Description du projet
Des systèmes d’administration d’insuline automatisés en source libre
Le diabète de type 1, dans le cadre duquel l’organisme ne produit pas suffisamment d’insuline pour contrôler les niveaux de glucose dans le sang, peut engendrer des complications physiques potentiellement mortelles, de la détresse, de l’anxiété et un état dépressif. Pour y remédier, des diabétiques férus de technologie et leurs familles ont développé un logiciel libre permettant d’ajuster automatiquement la dose d’insuline en fonction de leur taux de glucose – afin de rester dans la fourchette cible et de réduire le fardeau psychologique de la maladie. Financé par le programme Action Marie Skłodowska-Curie, OPEN est un projet dirigé par des patients qui collectera et analysera les résultats de ces systèmes pour mieux comprendre leur impact sur la vie des personnes souffrant de diabète.
Objectif
Type 1 diabetes is a rare but highly challenging chronic condition which often leads to lowered life expectancy and greatly diminished quality of life even amongst those patients who are the most diligent and proactive in the practice of disease self-management. In recent years, there has been a growing movement of ‘patient innovators’ leading the development of self-built or ‘do-it-yourself’ artificial pancreas systems (DIYAPS), which help to automate day-to-day decision making needed for successful self-management. There is prima facie evidence to suggest that such systems can lead to improvements in glucose outcomes that far exceed those offered by the most state-of-the-art commercially available solutions. The aim of this RISE project is to tap into the expertise and knowledge shared by these communities by bringing together an intersectoral and interdisciplinary research team consisting of patient innovators, academic researchers, healthcare professionals (HCPs) and NGOs to establish an empirical evidence base surrounding the impact of DIYAPS. The exciting programme of research includes training and networking for participating staff designed to encourage inter-disciplinary thinking and broaden career horizons, while the dissemination and public outreach activities will ensure that project findings reach key stakeholders, such as policymakers, HCPs and industry, both within Europe and beyond. The key outcomes of this project will include a new model of knowledge co-creation and an evidence-base surrounding the potential scale-up of DIYAPS solutions that will have profound implications for those living with chronic conditions, their families, as well as healthcare systems and European society as a whole.
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MSCA-RISE - Marie Skłodowska-Curie Research and Innovation Staff Exchange (RISE)Coordinateur
4 Dublin
Irlande