Descripción del proyecto
Colaboración para un mejor diagnóstico de las encefalopatías epilépticas
Las encefalopatías epilépticas (EE) representan un grupo de enfermedades epilépticas graves con aparición temprana que llevan a una disfunción cerebral progresiva. Las nuevas tecnologías moleculares han hecho que diagnosticar y comenzar el tratamiento antes sea más fácil, para obtener unos mejores resultados en los pacientes. El proyecto SEED, financiado con fondos europeos, ayudará a la Universidad de Sfax (SU, por sus siglas en inglés) de Túnez a formar una colaboración (hermanamiento) con dos instituciones europeas líderes a nivel internacional en diagnóstico de EE (la Universidad de Aix-Marseille de Francia y la Universidad de Amberes de Bélgica), para crear excelencia investigadora e innovación en el diagnóstico clínico y genético de la EE. El objetivo es que la SU construya redes de investigación sostenibles, cierre brechas del conocimiento y se incorpore a las redes internacionales a través de formaciones a intercambios del personal.
Objetivo
Epileptic encephalopathies (EE) are heterogenous epilepsy syndromes associated with severe cognitive disturbance. EE vary in their onset age, seizure types, electroencephalographic patterns and etiologies. New molecular technologies increased the genetic diagnosis rate. Inline with EU orientations and Twinning requirements, the SEED project will provide Sfax University (SU), with capacity building in excellence and innovation for earlier clinical and genetic diagnosis of EE, thanks to collaboration with AMU and UA, two internationally leading organisations for the diagnosis of EE. Early clinical and genetic diagnosis allows early management, improves prognosis and reduces health costs. The SEED project will: 1) strengthen the medical and technological capacity towards innovative technologies of SU in the field of EE 2) allow access to scientific excellence at international level for members of the SU which will lead ultimately to a better integration into international networks in MENA and EU regions. The successful implementation of this strategy will rely on specific actions including: 1)enhancement of the existing and the creation of innovative scientific and technical collaborations through short-term staff exchanges and short-term on-site training activities; 2)training young researchers from SU to become trainers; 3)creating an experts’network for EE management centred at SU; 4) increasing awareness among the patient’s families through targeted dissemination and communication activities and 5) developing a strategy to sustain network activity beyond the project deadline. Through the completion of these activities, and with the support of AMU and UA, SU will be able to significantly reduce networking gaps, to increase its ability to compete for international research funds and to link further with stakeholders. In addition, thanks the SEED project, SU will become the reference center for the clinic and genetic diagnosis of EE in the MENA region.
Ámbito científico
Palabras clave
Programa(s)
- H2020-EU.4.b. - Twinning of research institutions Main Programme
Tema(s)
Convocatoria de propuestas
Consulte otros proyectos de esta convocatoriaConvocatoria de subcontratación
H2020-WIDESPREAD-2018-03
Régimen de financiación
CSA - Coordination and support actionCoordinador
3029 Sfax
Túnez