African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Información del proyecto

ARISE

Identificador del acuerdo de subvención: 824021

DOI

10.3030/824021

Proyecto cerrado

Fecha de la firma de la CE 26 Octubre 2018

Fecha de inicio 1 Enero 2019

Fecha de finalización 31 Octubre 2024

Financiado con arreglo a

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Coste total

€ 2 106 800,00

Aportación de la UE

€ 2 106 800,00

Coordinado por

FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy

CORDIS proporciona enlaces a los documentos públicos y las publicaciones de los proyectos de los programas marco HORIZONTE.

Los enlaces a los documentos y las publicaciones de los proyectos del Séptimo Programa Marco, así como los enlaces a algunos tipos de resultados específicos, como conjuntos de datos y «software», se obtienen dinámicamente de OpenAIRE .

Resultado final

Documents, reports (9)

Report on dissemination events and activities

Linked to Task T7.5

Final map on healthcare policies and centres organisation

Linked to tasks 2.2 (M70)

Training programme for data analysis and dissemination

Linked to task 6.4 (M70)

Reports on each of the molecular biology-related projects undertaken by the visiting scientists

These will include a short project proposal and a detailed description of the project results. Linked to tasks 5.3 and 5.5 (M70)

Community health worker programme in TCs sites

Linked to Task 4.3 (M70)

Report on site visits

Linked to task 6.3 (M70)

Report on the identified needs

Linked to tasks 2.3 (M12)

Report investigating the impact of the treatment protocols

Linked to Task 4.5 (M70)

Report on the execution of epidemiological surveys, including a summary of the data collection results

Linked to task 5.6

Publicaciones

Peer reviewed articles (9)

PI-07: THE INTERNATIONAL HEMOGLOBINOPATHY RESEARCH NETWORK (INHERENT): AN INTERNATIONAL INITIATVE TO STUDY THE ROLE OF GENETIC MODIFIERS IN HEMOGLOBINOPATHIES

Autores: KOUNTOURIS P., STEPHANOU C., ARCHER N., BONIFAZI F., GIANNUZZI V., KUO K., MAGGIO A., MAKANI J., MAÑÚ PEREIRA M., MICHAILIDOU K., NKYA S., NNODU O., TROMPETER S., TSHILOLO L., WONKAM A., ZILFALIL B., INUSA B., KLEANTHOUS M.
Publicado en: HemaSphere, Edición 6, 2023, Página(s) 12-13, ISSN 2572-9241
Editor: HemaSphere
DOI: 10.1097/01.hs9.0000872888.56941.7d

Treating sickle cell disease in resource-limited sub-Saharan Africa: recent strategies and recommendations in addressing the gaps for the provision of evidence-based management

Autores: Miguel Brito, Catarina Ginete, Akinyemi Ofakunrin, Ijeoma Diaku-Akinwumi, Baba Psalm Duniya Inusa
Publicado en: Expert Review of Hematology, 2025, Página(s) 1-16, ISSN 1747-4086
Editor: Expert Reviews
DOI: 10.1080/17474086.2025.2500599

An update review of new therapies in sickle cell disease: the prospects for drug combinations

Autores: Sanne Lugthart, Catarina Ginete, Patience Kuona, Miguel Brito, Baba Psalm Duniya Inusa
Publicado en: Expert Opinion on Pharmacotherapy, Edición 25, 2024, Página(s) 157-170, ISSN 1465-6566
Editor: Ashley Publications Ltd.
DOI: 10.1080/14656566.2024.2317336

Implementation of a Newborn Screening for Sickle Cell Disease, at the Hospital Materno Infantil Dr Manuel Pedro Azancot De Menezes, Angola

Autores: Miguel Brito, Baba P.D. Inusa, Catarina Ginete, Manuela Mendes, Roberto Afonso, Isabel Valentim, Adriano Siatembo, Jocelyne Neto Vasconcelos
Publicado en: Blood, Edición 142, 2024, Página(s) 5300-5300, ISSN 0006-4971
Editor: American Society of Hematology
DOI: 10.1182/blood-2023-179803

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

Autores: Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M.
Publicado en: Lancet Hematology, 2020, ISSN 2352-3026
Editor: Elsevier Limited
DOI: 10.1016/s2352-3026(20)30036-3

Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study

Autores: Muhammad Aminu Idris, Lucia Ruggieri, Hafsat Rufai Ahmad, Abdulaziz Hassan, Ismaila Nda Ibrahim, Faruk Jamil Adullahi, Sani Awwalu, Usman Nasiru, Fedele Bonifazi, Baba P. D. Inusa
Publicado en: Hemato, Edición 5, 2024, Página(s) 340-349, ISSN 2673-6357
Editor: MDPI
DOI: 10.3390/hemato5030025

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings

Autores: Crawford Strunk, Andrew Campbell, Raffaella Colombatti, Biree Andemariam, Rachel Kesse-Adu, Marsha Treadwell, Baba P. D. Inusa
Publicado en: BMC Proceedings, Edición 14/S20, 2020, ISSN 1753-6561
Editor: BioMed Central
DOI: 10.1186/s12919-020-00204-1

Global burden of transfusion in sickle cell disease

Autores: Baba PD Inusa, Wale Atoyebi, Biree Andemariam, James N. Hourani, Laurel Omert
Publicado en: Transfusion and Apheresis Science, Edición 62, 2023, Página(s) 103764, ISSN 1473-0502
Editor: Pergamon Press Ltd.
DOI: 10.1016/j.transci.2023.103764

The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies

Autores: Petros Kountouris, Coralea Stephanou, Natasha Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H. M. Kuo, Aurelio Maggio, Julie Makani, María del Mar Mañú-Pereira, Kyriaki Michailidou, Siana Nkya, Obiageli E. Nnodu, Sara Trompeter, Léon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba P. D. Inusa, Marina Kleanthous on behalf of the International Hemoglobinopathy Research Network (INHE
Publicado en: American Journal of Hematology, Edición Volume96, Edición11 November 2021, 2021, Página(s) Pages E416-E420, ISSN 0361-8609
Editor: John Wiley & Sons Inc.
DOI: 10.1002/ajh.26323