African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Project Information

ARISE

Grant agreement ID: 824021

DOI

10.3030/824021

Project closed

EC signature date 26 October 2018

Start date 1 January 2019

End date 31 October 2024

Funded under

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Total cost

€ 2 106 800,00

EU contribution

€ 2 106 800,00

Coordinated by

FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Deliverables

Documents, reports (9)

Report on dissemination events and activities

Linked to Task T7.5

Final map on healthcare policies and centres organisation

Linked to tasks 2.2 (M70)

Training programme for data analysis and dissemination

Linked to task 6.4 (M70)

Reports on each of the molecular biology-related projects undertaken by the visiting scientists

These will include a short project proposal and a detailed description of the project results. Linked to tasks 5.3 and 5.5 (M70)

Community health worker programme in TCs sites

Linked to Task 4.3 (M70)

Report on site visits

Linked to task 6.3 (M70)

Report on the identified needs

Linked to tasks 2.3 (M12)

Report investigating the impact of the treatment protocols

Linked to Task 4.5 (M70)

Report on the execution of epidemiological surveys, including a summary of the data collection results

Linked to task 5.6

Publications

Peer reviewed articles (9)

PI-07: THE INTERNATIONAL HEMOGLOBINOPATHY RESEARCH NETWORK (INHERENT): AN INTERNATIONAL INITIATVE TO STUDY THE ROLE OF GENETIC MODIFIERS IN HEMOGLOBINOPATHIES

Author(s): KOUNTOURIS P., STEPHANOU C., ARCHER N., BONIFAZI F., GIANNUZZI V., KUO K., MAGGIO A., MAKANI J., MAÑÚ PEREIRA M., MICHAILIDOU K., NKYA S., NNODU O., TROMPETER S., TSHILOLO L., WONKAM A., ZILFALIL B., INUSA B., KLEANTHOUS M.
Published in: HemaSphere, Issue 6, 2023, Page(s) 12-13, ISSN 2572-9241
Publisher: HemaSphere
DOI: 10.1097/01.hs9.0000872888.56941.7d

Treating sickle cell disease in resource-limited sub-Saharan Africa: recent strategies and recommendations in addressing the gaps for the provision of evidence-based management

Author(s): Miguel Brito, Catarina Ginete, Akinyemi Ofakunrin, Ijeoma Diaku-Akinwumi, Baba Psalm Duniya Inusa
Published in: Expert Review of Hematology, 2025, Page(s) 1-16, ISSN 1747-4086
Publisher: Expert Reviews
DOI: 10.1080/17474086.2025.2500599

An update review of new therapies in sickle cell disease: the prospects for drug combinations

Author(s): Sanne Lugthart, Catarina Ginete, Patience Kuona, Miguel Brito, Baba Psalm Duniya Inusa
Published in: Expert Opinion on Pharmacotherapy, Issue 25, 2024, Page(s) 157-170, ISSN 1465-6566
Publisher: Ashley Publications Ltd.
DOI: 10.1080/14656566.2024.2317336

Implementation of a Newborn Screening for Sickle Cell Disease, at the Hospital Materno Infantil Dr Manuel Pedro Azancot De Menezes, Angola

Author(s): Miguel Brito, Baba P.D. Inusa, Catarina Ginete, Manuela Mendes, Roberto Afonso, Isabel Valentim, Adriano Siatembo, Jocelyne Neto Vasconcelos
Published in: Blood, Issue 142, 2024, Page(s) 5300-5300, ISSN 0006-4971
Publisher: American Society of Hematology
DOI: 10.1182/blood-2023-179803

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

Author(s): Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M.
Published in: Lancet Hematology, 2020, ISSN 2352-3026
Publisher: Elsevier Limited
DOI: 10.1016/s2352-3026(20)30036-3

Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study

Author(s): Muhammad Aminu Idris, Lucia Ruggieri, Hafsat Rufai Ahmad, Abdulaziz Hassan, Ismaila Nda Ibrahim, Faruk Jamil Adullahi, Sani Awwalu, Usman Nasiru, Fedele Bonifazi, Baba P. D. Inusa
Published in: Hemato, Issue 5, 2024, Page(s) 340-349, ISSN 2673-6357
Publisher: MDPI
DOI: 10.3390/hemato5030025

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings

Author(s): Crawford Strunk, Andrew Campbell, Raffaella Colombatti, Biree Andemariam, Rachel Kesse-Adu, Marsha Treadwell, Baba P. D. Inusa
Published in: BMC Proceedings, Issue 14/S20, 2020, ISSN 1753-6561
Publisher: BioMed Central
DOI: 10.1186/s12919-020-00204-1

Global burden of transfusion in sickle cell disease

Author(s): Baba PD Inusa, Wale Atoyebi, Biree Andemariam, James N. Hourani, Laurel Omert
Published in: Transfusion and Apheresis Science, Issue 62, 2023, Page(s) 103764, ISSN 1473-0502
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.transci.2023.103764

The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies

Author(s): Petros Kountouris, Coralea Stephanou, Natasha Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H. M. Kuo, Aurelio Maggio, Julie Makani, María del Mar Mañú-Pereira, Kyriaki Michailidou, Siana Nkya, Obiageli E. Nnodu, Sara Trompeter, Léon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba P. D. Inusa, Marina Kleanthous on behalf of the International Hemoglobinopathy Research Network (INHE
Published in: American Journal of Hematology, Issue Volume96, Issue11 November 2021, 2021, Page(s) Pages E416-E420, ISSN 0361-8609
Publisher: John Wiley & Sons Inc.
DOI: 10.1002/ajh.26323