African Research and Innovative Initiative for Sickle cell Education: Improving Research Capacity for Service Improvement

Informations projet

ARISE

N° de convention de subvention: 824021

DOI

10.3030/824021

Projet clôturé

Date de signature de la CE 26 Octobre 2018

Date de début 1 Janvier 2019

Date de fin 31 Octobre 2024

Financé au titre de

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Coût total

€ 2 106 800,00

Contribution de l’UE

€ 2 106 800,00

Coordonné par

FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy

CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.

Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .

Livrables

Documents, reports (9)

Report on dissemination events and activities

Linked to Task T7.5

Final map on healthcare policies and centres organisation

Linked to tasks 2.2 (M70)

Training programme for data analysis and dissemination

Linked to task 6.4 (M70)

Reports on each of the molecular biology-related projects undertaken by the visiting scientists

These will include a short project proposal and a detailed description of the project results. Linked to tasks 5.3 and 5.5 (M70)

Community health worker programme in TCs sites

Linked to Task 4.3 (M70)

Report on site visits

Linked to task 6.3 (M70)

Report on the identified needs

Linked to tasks 2.3 (M12)

Report investigating the impact of the treatment protocols

Linked to Task 4.5 (M70)

Report on the execution of epidemiological surveys, including a summary of the data collection results

Linked to task 5.6

Publications

Peer reviewed articles (9)

PI-07: THE INTERNATIONAL HEMOGLOBINOPATHY RESEARCH NETWORK (INHERENT): AN INTERNATIONAL INITIATVE TO STUDY THE ROLE OF GENETIC MODIFIERS IN HEMOGLOBINOPATHIES

Auteurs: KOUNTOURIS P., STEPHANOU C., ARCHER N., BONIFAZI F., GIANNUZZI V., KUO K., MAGGIO A., MAKANI J., MAÑÚ PEREIRA M., MICHAILIDOU K., NKYA S., NNODU O., TROMPETER S., TSHILOLO L., WONKAM A., ZILFALIL B., INUSA B., KLEANTHOUS M.
Publié dans: HemaSphere, Numéro 6, 2023, Page(s) 12-13, ISSN 2572-9241
Éditeur: HemaSphere
DOI: 10.1097/01.hs9.0000872888.56941.7d

Treating sickle cell disease in resource-limited sub-Saharan Africa: recent strategies and recommendations in addressing the gaps for the provision of evidence-based management

Auteurs: Miguel Brito, Catarina Ginete, Akinyemi Ofakunrin, Ijeoma Diaku-Akinwumi, Baba Psalm Duniya Inusa
Publié dans: Expert Review of Hematology, 2025, Page(s) 1-16, ISSN 1747-4086
Éditeur: Expert Reviews
DOI: 10.1080/17474086.2025.2500599

An update review of new therapies in sickle cell disease: the prospects for drug combinations

Auteurs: Sanne Lugthart, Catarina Ginete, Patience Kuona, Miguel Brito, Baba Psalm Duniya Inusa
Publié dans: Expert Opinion on Pharmacotherapy, Numéro 25, 2024, Page(s) 157-170, ISSN 1465-6566
Éditeur: Ashley Publications Ltd.
DOI: 10.1080/14656566.2024.2317336

Implementation of a Newborn Screening for Sickle Cell Disease, at the Hospital Materno Infantil Dr Manuel Pedro Azancot De Menezes, Angola

Auteurs: Miguel Brito, Baba P.D. Inusa, Catarina Ginete, Manuela Mendes, Roberto Afonso, Isabel Valentim, Adriano Siatembo, Jocelyne Neto Vasconcelos
Publié dans: Blood, Numéro 142, 2024, Page(s) 5300-5300, ISSN 0006-4971
Éditeur: American Society of Hematology
DOI: 10.1182/blood-2023-179803

Paediatric to adult transition care for patients with sickle cell disease: a global perspective

Auteurs: Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M.
Publié dans: Lancet Hematology, 2020, ISSN 2352-3026
Éditeur: Elsevier Limited
DOI: 10.1016/s2352-3026(20)30036-3

Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study

Auteurs: Muhammad Aminu Idris, Lucia Ruggieri, Hafsat Rufai Ahmad, Abdulaziz Hassan, Ismaila Nda Ibrahim, Faruk Jamil Adullahi, Sani Awwalu, Usman Nasiru, Fedele Bonifazi, Baba P. D. Inusa
Publié dans: Hemato, Numéro 5, 2024, Page(s) 340-349, ISSN 2673-6357
Éditeur: MDPI
DOI: 10.3390/hemato5030025

Annual Academy of Sickle Cell and Thalassaemia (ASCAT) conference: a summary of the proceedings

Auteurs: Crawford Strunk, Andrew Campbell, Raffaella Colombatti, Biree Andemariam, Rachel Kesse-Adu, Marsha Treadwell, Baba P. D. Inusa
Publié dans: BMC Proceedings, Numéro 14/S20, 2020, ISSN 1753-6561
Éditeur: BioMed Central
DOI: 10.1186/s12919-020-00204-1

Global burden of transfusion in sickle cell disease

Auteurs: Baba PD Inusa, Wale Atoyebi, Biree Andemariam, James N. Hourani, Laurel Omert
Publié dans: Transfusion and Apheresis Science, Numéro 62, 2023, Page(s) 103764, ISSN 1473-0502
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.transci.2023.103764

The International Hemoglobinopathy Research Network (INHERENT): An international initiative to study the role of genetic modifiers in hemoglobinopathies

Auteurs: Petros Kountouris, Coralea Stephanou, Natasha Archer, Fedele Bonifazi, Viviana Giannuzzi, Kevin H. M. Kuo, Aurelio Maggio, Julie Makani, María del Mar Mañú-Pereira, Kyriaki Michailidou, Siana Nkya, Obiageli E. Nnodu, Sara Trompeter, Léon Tshilolo, Ambroise Wonkam, Bin Alwi Zilfalil, Baba P. D. Inusa, Marina Kleanthous on behalf of the International Hemoglobinopathy Research Network (INHE
Publié dans: American Journal of Hematology, Numéro Volume96, Numéro11 November 2021, 2021, Page(s) Pages E416-E420, ISSN 0361-8609
Éditeur: John Wiley & Sons Inc.
DOI: 10.1002/ajh.26323