Skip to main content

African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Objective

The Overarching Objective for this consortium is to establish an inter-agency and multidisciplinary staff exchange programme between researchers, technical and administrative staff interaction within EU institutions as well as reaching out to non-EU countries in Africa, Lebanon and US in order to foster sharing of best practice in Newborn Screening, diagnosis and treatment of Sickle Cell Disease (SCD) leading to improvement in overall disease outcome. Using implementation science strategies for this consortium to foster partnerships and the establishment of patient database, registries and a sustainable service for people living with the disorder.
Primary Objectives:
- To evaluate the prevalence of sickle cell disease among populations in consortium member countries and identify specific haemoglobin genotypes and phenotypic presentations;
- To establish laboratory diagnosis and quality assurance systems for population screening and setting up of SCD national prevention programmes;
- To test the feasibility for establishing newborn and early infant screening for SCD in consortium participants;
- To establish treatment protocols for common complications -acute and chronic pain, stroke, infections, severe anaemia as well as transition from paediatric to adult care, health promotion strategies and nutrition.
In order to achieve these objectives, we designed the following WPs:
Scientific Coordination and Project Management
Implementing eHealth technologies to support a Newborn screening programme in EU, African Countries and Lebanon.
Improving laboratory diagnosis and quality assurance systems for population screening.
Newborn SCD screening, screening for neurocognitive complications, clinical care and antibiotic prophylaxis
Enhancement of SCD management through training in molecular diagnostic techniques and Genetic Counseling for haemoglobinopathies and performance of epidemiological and
Training in Research and academic leadership.
Communication and dissemination

Call for proposal

H2020-MSCA-RISE-2018
See other projects for this call

Funding Scheme

MSCA-RISE - Marie Skłodowska-Curie Research and Innovation Staff Exchange (RISE)

Coordinator

FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Address
Via Abate Eustasio 30
70010 Valenzano Bari
Italy
Activity type
Research Organisations
EU contribution
€ 230 000

Participants (8)

GUYS AND ST THOMAS' NHS FOUNDATIONTRUST
United Kingdom
EU contribution
€ 460 000
Address
Westminster Bridge Road
SE1 7EH London
Activity type
Research Organisations
AZIENDA OSPEDALE UNIVERSITA PADOVA
Italy
EU contribution
€ 151 800
Address
Via Nicolo Giustiniani 1
35128 Padova
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
EU contribution
€ 202 400
Address
Rue De Tolbiac 101
75654 Paris
Activity type
Research Organisations
GENIKO LAIKO NOSOKOMEIO ATHINON*GENERAL HOSPITAL OF ATHENS LAIKO
Greece
EU contribution
€ 234 600
Address
Agiou Thoma 17
11527 Athina
Activity type
Research Organisations
THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH
Cyprus
EU contribution
€ 220 800
Address
International Airport Avenue 6
1683 Ayios Dometios
Activity type
Research Organisations
UNIVERSITY COLLEGE LONDON
United Kingdom
EU contribution
€ 170 200
Address
Gower Street
WC1E 6BT London
Activity type
Higher or Secondary Education Establishments
THE ROYAL COLLEGE OF PATHOLOGISTS
United Kingdom
EU contribution
€ 312 800
Address
Fourth Floor 21 Prescot Street
E1 8BB London
Activity type
Other
LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE ROYAL CHARTER
United Kingdom
EU contribution
€ 124 200
Address
Keppel Street
WC1E 7HT London
Activity type
Higher or Secondary Education Establishments

Partners (6)

LAGOS STATE UNIVERSITY OJO
Nigeria
Address
Ojo Off Badary Express Way
Lagos
Activity type
Higher or Secondary Education Establishments
UNIVERSITY OF ABUJA
Nigeria
Address
Main Campus Airport-giri Road
Abuja
Activity type
Higher or Secondary Education Establishments
American University of Beirut
Lebanon
Address
Bliss Street
1107 2020 Beirut
Activity type
Higher or Secondary Education Establishments
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
United States
Address
1901 South First Street Suite A
618207406 Champaign
Activity type
Higher or Secondary Education Establishments
STRATHMORE UNIVERSITY
Kenya
Address
Ole Sangale Road Madaraka Estate
00200 Nairobi
Activity type
Higher or Secondary Education Establishments
AHMADU BELLO UNIVERSITY
Nigeria
Address
Samaru Zaria Kaduna
800001 Zaria
Activity type
Higher or Secondary Education Establishments