luglio 2018

Data di completamento 31 Ottobre 2023

Finanziato da

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Costo totale € 828 000,00

Contributo UE € 828 000,00

Coordinato da

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Ireland

Risultati finali

Documents, reports (10)

Establishment of Integration Working Group
Ethics and data protection protocol
Administration protocol and tracker
Management protocol and project tracker
Impact Strategy

Develop Impact Strategy

Integration framework strategy
Networking and relationship strategy
Exemplar patient Vignettes

Deevelopemnt of exemplar patient Vignettes

Dissemination Advisory Group (DAG)

Establishment of Dissemination Advisory Group (DAG)

Care pathway methodology protocol

Development of the care pathway methodology protocol

Pubblicazioni

Monographic books (2)

Time-Driven Activity-Based Costing: A Step-by-Step Guide to Collecting Patient-Level Health Care Costs

Autori: Etáin Quigley, Shane O’Donnell, Gerardine Doyle
Pubblicato in: SAGE Research Methods, 2020, ISBN 9781529744248
Editore: SAGE Research Methods
DOI: 10.4135/9781529744248

Vignette-Based Interviewing in the Health Care Space: A Robust Method of Vignette Development

Autori: Etain Quigley, Anne-Sophie Michel, Gerardine Doyle
Pubblicato in: SAGE Research Methods Cases: Medicine and Health, Numero 2020, 2020, Pagina/e Online, ISBN 9781529735970
Editore: SAGE
DOI: 10.4135/9781529735970

Peer reviewed articles (2)

Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

Autori: Etain Quigley, Ingrid Holme, David M. Doyle, Aileen K. Ho, Eamonn Ambrose, Katie Kirkwood & Gerardine Doyle
Pubblicato in: Life Sciences, Society and Policy, Numero 17, 2021, Pagina/e Article number: 9, ISSN 2195-7819
Editore: BioMed Central Ltd, Part of Springer Nature
DOI: 10.1186/s40504-021-00118-6

Model for Quantitative Estimation of Functionality Influence on the Final Value of a Software Product

Autori: Gregor Molan, Gregor Dolinar, Jovan Bojkovski, Radu Prodan, Andrea Borghesi, Martin Molan
Pubblicato in: IEEE Access, Numero vol. 11, 2023, Pagina/e 115599-115616, ISSN 2169-3536
Editore: Institute of Electrical and Electronics Engineers Inc.
DOI: 10.1109/access.2023.3325338