Descripción del proyecto
Poner en práctica una atención de seguimiento efectiva para los supervivientes de cáncer jóvenes
Quienes sobreviven a un cáncer en la niñez son propensos a tener efectos tardíos psicosociales y de salud que afecten a su calidad de vida y a la de sus familias, y que creen retos socioeconómicos. Dichos problemas pueden reducirse detectando las enfermedades tratables en una fase temprana. La intervención a tiempo ayuda a preservar la salud de los supervivientes, mejora su calidad de vida y les permite recibir cuidados especializados. El proyecto PanCareFollowUp, financiado con fondos europeos, está introduciendo un método centrado en la persona para una atención de seguimiento de los supervivientes basada en directrices clínicas internacionales para la vigilancia de efectos tardíos. El proyecto también proporcionará un programa de intervención en el estilo de vida de sanidad electrónica basado en directrices y personalizado, así como materiales para apoyar el mantenimiento sostenible y la replicación de las intervenciones de PanCareFollowUp.
Objetivo
The 5-year survival for children with cancer increased from 30% in the 1970s to more than 80% at present. There are up to 300,000 childhood cancer survivors in Europe and this number is increasing. Years after treatment, childhood cancer survivors are at high risk for developing health and psychosocial late effects, resulting in excess morbidity and mortality compared the general population. The impact on the quality of life (QoL) of survivors and their families, as well as the societal and economic burdens, are significant. However, these impacts can be reduced by long-term survivorship care to detect treatable disease at an early phase and start timely interventions to preserve health, improve QoL, as well as coordinate specialised care and empower survivors.
Implementing follow-up care, especially for young adult and adult survivors of childhood cancer, has proven challenging across Europe. These survivors have left paediatric care and most of them have no opportunity to visit experts in survivorship care. To improve survivorship care for these survivors across Europe, PanCareFollowUp will conduct a prospective cohort study to assess effectiveness, value, cost effectiveness and feasibility of the PanCareFollowUp Care intervention, a person-centred approach to survivor follow-up care based on international clinical guidelines for surveillance of late effects. PanCareFollowUp also includes the development and assessment of a personalised, guideline-based eHealth lifestyle intervention.
Ensuring that the PanCareFollowUp interventions are used in the real world is paramount to achieving enduring improvements to survivorship care. Hence, the project includes the development of materials to support sustainable maintenance and replication of the PanCareFollowUp interventions. The PanCare network will become the guardian of the interventions after the project, ensuring that the intervention materials are openly available, sustainably maintained and widely shared.
Ámbito científico
Palabras clave
Programa(s)
Convocatoria de propuestas
Consulte otros proyectos de esta convocatoriaConvocatoria de subcontratación
H2020-SC1-2018-Single-Stage-RTD
Régimen de financiación
RIA - Research and Innovation actionCoordinador
3584CS Utrecht
Países Bajos