Patient Centered Connected Health Model of Care for Huntingtons Disease

Informations projet

CareHD

N° de convention de subvention: 777991

DOI 10.3030/777991

Projet clôturé

Date de signature de la CE 24 Novembre 2017

Date de début 1 Juillet 2018

Date de fin 31 Octobre 2023

Financé au titre de

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Coût total € 828 000,00

Contribution de l’UE € 828 000,00

Coordonné par

UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Ireland

Livrables

Documents, reports (10)

Establishment of Integration Working Group
Ethics and data protection protocol
Administration protocol and tracker
Management protocol and project tracker
Impact Strategy

Develop Impact Strategy

Integration framework strategy
Networking and relationship strategy
Exemplar patient Vignettes

Deevelopemnt of exemplar patient Vignettes

Dissemination Advisory Group (DAG)

Establishment of Dissemination Advisory Group (DAG)

Care pathway methodology protocol

Development of the care pathway methodology protocol

Publications

Monographic books (2)

Time-Driven Activity-Based Costing: A Step-by-Step Guide to Collecting Patient-Level Health Care Costs

Auteurs: Etáin Quigley, Shane O’Donnell, Gerardine Doyle
Publié dans: SAGE Research Methods, 2020, ISBN 9781529744248
Éditeur: SAGE Research Methods
DOI: 10.4135/9781529744248

Vignette-Based Interviewing in the Health Care Space: A Robust Method of Vignette Development

Auteurs: Etain Quigley, Anne-Sophie Michel, Gerardine Doyle
Publié dans: SAGE Research Methods Cases: Medicine and Health, Numéro 2020, 2020, Page(s) Online, ISBN 9781529735970
Éditeur: SAGE
DOI: 10.4135/9781529735970

Peer reviewed articles (2)

Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

Auteurs: Etain Quigley, Ingrid Holme, David M. Doyle, Aileen K. Ho, Eamonn Ambrose, Katie Kirkwood & Gerardine Doyle
Publié dans: Life Sciences, Society and Policy, Numéro 17, 2021, Page(s) Article number: 9, ISSN 2195-7819
Éditeur: BioMed Central Ltd, Part of Springer Nature
DOI: 10.1186/s40504-021-00118-6

Model for Quantitative Estimation of Functionality Influence on the Final Value of a Software Product

Auteurs: Gregor Molan, Gregor Dolinar, Jovan Bojkovski, Radu Prodan, Andrea Borghesi, Martin Molan
Publié dans: IEEE Access, Numéro vol. 11, 2023, Page(s) 115599-115616, ISSN 2169-3536
Éditeur: Institute of Electrical and Electronics Engineers Inc.
DOI: 10.1109/access.2023.3325338