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European Joint Programme on Rare Diseases

Project description

Sustainable ecosystem to improve the lives of rare disease patients

Rare diseases (RD) research remains fragmented throughout Europe, resulting in delays in diagnosis, fewer medicines and reduced access to care. This research domain could greatly benefit from better coordination within and beyond Europe. The EU-cofunded EJP RD project (130 institutions, 35 countries) is developing an effective RD research ecosystem to address this issue. It improves the integration, effectiveness and social impact of RD research by developing, demonstrating and promoting Europe/world-wide research, and sharing clinical data, resources, procedures, knowledge and expertise. It also carries out and further establishes an efficient financial support model for all RD research types coupled with accelerated exploitation of research results for the benefit of patients.

Call for proposal

H2020-SC1-2018-Single-Stage-RTD
See other projects for this call

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Address
Rue De Tolbiac 101
75654 Paris
France
Activity type
Research Organisations
EU contribution
€ 11 160 573,50

Participants (93)

FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Austria
EU contribution
€ 522 762,50
Address
Sensengasse 1
1090 Wien
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AIT AUSTRIAN INSTITUTE OF TECHNOLOGY GMBH
Austria
EU contribution
€ 931 397,16
Address
Giefinggasse 4
1210 Wien
Activity type
Research Organisations
LUDWIG BOLTZMANN GESELLSCHAFT GMBH
Austria
EU contribution
€ 144 068,95
Address
Nussdorfer Strasse 64 6 Stock
1090 Wien
Activity type
Research Organisations
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS
Belgium
EU contribution
€ 247 673,70
Address
Rue D'egmont 5
1000 Bruxelles
Activity type
Research Organisations
FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN
Belgium
EU contribution
€ 574 066,05
Address
Egmontstraat 5
1000 Brussel
Activity type
Research Organisations
KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
EU contribution
€ 84 836,17
Address
Oude Markt 13
3000 Leuven
Activity type
Higher or Secondary Education Establishments
MINISTRY OF EDUCATION YOUTH AND SPORTS
Czechia
EU contribution
€ 469 289,08
Address
Karmelitska 7
118 12 Prague
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SOTSIAALMINISTEERIUM
Estonia
EU contribution
€ 55 443,75
Address
Suur-ameerika 1
10122 Tallinn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SUOMEN AKATEMIA
Finland
EU contribution
€ 511 539,06
Address
Hakaniemenranta 6
00531 Helsinki
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AGENCE NATIONALE DE LA RECHERCHE
France
EU contribution
€ 2 473 494,65
Address
50 Avenue Daumesnil
75012 Paris
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDATION MALADIES RARES
France
EU contribution
€ 906 773,45
Address
Rue Didot 96
75014 Paris
Activity type
Other
ASS FRANCAISE CONTRE LES MYOPATHIES
France
EU contribution
€ 5 149,81
Address
47-83 47 Boulevard De L'hopital, Institut De Myolo
75013 Paris
Activity type
Other
IMAGINE INSTITUT DES MALADIES GENETIQUES NECKER ENFANTS MALADES FONDATION
France
EU contribution
€ 65 382,22
Address
24 Bd Du Montparnasse
75015 Paris 15
Activity type
Research Organisations
DEUTSCHES ZENTRUM FUR LUFT - UND RAUMFAHRT EV
Germany
EU contribution
€ 2 680 471,68
Address
Linder Hohe
51147 Koln
Activity type
Research Organisations
UNIVERSITAETSKLINIKUM AACHEN
Germany
EU contribution
€ 512 337,18
Address
Pauwelsstrasse 30
52074 Aachen
Activity type
Higher or Secondary Education Establishments
CHARITE - UNIVERSITAETSMEDIZIN BERLIN
Germany
EU contribution
€ 463 844,97
Address
Chariteplatz 1
10117 Berlin
Activity type
Higher or Secondary Education Establishments
UNIVERSITAETSKLINIKUM FREIBURG
Germany
EU contribution
€ 126 285,05
Address
Hugstetter Strasse 49
79106 Freiburg
Activity type
Higher or Secondary Education Establishments
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL
Hungary
EU contribution
€ 189 576,23
Address
Kethly Anna Ter 1
1077 Budapest
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
THE HEALTH RESEARCH BOARD
Ireland
EU contribution
€ 331 345,63
Address
Lower Baggot Street 73
2 Dublin
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
MINISTERO DELLA SALUTE
Italy
EU contribution
€ 1 631 487,88
Address
Via Giorgio Ribotta 5
00144 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
REGIONE TOSCANA
Italy
EU contribution
€ 152 040,08
Address
Palazzo Strozzi Sacrati - Piazza Del Duomo 10
50122 Firenze
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDAZIONE REGIONALE PER LA RICERCA BIOMEDICA
Italy
EU contribution
€ 546 606,05
Address
Piazza Citta Di Lombardia 1
20124 Milano
Activity type
Research Organisations
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS
Italy
EU contribution
€ 190 404,27
Address
Via Abate Eustasio 30
70010 Valenzano Bari
Activity type
Research Organisations
FONDAZIONE TELETHON
Italy
EU contribution
€ 927 344,38
Address
Via Varese 16/B
00185 Roma
Activity type
Research Organisations
ISTITUTO SUPERIORE DI SANITA
Italy
EU contribution
€ 721 673,63
Address
Viale Regina Elena 299
00161 Roma
Activity type
Research Organisations
CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE
Italy
EU contribution
€ 414 730,23
Address
Via Nicolo Putignani 178
70122 Bari
Activity type
Research Organisations
TEDDY - EUROPEAN NETWORK OF EXCELLENCE FOR PAEDIATRIC CLINICAL RESEARCH
Italy
EU contribution
€ 172 704,67
Address
Via Luigi Porta 14
231261 Pavia
Activity type
Other
MINISTERO DELL'ISTRUZIONE, DELL'UNIVERSITA' E DELLA RICERCA

