Descrizione del progetto
Attuare cure di follow-up efficaci per i giovani sopravvissuti al cancro
I sopravvissuti a un cancro infantile sono soggetti a effetti tardivi psicosociali e di salute che esercitano un impatto sulla qualità della loro vita e su quella delle loro famiglie, generando inoltre sfide sociali ed economiche. Tali problemi possono essere superati individuando la malattia curabile in una fase iniziale: l’intervento tempestivo contribuisce infatti a preservare la salute dei sopravvissuti, migliorando la qualità della loro vita e consentendo loro di ricevere cure specializzate. Il progetto PanCareFollowUp, finanziato dall’UE, introduce un approccio incentrato sulla persona per le cure di follow-up dei sopravvissuti che si basa su linee guida cliniche internazionali per la sorveglianza degli effetti tardivi. Il progetto fornirà inoltre un programma di intervento sullo stile di vita di salute digitale basato sulle linee guida, nonché materiale a sostegno del mantenimento e della replica sostenibile degli interventi di PanCareFollowUp.
Obiettivo
The 5-year survival for children with cancer increased from 30% in the 1970s to more than 80% at present. There are up to 300,000 childhood cancer survivors in Europe and this number is increasing. Years after treatment, childhood cancer survivors are at high risk for developing health and psychosocial late effects, resulting in excess morbidity and mortality compared the general population. The impact on the quality of life (QoL) of survivors and their families, as well as the societal and economic burdens, are significant. However, these impacts can be reduced by long-term survivorship care to detect treatable disease at an early phase and start timely interventions to preserve health, improve QoL, as well as coordinate specialised care and empower survivors.
Implementing follow-up care, especially for young adult and adult survivors of childhood cancer, has proven challenging across Europe. These survivors have left paediatric care and most of them have no opportunity to visit experts in survivorship care. To improve survivorship care for these survivors across Europe, PanCareFollowUp will conduct a prospective cohort study to assess effectiveness, value, cost effectiveness and feasibility of the PanCareFollowUp Care intervention, a person-centred approach to survivor follow-up care based on international clinical guidelines for surveillance of late effects. PanCareFollowUp also includes the development and assessment of a personalised, guideline-based eHealth lifestyle intervention.
Ensuring that the PanCareFollowUp interventions are used in the real world is paramount to achieving enduring improvements to survivorship care. Hence, the project includes the development of materials to support sustainable maintenance and replication of the PanCareFollowUp interventions. The PanCare network will become the guardian of the interventions after the project, ensuring that the intervention materials are openly available, sustainably maintained and widely shared.
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Invito a presentare proposte
Vedi altri progetti per questo bandoBando secondario
H2020-SC1-2018-Single-Stage-RTD
Meccanismo di finanziamento
RIA - Research and Innovation actionCoordinatore
3584CS Utrecht
Paesi Bassi