Patient Centered Connected Health Model of Care for Huntingtons Disease

Projektinformationen

CareHD

ID Finanzhilfevereinbarung: 777991

DOI 10.3030/777991

Projekt abgeschlossen

EK-Unterschriftsdatum 24 November 2017

Startdatum 1 Juli 2018

Enddatum 31 Oktober 2023

Finanziert unter

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Gesamtkosten € 828 000,00

EU-Beitrag € 828 000,00

Koordiniert durch

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Ireland

Leistungen

Documents, reports (10)

Establishment of Integration Working Group
Ethics and data protection protocol
Administration protocol and tracker
Management protocol and project tracker
Impact Strategy

Develop Impact Strategy

Integration framework strategy
Networking and relationship strategy
Exemplar patient Vignettes

Deevelopemnt of exemplar patient Vignettes

Dissemination Advisory Group (DAG)

Establishment of Dissemination Advisory Group (DAG)

Care pathway methodology protocol

Development of the care pathway methodology protocol

Veröffentlichungen

Monographic books (2)

Time-Driven Activity-Based Costing: A Step-by-Step Guide to Collecting Patient-Level Health Care Costs

Autoren: Etáin Quigley, Shane O’Donnell, Gerardine Doyle
Veröffentlicht in: SAGE Research Methods, 2020, ISBN 9781529744248
Herausgeber: SAGE Research Methods
DOI: 10.4135/9781529744248

Vignette-Based Interviewing in the Health Care Space: A Robust Method of Vignette Development

Autoren: Etain Quigley, Anne-Sophie Michel, Gerardine Doyle
Veröffentlicht in: SAGE Research Methods Cases: Medicine and Health, Ausgabe 2020, 2020, Seite(n) Online, ISBN 9781529735970
Herausgeber: SAGE
DOI: 10.4135/9781529735970

Peer reviewed articles (2)

Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

Autoren: Etain Quigley, Ingrid Holme, David M. Doyle, Aileen K. Ho, Eamonn Ambrose, Katie Kirkwood & Gerardine Doyle
Veröffentlicht in: Life Sciences, Society and Policy, Ausgabe 17, 2021, Seite(n) Article number: 9, ISSN 2195-7819
Herausgeber: BioMed Central Ltd, Part of Springer Nature
DOI: 10.1186/s40504-021-00118-6

Model for Quantitative Estimation of Functionality Influence on the Final Value of a Software Product

Autoren: Gregor Molan, Gregor Dolinar, Jovan Bojkovski, Radu Prodan, Andrea Borghesi, Martin Molan
Veröffentlicht in: IEEE Access, Ausgabe vol. 11, 2023, Seite(n) 115599-115616, ISSN 2169-3536
Herausgeber: Institute of Electrical and Electronics Engineers Inc.
DOI: 10.1109/access.2023.3325338