African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Deliverables

Documents, reports (1)

Report on the identified needs

Linked to tasks 2.3 (M12)

Publications

Peer reviewed articles (7)

Pilot Study to Assess Patients’ and Health Workers’ Needs involved in Sickle Cell Disease Management in Nigeria (ARISE)

Author(s): A. Abdulkareem L. Ruggieri F. Bonifazi A. Didio A. Landi L. Dogara B. Inusa
Published in: HemaSphere, 4/53, 2020, Page(s) 1-49, ISSN 2572-9241
Publisher: Wolters Kluwer Health, Inc

Estimating the proportion of children with sickle cell disease in Kaduna State, Nigeria, who are registered at a government clinic

Author(s): M, Mamman, S, Scott, P, Milligan, PDB, Inusa, Y, Dabo, R, Yusuf, AR, Bako, H, Ahmad, A, Shariason and F, Igbah
Published in: HemaSphere, 4/53, 2020, Page(s) 1-49, ISSN 2572-9241
Publisher: Wolters Kluwer Health, Inc

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

Author(s): Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M.
Published in: Lancet Hematology, 2020, ISSN 2352-3026
Publisher: Elsevier Limited
DOI: 10.1016/s2352-3026(20)30036-3

THE ‘AFRICAN RESEARCH AND INNOVATIVE INITIATIVE FORSICKLE CELL EDUCATION (ARISE)-IMPROVING RESEARCHCAPACITY FOR SCD HEATH CARE SERVICE IMPROVEMENT”INTERIM REPORT

Author(s): B. Ojo R. Fernandes S.L. Quirk L. Hsu B. Inusa M. Abboud W. Atoyebi F. Bonifazi
Published in: HemaSphere, 4/53, 2020, Page(s) 1-49, ISSN 2572-9241
Publisher: Wolters Kluwer Health, Inc

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings

Author(s): Crawford Strunk, Andrew Campbell, Raffaella Colombatti, Biree Andemariam, Rachel Kesse-Adu, Marsha Treadwell, Baba P. D. Inusa
Published in: BMC Proceedings, 14/S20, 2020, ISSN 1753-6561
Publisher: BioMed Central
DOI: 10.1186/s12919-020-00204-1

The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies

Author(s): Petros Kountouris, Coralea Stephanou, Natasha Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H. M. Kuo, Aurelio Maggio, Julie Makani, María del Mar Mañú-Pereira, Kyriaki Michailidou, Siana Nkya, Obiageli E. Nnodu, Sara Trompeter, Léon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba P. D. Inusa, Marina Kleanthous on behalf of the International Hemoglobinopathy Research Network (INHE
Published in: American Journal of Hematology, Volume96, Issue11 November 2021, 2021, Page(s) Pages E416-E420, ISSN 0361-8609
Publisher: John Wiley & Sons Inc.
DOI: 10.1002/ajh.26323

Analysis of the organisation of the healthcare centres managing sickle cell disease in Nigeria

Author(s): A. Sunday L. Ruggieri A. Didio A. Landi B. Inusa F. Bonifazi L. Dogara
Published in: HemaSphere, 4/53, 2020, Page(s) 1-49, ISSN 2572-9241
Publisher: Wolters Kluwer Health, Inc

Other (2)

Sickle cell disease - an overview of new therapies and RCPath partnership with ARISE

Author(s): Baba Inusa, Natasha Archer, Wale Atoyebi, Lucia Ruggieri, Duccio Bonifazi
Published in: 2022
Publisher: The Bulletin of the Royal College of Pathologists

Implementing a newborn screening programme: our experience in kaduna state, Nigeria

Author(s): Dr Ifeoma Ijei-Enesi, Dr Livingstone Dogara and Dr Psalm Baba Inusa
Published in: 2022
Publisher: The College Annual report