Participation ended

Italy
EU contribution
€ 7 260,95
Address
Via Michele Carcani 61
00153 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VALSTS IZGLITIBAS ATTISTIBAS AGENTURA
Latvia
EU contribution
€ 10 160,95
Address
Valnu Iela 1
1050 Riga
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Lietuvos mokslo taryba
Lithuania
EU contribution
€ 99 153,28
Address
Gedimino 3
LT-01103 Vilnius
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VIESOJI ISTAIGA VILNIAUS UNIVERSITETO LIGONINE SANTAROS KLINIKOS
Lithuania
EU contribution
€ 133 049,04
Address
Santariskiu G 2
08661 Vilnius
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS NATIONAL DE LA RECHERCHE
Luxembourg
EU contribution
€ 282 822,49
Address
2 Avenue De L'universite
4365 Esch-sur-alzette
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
ZORGONDERZOEK NEDERLAND ZON
Netherlands
EU contribution
€ 2 892 718,25
Address
Laan Van Nieuw Oost Indie 334
2593CE Den Haag
Activity type
Research Organisations
ACADEMISCH ZIEKENHUIS GRONINGEN
Netherlands
EU contribution
€ 1 431 858,45
Address
Hanzeplein 1
9713 GZ Groningen
Activity type
Higher or Secondary Education Establishments
UNIVERSITEIT MAASTRICHT
Netherlands
EU contribution
€ 615 700,49
Address
Minderbroedersberg 4
6200 MD Maastricht
Activity type
Higher or Secondary Education Establishments
NARODOWE CENTRUM BADAN I ROZWOJU
Poland
EU contribution
€ 498 445,06
Address
Ul. Nowogrodzka 47A
00 695 Warszawa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
WARSZAWSKI UNIWERSYTET MEDYCZNY
Poland
EU contribution
€ 101 863,96
Address
Ul. Zwirki I Wigury 61
02 091 Warszawa
Activity type
Higher or Secondary Education Establishments
GDANSKI UNIWERSYTET MEDYCZNY
Poland
EU contribution
€ 87 383,14
Address
Ulica M Sklodowskiej Curie 3A
80210 Gdansk
Activity type
Higher or Secondary Education Establishments
INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA
Poland
EU contribution
€ 108 049,22
Address
Aleja Dzieci Polskich 20
04730 Warszawa
Activity type
Research Organisations
FUNDACAO PARA A CIENCIA E A TECNOLOGIA
Portugal
EU contribution
€ 142 986,52
Address
Avenida D Carlos I 126
1249 074 Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE
Portugal
EU contribution
€ 13 992,88
Address
Avenida Padre Cruz
1649-016 Lisboa
Activity type
Research Organisations
SLOVENSKA AKADEMIA VIED
Slovakia
EU contribution
€ 126 705,06
Address
Stefanikova 49
814 38 Bratislava
Activity type
Research Organisations
INSTITUTO DE SALUD CARLOS III
Spain
EU contribution
€ 764 089,22
Address
Monforte De Lemos 5
28029 Madrid
Activity type
Research Organisations
FUNDACIO CENTRE DE REGULACIO GENOMICA
Spain
EU contribution
€ 1 046 877,79
Address
Carrer Doctor Aiguader 88
08003 Barcelona
Activity type
Research Organisations
UNIVERSIDAD POLITECNICA DE MADRID
Spain
EU contribution
€ 412 456,62
Address
Calle Ramiro De Maeztu 7 Edificio Rectorado
28040 Madrid
Activity type
Higher or Secondary Education Establishments
CONSORCIO CENTRO DE INVESTIGACION BIOMEDICA EN RED M.P.
Spain
EU contribution
€ 61 706,92
Address
Calle Monforte De Lemos 5
28029 Madrid
Activity type
Research Organisations
VETENSKAPSRADET - SWEDISH RESEARCH COUNCIL
Sweden
EU contribution
€ 643 526,62
Address
Vastra Jarnvagsgatan 3
111 64 Stockholm
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
VERKET FOR INNOVATIONSSYSTEM
Sweden
EU contribution
€ 438 262,53
Address
Master Samuelsg 56
10158 Stockholm
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
UNIVERSITY OF LEICESTER
United Kingdom
EU contribution
€ 1 357 132,34
Address
University Road
LE1 7RH Leicester
Activity type
Higher or Secondary Education Establishments
THE UNIVERSITY OF LIVERPOOL
United Kingdom
EU contribution
€ 69 546,37
Address
Brownlow Hill 765 Foundation Building
L69 7ZX Liverpool
Activity type
Higher or Secondary Education Establishments
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
EU contribution
€ 66 255,16
Address
Kings Gate
NE1 7RU Newcastle Upon Tyne
Activity type
Higher or Secondary Education Establishments
ST ANNA KINDERKREBSFORSCHUNG VEREIN
Austria
EU contribution
€ 113 341,69
Address
Zimmermannplatz 10
1090 Wien
Activity type
Research Organisations
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS
France
EU contribution
€ 763 149,82
Address
3 Avenue Victoria
75000 Paris
Activity type
Research Organisations
HOPITAUX UNIVERSITAIRES DE STRASBOURG
France
EU contribution
€ 11 871,90
Address
Place De L Hopital 1
67091 Strasbourg Cedex
Activity type
Research Organisations
CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD
France
EU contribution
€ 27 994,98
Address
Rue Laennec 28
69373 Lyon
Activity type
Research Organisations
UNIVERSITATSKLINIKUM HEIDELBERG
Germany
EU contribution
€ 711 969,60
Address
Im Neuenheimer Feld 672
69120 Heidelberg
Activity type
Higher or Secondary Education Establishments
EBERHARD KARLS UNIVERSITAET TUEBINGEN
Germany
EU contribution
€ 610 066,83
Address
Geschwister-scholl-platz
72074 Tuebingen
Activity type
Higher or Secondary Education Establishments
JOHANN WOLFGANG GOETHE-UNIVERSITAET FRANKFURT AM MAIN
Germany
EU contribution
€ 1 011 407,86
Address
Theodor W Adorno Platz 1
60323 Frankfurt Am Main
Activity type
Higher or Secondary Education Establishments
HELIOS DR. HORST SCHMIDT KLINIKEN WIESBADEN GMBH

