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Outcomes of Patients’ Evidence With Novel, Do-It-Yourself Artificial Pancreas Technology

Project description

Open-source automated insulin delivery systems

Type 1 diabetes, where the body does not produce enough insulin to control levels of glucose in the blood, can lead to life-threatening physical complications, distress, anxiety, and depression. To help, tech-savvy people with diabetes and their families have developed open-source software to automatically adjust insulin dosing in response to their glucose levels – in order to stay within target range and reduce the psychological burden of the condition. Funded by the Marie Skłodowska–Curie Action Programme, OPEN is a patient-led project that will collect and analyse outcomes of these systems for a better understanding of their impact on the lives of people with diabetes.


Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.


Net EU contribution
€ 414 000,00
4 Dublin

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Ireland Eastern and Midland Dublin
Activity type
Higher or Secondary Education Establishments
Total cost
€ 414 000,00

Participants (8)

Partners (2)