African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Informazioni relative al progetto

ARISE

ID dell’accordo di sovvenzione: 824021

DOI

10.3030/824021

Progetto chiuso

Data della firma CE 26 Ottobre 2018

Data di avvio 1 Gennaio 2019

Data di completamento 31 Ottobre 2024

Finanziato da

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Costo totale

€ 2 106 800,00

Contributo UE

€ 2 106 800,00

Coordinato da

FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy

CORDIS fornisce collegamenti ai risultati finali pubblici e alle pubblicazioni dei progetti ORIZZONTE.

I link ai risultati e alle pubblicazioni dei progetti del 7° PQ, così come i link ad alcuni tipi di risultati specifici come dataset e software, sono recuperati dinamicamente da .OpenAIRE .

Risultati finali

Documents, reports (9)

Report on dissemination events and activities

Linked to Task T7.5

Final map on healthcare policies and centres organisation

Linked to tasks 2.2 (M70)

Training programme for data analysis and dissemination

Linked to task 6.4 (M70)

Reports on each of the molecular biology-related projects undertaken by the visiting scientists

These will include a short project proposal and a detailed description of the project results. Linked to tasks 5.3 and 5.5 (M70)

Community health worker programme in TCs sites

Linked to Task 4.3 (M70)

Report on site visits

Linked to task 6.3 (M70)

Report on the identified needs

Linked to tasks 2.3 (M12)

Report investigating the impact of the treatment protocols

Linked to Task 4.5 (M70)

Report on the execution of epidemiological surveys, including a summary of the data collection results

Linked to task 5.6

Pubblicazioni

Peer reviewed articles (9)

PI-07: THE INTERNATIONAL HEMOGLOBINOPATHY RESEARCH NETWORK (INHERENT): AN INTERNATIONAL INITIATVE TO STUDY THE ROLE OF GENETIC MODIFIERS IN HEMOGLOBINOPATHIES

Autori: KOUNTOURIS P., STEPHANOU C., ARCHER N., BONIFAZI F., GIANNUZZI V., KUO K., MAGGIO A., MAKANI J., MAÑÚ PEREIRA M., MICHAILIDOU K., NKYA S., NNODU O., TROMPETER S., TSHILOLO L., WONKAM A., ZILFALIL B., INUSA B., KLEANTHOUS M.
Pubblicato in: HemaSphere, Numero 6, 2023, Pagina/e 12-13, ISSN 2572-9241
Editore: HemaSphere
DOI: 10.1097/01.hs9.0000872888.56941.7d

Treating sickle cell disease in resource-limited sub-Saharan Africa: recent strategies and recommendations in addressing the gaps for the provision of evidence-based management

Autori: Miguel Brito, Catarina Ginete, Akinyemi Ofakunrin, Ijeoma Diaku-Akinwumi, Baba Psalm Duniya Inusa
Pubblicato in: Expert Review of Hematology, 2025, Pagina/e 1-16, ISSN 1747-4086
Editore: Expert Reviews
DOI: 10.1080/17474086.2025.2500599

An update review of new therapies in sickle cell disease: the prospects for drug combinations

Autori: Sanne Lugthart, Catarina Ginete, Patience Kuona, Miguel Brito, Baba Psalm Duniya Inusa
Pubblicato in: Expert Opinion on Pharmacotherapy, Numero 25, 2024, Pagina/e 157-170, ISSN 1465-6566
Editore: Ashley Publications Ltd.
DOI: 10.1080/14656566.2024.2317336

Implementation of a Newborn Screening for Sickle Cell Disease, at the Hospital Materno Infantil Dr Manuel Pedro Azancot De Menezes, Angola

Autori: Miguel Brito, Baba P.D. Inusa, Catarina Ginete, Manuela Mendes, Roberto Afonso, Isabel Valentim, Adriano Siatembo, Jocelyne Neto Vasconcelos
Pubblicato in: Blood, Numero 142, 2024, Pagina/e 5300-5300, ISSN 0006-4971
Editore: American Society of Hematology
DOI: 10.1182/blood-2023-179803

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

Autori: Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M.
Pubblicato in: Lancet Hematology, 2020, ISSN 2352-3026
Editore: Elsevier Limited
DOI: 10.1016/s2352-3026(20)30036-3

Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study

Autori: Muhammad Aminu Idris, Lucia Ruggieri, Hafsat Rufai Ahmad, Abdulaziz Hassan, Ismaila Nda Ibrahim, Faruk Jamil Adullahi, Sani Awwalu, Usman Nasiru, Fedele Bonifazi, Baba P. D. Inusa
Pubblicato in: Hemato, Numero 5, 2024, Pagina/e 340-349, ISSN 2673-6357
Editore: MDPI
DOI: 10.3390/hemato5030025

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings

Autori: Crawford Strunk, Andrew Campbell, Raffaella Colombatti, Biree Andemariam, Rachel Kesse-Adu, Marsha Treadwell, Baba P. D. Inusa
Pubblicato in: BMC Proceedings, Numero 14/S20, 2020, ISSN 1753-6561
Editore: BioMed Central
DOI: 10.1186/s12919-020-00204-1

Global burden of transfusion in sickle cell disease

Autori: Baba PD Inusa, Wale Atoyebi, Biree Andemariam, James N. Hourani, Laurel Omert
Pubblicato in: Transfusion and Apheresis Science, Numero 62, 2023, Pagina/e 103764, ISSN 1473-0502
Editore: Pergamon Press Ltd.
DOI: 10.1016/j.transci.2023.103764

The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies

Autori: Petros Kountouris, Coralea Stephanou, Natasha Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H. M. Kuo, Aurelio Maggio, Julie Makani, María del Mar Mañú-Pereira, Kyriaki Michailidou, Siana Nkya, Obiageli E. Nnodu, Sara Trompeter, Léon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba P. D. Inusa, Marina Kleanthous on behalf of the International Hemoglobinopathy Research Network (INHE
Pubblicato in: American Journal of Hematology, Numero Volume96, Numero11 November 2021, 2021, Pagina/e Pages E416-E420, ISSN 0361-8609
Editore: John Wiley & Sons Inc.
DOI: 10.1002/ajh.26323