Participation ended

Germany
EU contribution
€ 0
Address
Ludwig Erhard Strasse 100
65199 Wiesbaden
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ISTITUTO ORTOPEDICO RIZZOLI
Italy
EU contribution
€ 171 754,42
Address
Via Di Barbiano 1/10
40136 Bologna
Activity type
Research Organisations
AZIENDA OSPEDALIERO UNIVERSITARIA PISANA
Italy
EU contribution
€ 12 281,93
Address
Via Roma 67
56123 Pisa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AZIENDA OSPEDALIERA UNIVERSITARIA SENESE
Italy
EU contribution
€ 12 855,31
Address
Strada Delle Scotte 14
53100 Siena
Activity type
Other
ACADEMISCH ZIEKENHUIS LEIDEN
Netherlands
EU contribution
€ 2 112 129,01
Address
Albinusdreef 2
2333 ZA Leiden
Activity type
Higher or Secondary Education Establishments
STICHTING RADBOUD UNIVERSITEIT
Netherlands
EU contribution
€ 1 164 986,69
Address
Houtlaan 4
6525 XZ Nijmegen
Activity type
Higher or Secondary Education Establishments
ACADEMISCH MEDISCH CENTRUM BIJ DE UNIVERSITEIT VAN AMSTERDAM
Netherlands
EU contribution
€ 658 177,94
Address
Meibergdreef 15
1105AZ Amsterdam
Activity type
Higher or Secondary Education Establishments
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands
EU contribution
€ 24 563,85
Address
Dr Molewaterplein 40
3015 GD Rotterdam
Activity type
Higher or Secondary Education Establishments
SERVICIO MADRILENO DE SALUD
Spain
EU contribution
€ 48 290,68
Address
Plaza Carlos Trias Bertran 7
28020 Madrid
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST

