Description du projet
Les enfants de plus en plus dépendants de la technologie
Le nombre d’enfants nécessitant un accès continu à des dispositifs technologiques est en augmentation et entraîne des préoccupations cliniques, juridiques et éthiques. Cette dépendance technologique est liée à l’interventionnisme médical et cache un potentiel de discrimination. Dans la mesure où les données empiriques sur les influences et les interactions de la dépendance technologique restent rares, les considérations éthiques, cliniques et juridiques reposent généralement sur des opinions plutôt que sur des données empiriques. Le projet TechChild, financé par l’UE, vise à améliorer notre compréhension de la coexistence des humains avec des augmentations technologiques dans divers systèmes sanitaires, juridiques et socioculturels. Il entend ainsi transformer notre conception de l’accès aux soins et propose une perspective de recherche qui tient compte du relativisme culturel à l’ère des cyborgs.
Objectif
There is an increasing number of children with complex healthcare needs who require continuous technological support to sustain their lives. This technology dependence is initiated in an environment of medical interventionism, with potential for discrete discrimination. A scarcity of empirical data on the influences and interactions at the point of the initiation of technology dependence means that clinical, legal and ethical deliberations are driven more by opinion than empirical evidence. An evidence-based theoretical construct is required to articulate and contextualise the levers and penalties of the initiation of this technology. TechChild asks just because we can, should we? and how are the influences on the initiation of technology dependence understood in contrasting health, legal, and socio-political systems? Serendipitous findings from my research indicates parental concern regarding an absence of transparency, and parents are questioning patterns of family characteristics, when technology dependence is initiated. TechChild will be a step change in how we understand the coexistence of humans with an increasing availability of technological augmentations. This is urgent in a society where this debate predominantly happens in the public domain with limited opportunity for healthcare professionals to offer their perspective. TechChild will revolutionise how we conceive access to care and offers a research horizon that questions cultural relativism in a cyborg era. This is a scholarly ambitious project involving Paediatric Intensive Care Units in four international sites using a Bayesian framework to elicit the probability of factors likely to influence the initiation of technology dependence, leading to the development of a theory of technology initiation. This ground-breaking exploration will inform technology initiation across the lifespan with implications for healthcare, bioethics, education, parenting, policy making, and legal.
Champ scientifique
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Régime de financement
ERC-STG - Starting GrantInstitution d’accueil
4 Dublin
Irlande