Project description
Supporting therapies for patients suffering from rare diseases
Rare diseases affect no more than 1 person in 2000, however collectively they affect 30 million people in the EU. In the area of rare diseases, knowledge exchange and research within the EU and international collaboration is indispensable. The EU-funded ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, aims at building on the strength of the individual ERNs to create a platform that integrates all ERNs’ research and innovation capacity. Its overall aim is to create new intra- and inter-ERN rare disease competitive networks and establish effective data collection strategies. It will also explore ways to improve patient involvement and enhance the quality and impact of clinical trials.
Objective
Rare diseases are defined as diseases that affect not more than 1 person per 2000 in the European population. While individual rare diseases affect only a small percentage of the population, they collectively affect up to 30 million people in the EU. To facilitate access to high quality cross-border healthcare and promote and foster cooperation on rare disease healthcare between member states, 24 European Reference Networks (ERN) are currently active. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERN’s research and innovation capacity. Through knowledge sharing, engagement with stakeholders in the rare disease domain and assembly of transdisciplinary research groups working across the global health spectrum ERICA strives to reach the following goals: • new intra- and inter-ERN rare disease competitive networks; • effective data collection strategies; • better patient involvement; • enhanced quality and impact of clinical trials; • increased awareness of ERN’s innovation potential; Through integration of ERN research activities, outreach to European research infrastructures to synergistically increase impact and innovation ERICA will strengthen the research and innovation capacity of the ERNs. This will result in safe, accessible and efficient access of therapies for the benefit of patients suffering from rare diseases and conditions.
Programme(s)
Topic(s)
Funding Scheme
CSA - Coordination and support actionCoordinator
2333 ZA Leiden
Netherlands
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Participants (27)
69120 Heidelberg
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28046 MADRID
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
28046 Madrid
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08035 Barcelona
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75654 Paris
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69003 Lyon
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40136 Bologna
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52074 Aachen
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75014 Paris
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1090 Wien
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1081 HZ Amsterdam
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33100 Udine
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75012 Paris
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3015 GD Rotterdam
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Participation ended
69002 Lyon
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67091 Strasbourg Cedex
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60596 Frankfurt Am Main
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72074 Tuebingen
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69373 Lyon
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6525 XZ Nijmegen
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1081 HV Amsterdam
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20251 Hamburg
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56123 Pisa
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3584 CX Utrecht
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1090 Wien
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6525 GA Nijmegen
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08950 Esplugues De Llobregat
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