Participation ended

United Kingdom
EU contribution
€ 0
Address
Freeman Hospital, High Heaton
NE7 7DN Newcastle-upon-tyne
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
EUROPEAN ORGANISATION FOR RESEARCH AND TREATMENT OF CANCER AISBL
Belgium
EU contribution
€ 5 149,81
Address
Avenue E. Mounier 83
1200 Brussels
Activity type
Research Organisations
INFRAFRONTIER GMBH
Germany
EU contribution
€ 191 053,73
Address
Ingolstadter Landstrasse 1
85764 Neuherberg
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
BIOBANKS AND BIOMOLECULAR RESOURCES RESEARCH INFRASTRUCTURE CONSORTIUM (BBMRI-ERIC)
Austria
EU contribution
€ 1 473 495,22
Address
Neue Stiftingtalstrasse 2/B/6
8010 Graz
Activity type
Research Organisations
ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK
France
EU contribution
€ 212 620,43
Address
5 Rue Watt
75013 Paris
Activity type
Research Organisations
EATRIS ERIC
Netherlands
EU contribution
€ 758 430,86
Address
De Boelelaan 1118
1081 HZ Amsterdam
Activity type
Research Organisations
EUROPEAN MOLECULAR BIOLOGY LABORATORY
Germany
EU contribution
€ 1 992 715,13
Address
Meyerhofstrasse 1
69117 Heidelberg
Activity type
Research Organisations
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
France
EU contribution
€ 928 467,10
Address
Rue Didot 96
75014 Paris
Activity type
Other
MINISTRY OF HEALTH
Israel
EU contribution
€ 475 815,63
Address
Yirmiyahu 39
9101002 Jerusalem
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Switzerland
EU contribution
€ 712 348,70
Address
Wildhainweg 3
3012 Bern
Activity type
Research Organisations
BLACKSWAN FOUNDATION
Switzerland
EU contribution
€ 192 830,52
Address
Chemin De La Riaz 11
1418 Vuarrens
Activity type
Other
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU
Turkey
EU contribution
€ 822 215,62
Address
Ataturk Bulvari 221
06100 Ankara
Activity type
Research Organisations
ACIBADEM MEHMET ALI AYDINLAR UNIVERSITY
Turkey
EU contribution
€ 222 837,49
Address
Icerenkoy Mah. Kayisdagi Cad. No/32 Atasehir
34752 Istanbul
Activity type
Higher or Secondary Education Establishments
HACETTEPE UNIVERSITESI
Turkey
EU contribution
€ 51 149,92
Address
Hacettepe Universitesi Beytepe Kampusu Rektorluk Binasi
06800 Cankaya Ankara
Activity type
Higher or Secondary Education Establishments
CANADIAN INSTITUTES OF HEALTH RESEARCH
Canada
EU contribution
€ 0
Address
Elgin Street 9Th Floor Address Locator 4809A 160
K1T 4H8 Ottawa Ontario
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FONDS DE RECHERCHE DU QUEBEC - SANTE
Canada
EU contribution
€ 0
Address
Rue Sherbrooke Ouest 500
H3A3C6 Montreal Quebec
Activity type
Other
INSERM TRANSFERT SA
France
EU contribution
€ 314 256,08
Address
Rue Watt 7
75013 Paris
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
GENIKI GRAMMATIA EREVNAS KAI KAINOTOMIAS
Greece
EU contribution
€ 20 609,96
Address
Mesogeion Avenue 14-18
115 10 Athens
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
DEUTSCHE FORSCHUNGSGEMEINSCHAFT
Germany
EU contribution
€ 0
Address
Kennedyallee 40
53175 Bonn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
AZIENDA SANITARIA UNIVERSITARIA FRIULI CENTRALE
Italy
EU contribution
€ 166 712,35
Address
Via Pozzuolo 330
33100 Udine
Activity type
Research Organisations
HOSPICES CIVILS DE LYON
France
EU contribution
€ 60 834,74
Address
Quai Des Celestins 3
69002 Lyon
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
UNIVERSITAETSKLINIKUM HAMBURG-EPPENDORF
Germany
EU contribution
€ 12 282,18
Address
Martinistrasse 52
20251 Hamburg
Activity type
Higher or Secondary Education Establishments
UNIVERSITAIR MEDISCH CENTRUM UTRECHT
Netherlands
EU contribution
€ 12 282,18
Address
Heidelberglaan 100
3584 CX Utrecht
Activity type
Higher or Secondary Education Establishments
PARACELSUS MEDIZINISCHE PRIVATUNIVERSITAT SALZBURG - PRIVATSTIFTUNG
Austria
EU contribution
€ 120 288,25
Address
Strubergasse 21
5020 Salzburg
Activity type
Higher or Secondary Education Establishments
RUHR-UNIVERSITAET BOCHUM
Germany
EU contribution
€ 69 899,53
Address
Universitaetsstrasse 150
44801 Bochum
Activity type
Higher or Secondary Education Establishments
Ministero dell'università e della ricerca
Italy
EU contribution
€ 177 387,94
Address
Via Michele Carcani 61
00153 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)